Thanks everyone for the support and suggestions. I really
appreciate them and knowing that I am hot alone in this makes all the
difference in the world. One of the things that I know I need to
do is to work some of the ABA programs into our everyday life. He
has mastered one program so far and that was to sign "Give me".
We used his binky (his best friend) as the reinforcer and we did it
whenever he dropped it on the floor. It took him no time to
consistantly do it and quickly transfered it to getting food and other
things he really wanted. I know he can do it and that is what
really drives me and I am sure most of you crazy too,
Beofre I ramble on all night about this let me say thanks and good night
Hope it goes well:) We did ABA for almost 4 years and the first year was the hardest..hang in there..they will find ways to engage him!
I don't post very often but I love reading this board. Everyone here is so supportive and very encouraging.
My ds (25 months) is scheduled for a 48 hours video eeg starting
tomorrow. He has been having some seizure like activity while going to
sleep and his neuro just wants to check it out before she changes any
of his meds. I am not looking forward to it. We will most
likely be in the same hosptial room that we spent 2 1/2 weeks in during
Feb wired to the computer and not being able to leave the room and even
allowing him to walk around the room is very difficult with all the
wires. Ds loves to wander around and has very little interest these
days in doing anything that has him use his hands. Right now his
ball pit and Elmo chair are his favorite toys. DH has to work
half days so he won't be around to help out. I am so worried about what
they are going to find or not find.
He has been getting 7.5 hours of ABA a week among other things and he
is starting to come around. However this mornings session was
terrible. He didn't want to do anything. He went from 90%
for pick it up to 10% today. He just kept pushing the koosh ball
back to his theraoust and not picking it up. This just drives me
crazy. For those of you who have used ABA have your children done
this?
Thanks for listeing and if you could keep us in your thoughts and prayers over the next few days I would greatly appreciate it.
Wow I would be interested to hear the results! Good luck!
Good luck with VEEG!! I hope you get some answers! I don't know if this will help keep your son occupied, but we ususally go to the dollar store or get some real cheap toys like matchbox cars, puzzles, etc and wrap them up like presents...they don't hold Mason's attention for very long, but we buy quite a few that it does help A LOT!!
That and a lot of his favorite snacks!
Mason too will do great one day in therapy and then the next day show no interest or even that he can't do what he was doing previously, I know how frustrating it is! Just hang in there!
Wishing you lots of luck and you are definitely in our thoughts! Please keep us posted to how it goes! Big hugs!