Intro | Autism PDD

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Just wanted to welcome you to the board Jennifer. Sounds like you have your hands more than full. Things can get so overwhelming. You can always turn to this site for support, advice, and help. It's a great place. I look forward to chatting w/ you.

Amber

Welcome aboard jennifer !!

You found a great site everyones so helpful,understanding You will feel better when you sign off at night knowing your not alone !!!

Welcome Jennifer my name is Nita I am a stay at home mom of 4. Starting college in the fall I have an 11 yr old daughter named Danielle who will be entering 6th grade who is a big help and as you said is "old beyond her years" I have an 8 yr old daughter who is going into 3rd grade and is very into ballet and singing they are both NT and honor roll students. I have one son Nick and he is on the spectrum he is 5 and will be entering Kindergarden at a special school for kids on the spectrum. And last but not least the baby is 3 and her name is Adrienne she will be going into preschool and is also NT. I know how you feel about wanting to run away from home and about the dh not being much help even on his day off!!!! This is a great place to vent and get alot of good advice (Michelle I will be looking into the excersize balls Nick is a jumper too) or just a place to tell about what your kids have done or are doing. Nice to have you here.

Hi Jennifer. Your son and mine (4) seem to have a lot in common. My son's behaviors and sensory issues seem to be getting worse and I tie it all to our loss of in home services when he turned 3 and our difficulty in getting quaility services....oooooops, excuse me, I was about to go off on a rant (this is a good safe place for you to rant btw) and this isnt about my gripes, it is to welcome you to a wonderful, safe place that is full of sage and caring folks, that really do understand the running away bit :) ah, can I come too? a nice quiet beach with a few good books???????LOL!

Welcome!

 

hello jennifer, i'm sahm of 3, erica 12 special needs, carlo 5 pdd-nos + some and ryleigh 22 mths nt. welcome to the board and hope you find it as helpful as i have. you'll really like it here, everyone here is great. take care and post anytime.mom2carlobtw my oldest 2 suffer from partial-complex seizures also. my erica has the vagal nerve stimulator implanted and takes keppra. carlo takes depakote for his. just thought i'd let you know in case you may have ? down the road.mom2carloWelcome aboard!!

I can say most of can relate to your feeling about just wanting to run away!!  But we all know we can't cuz no one else can handle our kids!!    Hang in there!!    There are always the good days that make up for 100 bad ones!!    

Bonnie

Hi I've been reading a little and wanted to join your message board and decided it was time to post an intro. 

I'm Jennifer 34, married 13 years to Daniel I am a stay at home mom of three children.  Some of my intrest's are photography, scrapbooking and video games thanks to my son.

My oldest is Amberly 10 yrs old, NT, entering 5th grade, she's an honor roll student and a great help to me.  She's old beyond her years as the saying goes. 

My next daughter is Liberty 6 (almost 7 she would say) her birthday is next mo. lol.  she has Complex Partial Epilepsy w/imparment of conciousness and several eye diseases no treatment to help them.  Estrophia, nystigmus, no depth perception and no 3-D vision.  So we never go see 3-D movies here. 

Then there is my son Zachary 3 who has Autism.  He start's special education pre-school this fall.  He's not very verbal, he has a few words, no sentences.  Video's and Video games are his life, with a sprinkeling of Thomas the train and hot wheels thrown in.  Issues, sleep, speech, sensory, transition, comunication in general, empathy & emotions, hitting, running away,toe walker, recieving ST, OT and soon PT for the toe walking. 

I'm sure I'm forgetting something since my brain does not function without a pot of coffee each day. 

I just wanted to say hello to all before posting.  I try not to be a rude poster or get into too many hot issues or topics.  I'm just having  a hard time dealing with the day to day issues of my son.  Today he's jumping on other kids off of furnature, dh is not helping things even on his day off.  The other kids are not making things easier and I feel like running away from home.  Any suggestions besides anti-depressants welcome! 

Hi Jennifer! Welcome to the board! Sounds like you have your hands full as well. Know many of us here can understand the daily life stresses and are here to listen and help when possible. The board is full of people who truely care and understand!

Sounds like your lil guy likes to rough house.... The jumping probably calms him. I would definately look into some sensory strategies and Sensory Integration Therapy (I will post some links below)

One thing I use with my son that helps alot are therapy balls. We got a small 26" exercise ball he can sit on and bounce up and down (Maybe your little guy could use one of those hoppers with the handle?) We also have a large 50" therapy ball that I roll him on and since he is nearing 10 now he can stand against and lean into and bounce and flap against which really helps  control the rough play he enjoys so much. (He also now trys to jump and ride over top of the ball across the living room)

Trampolines are another great option. We have one outside and at one point hand an exercise one inside until its one leg broke! But they are great for these kids, as is spinning in a chair! My son loves to spin spin spin in the computer chair. Many times I just see him doing it, other times I ask him if he wants to spin.

Weighted vests are a help to many as well..... it helps them be aware of where their body is in space, it also calms them.

ANyway theres just a few ideas to get you started and here are the links......

Sensory Integration - Must Read

How to know if its sensory / What to do

Sensory Defensiveness & Sensory Diet

Sensory Integration & Teaching Strategies

Sensory Integrative related feeding probs

Jennifer,

Hi and welcome!!  I have 3 kids.  A boy (almost 13) and NT, a girl 11 NT, and a 3 year old boy adam with autism.  I agree with michelle here on the sensory.  Adam is always wanted to jump and play hard and I usually do some gross motor activity with him before any therapies so that he will focus more.  A lot of times when our children are active in this way they are self regulators with sensory and it's actually a good thing when they can do this.  Not all children on the spectrum are able to self regulate.  Everything I have learned says that if they are able to do this then it should be encouraged. Mind you if you dont' want them jumping on furniture, beds, and siblings......LOL.....then there are other options out there like trampolines etc as michelle has stated.  Sometimes I just have adam jump in place and run back and forth in the yard and he thinks it's a big game. Swinging is also a really good outlet for sensory.  They actually make sensory swings that hang from your ceiling that swing all different directions that your child can sit or lay in.  It is suppose to be a really great sensory for the vestibular cochlear issues that a lot of our children have.  You can find them online at ebay sometimes used and new.  I want to get one for my son so his EI mentioned funds that may be available to him to get certain items like this.  So I will wait and see if I can get it paid for first before buying one myself.  Anyway...WELCOME to the board.  Sounds like you have a wonderful family there!!

Karrie

Hi Jennifer!

I have two children: Luke, 28 mos with PDD-NOS, and Andrew, 1 mo and FUSSY!  You are dealing with so much ... you have my admiration.  I don't really have any suggestions, but wanted to welcome you to the board.
Kellie
Momzheadache--I read your comment on the "wedding" issue-and you mentioned bipolar-do you know much about what that looks like to a "healthy " person(mom)?I need some everyday real person info-not something out of a textbook-can you reply? Carol
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