Anyone seen Kajoli??? | Autism PDD

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Thanks for asking

Mom is doing well and I hope she continues to do so - she has sooo much spirit and is always a picker -upper - her sounding weak and tired has us all derailed - its like our vortex is now weak - KWIM

Overall Rohan is doing very well - and leaving the GF CF diet has been a huge relief to us

Interacting a lot ( still stims a lot - I know now that he needs that and dont stress about that - but I still like it when he does not need to do that as much ) - doing lots of puzzles - right now the one he is very interested in is the wooden shapes one and the wooden alphabet one

The other thing I found he loves is Flash cards - go figure so now I have something with which to keep his occupied while in the car or in the shopping cart. 

He also discovered CD-players - he was SOOOOO excited to hear Twinkle twinkle little star on the CD player that he was almost in tears and we did the hand gestures again and again to that - I am finding that music is the best way to connect with him - no matter what he is doing a song - like Itsy Bitsy Spider - will immiediately engage him - I always knew this but I am starting to use this knowledge a little bit more

I am also looking for more things to do with him that are truly Floortime - its not always easy to follow his lead - I frequently have to introduce things to him - KWIM?Plus we cannot go to the PLAY conference in Indianapolis as now my parents are coming in September not August - very bummed out about that as I dont want to leave R with a babysitter overnight

He has also discovered Krispy Creme and Dum Dums !! And though we have not given him a single fry in the past month  - had tears running down his face when he saw that I was throwing an ( empty) Mc Donalds Paper Bag.

Even my feeble attempts at PT are proving not very successful and I may have to give up for a few days and then try the whole enchilada one weekend when I can do it

 

 

Good to hear from you Kajoli!!! Sorry about ur mom... hope she is feeling better soon!!! How is Rohan??? What is new???

Kajoli - How is ur mom doing now? Is she comfy with the pacemaker now?

I saw so much of what I feel in your post  about parents getting old.... and the very thought bolts thru me like lightening bec my parents are our (dh and my) biggest/strongest/most effective pillars of support and when I see my mom getting a little forgetful these days, it pains me to realize that she is ageying... beautifully so but she is....

There is a quote by Thich Nhat Hanh - that ceneters around the reason for human sadness due to the thinking that things are permanent. So true....

thanks for asking - I am very much here- just things have been really busy out here -
I was traveling most of last week  - in the midst of which my mom needed a pacemaker - had the horrible realization that my parents are getting old ( I adore  them so this is especially hard) .

I am really struggling with finding a FT specialist locally - I think we are eventually going to suck it up and go to ATL to see the specialist - who also cannot see us till SEPTEMBER

Finally got PECS set up ( not really using them that much yet - I just keep forgetting and never have  the specific PEC on hand ) and our erstwhile nursery organized into a Floortime type room -

Our psychologist says she is very impressed with us and says we are the most informed ASD parents she has ever seen- which is very nice of her to say and I appreciate the honesty very much but it makes me feel all the more like we need specialist help!
If I know more about therapies through this message board, 2 books and some internet resources  than the supposed best child psychologist in our area ......

I saw a post from her yesterday..I think she is busy doing floortime:)

She was just posting yesterday, I believe.

Yoo hoo...Kajoli!  Paging  Kajoli! 
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