What about alternative treatments?What about alternative treatments?
http://www.autcom.org/redflags.html Autcom's Red Flags And Rules of Thumb for Evaluating Treatments 1. Be suspicious of any treatment which makes grandiose claims, using words like "miraculous," "amazing breakthrough," "recovery," or "cure." Legitimate medical and educational professionals show respect for the uniqueness of each individual with autism and the feelings of that individual's family, and therefore never indulge in overstatements and boasts about what they will be able to accomplish. When they are particularly successful in helping a person, they do not solicit testimonials from the person's family or encourage parents to make grandiose promises and claims to others. 2. Be suspicious of professionals who publicize and promote their method or program as if it were a packageable commodity. Since autism is not a "thing" a person "has," but an attempt to capture in a single label a wide range of behavioral adaptations to a wide range of sensory and movement regulatory differences, there can be no such thing as a general treatment "for autism." Likewise, beware of parent support groups dedicated to the promotion of a particular "miraculous" method. Enthusiastic testimonials from people who claim they have been helped by a product or treatment are no substitute for the evidence gathered through careful, unbiased investigation, and for considering the unique developmental profile of your individual child. Run for the hills if you are ever made to feel guilty or inadequate for failing to buy into a treatment or for questioning the eager rhetoric surrounding it. 3. Remember that many treatments are composed of an eclectic mix of active and inactive ingredients. The more clarity we can achieve about what really helps, the less time, energy, and money we will waste on inactive, incidental, and occasionally harmful treatment components. It is helpful to note the common features in many effective interventions, across many different disciplines: I am so glad that there are groups like this that help us negotiate the maze of autism and therapy for our children. It is easy because we want so much for our kids to get better to latch on to any offer of a miracle treatment and I feel that some people take advantage of that. Even people who offer recognised treatments but do it badly can be a concern. Some of the ABA websites have information on how to evaluate the quality of your therapists. They may be worth a look. There are many "Therapy/Cures" out there. Some people (many doctors) do not agree with us about B6 Therapy. My husband thought I was nuts at first too. I put together a 25 page report, made copies and handed it out. I also was able to talk to the Autism Research Institute and get the facts before starting B6 or the DMG. We had a doctor prescribe B6 for our son who then refused to see him as a patient after that because he decided he didn't agree with us. I got a phone call from his office telling me never to come back. After a very upsetting phone call I reported him to the medical board and my insurance company. My advise to all parents looking for answers.... 1) Talk to other parents about their experience and ask them if they know of a good doctor in your area. 2) Do research!!! Collect case study info and become well informed on the therapy you are interested in before going to your doctor, so you can answer any questions they might have. Just because they are a doctor and/or treat Autism they may not be well informed about the Therapy you are interested in. 3) TALK TO YOUR CHILD'S DOCTOR. A doctor can help you with the correct dosage and monitor to make sure that there is not a reaction, a confliction between meds, and can assist in altering the dosage if needed. My son weighs 29 pounds and takes 300mg of B6, 100mg of Magnesium Oxide, and 250mg of DMG a day. They are high doses and he is closely monitored by his PED. 4) Be prepared that the therapy may not work for your child. It is not an reason not to do it . If it does not work continue to research another idea. 5) NEVER GIVE UP HOPE!!! Thought for the day: Remember that a lone amateur built the Ark. A large group of professionals built the Titanic. |
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