For those of you with kids on the GFCF diet , I have a bunch of questions, Im hoping some of you can help me with. Basically my sons whole diet contains G and C and Im dreading having to put him on this, but of course will suck it up and do it if it can help him, but only want to do it if he truly needs to.
1) How did you know to put your kids on this?
2) Was it a blood test done at the pediatricians office?
3) If so, which one?
4) Can one blood test rule out any G or C allergies?
5) Did your kids show symptoms that they might be allergic (ie rashes, poorly formed stools, other sensory issues)? What were they specifically?
6) How long before you saw changes?
7) What were the changes?
Thanks in advance!!!
I would like to know this too! I will be watching this thread...Hi I have to run my son to preschool so here is a great site for information.
http://tacanow.org/dietinfo.htm
Special Diets for Special kids by Lisa Lewis is good
I will tell you about your son's experience with it when I get back
kathy
I researchrd the diet online and read about it but really hated the ideal of taken away the only type foods she ate..so I decided I needed to get her tested to see if she truely needed it..you dont have to have the test but I felt guilty doing it without knowing..I found a DAN doctor (Defeat Autism Now) and he took samples from her (blood, urine and stool) she came back with high peptides to glutein and casien as well as high yeast..her lead levels were high too. We did the diet for one year along with Nystatin(antiyeast) and supplements..some cream to rid her body of the lead. We did ABA and speech ALL at the same time..didnt have time to gage which therapies worked or not..I kinda went full throttle on all available to me:) She started within a few weeks noticing us and responding to noise whereas before a firetruck could go by and she never reacted at all..she stayed in the same room with us instead of roaming the house alone and aloof..within a few months she started manding and pointing for things saying single and 2 words together..after a year we weaned her off with no issues at all. She never had major gut issues other than constipation~but her diet is very low in fiber. I was hoping for dramatic results~full sentences and such but it didnt do that for us...just enough though to keep us on it~too scared to get her off
Good Luck:)
1. We were looking for a Dan for our son and we knew that many required
him to be on the GFCF diet. I am in Southern California so TACA is not
that far away from me.
2. The test kits were sent to me and the blood was drawn at a Lab.
3. & 4. Please see link to Great Plains
http://www.greatplainslaboratory.com/testkits.html
WE used this lab and 2 more. There is a list of test as well as the
explanation of the test to see if you can determine GFCF allergies or not.
(it is not definitive)
5. Sometimes stimmy at diffeent times and out of it once in a while
(spacey) (More than what I notice on a regular bases) Every once in
while loose stool.
6. Changes with just the diet--- very little ,if any at all. (We did the diet
for 6 months before we started Spplements and some Biomed)
I am not saying that there was no benefit, just nothing earth shattering.
I will add that after we added supplements/Biomed we did see changes
and better funtioning.
KathyWe are just starting down this path. I also read Karen Seroussi's book and then went to a conference featuring the Great Plains Lab and New Beginnings (supplement company). I had some testing done from Great Plains (my son's yeast and bacterial markers were off the charts) and will be seeing a DAN doctor this month. I think I've seen some positive results with a supplement, but am hesitant to start the diet fully until I have the lab results for the gluten/casein tests. This is very new to me...our pediatrician is completely ignorant of this path...so I've been reading everything I can before I plunge into this.http://www.tacanow.com/dietinfo.htmBoth of my kids are on GFCF...my 4 yr old did it for one year when first diagnosed and I took him off after one year and after one month on gluten and casein..he was awful..he wouldn't stay in his seat at school and they couldn't pin him down to complete a table activity...but once, I put him back on GFCF, he was much better and more language came too!! It is hard to do the diets, but they do help!! We also started the Low Oxalate Diet as well and that has helped the most with increase in fine and gross motor skills, increased socialization, awareness of body and increase in language skills...we also did the testing at Great Plains Lab...my 4 yr old had severe yeast and casein peptides so he CANT have any casein, my 10 yr old has more of a gluten problem...I didn't understand why when he ate his waffles for breakfast that he didn't want to eat anything for hours - it was giving him a stomache, but he couldn't tell me!!!
GFCF alone is good but when you add other diets in, that's when the changes occur!!!We got on the GF CF diet deciding to try it out after reading Karyn Seroussi's book which I still beleive is great !And its so luckty that she wrote this book for those of us whose kids are helped by this diet Anyway we saw steady progress the 3 months we were in GFCF - no miracles and pretty much the same rate of progress since we first started EI a month before going GF CF When we started GF CF - we also started ABA and engaging him a lot at home.10 days ago we got off it and I have been watching him like a hawk for regression I also did not tell his therapists so we would get an unbiased view - well these past 10 days his therapsit notes have been even better than before - his speech therapist says in the past one week she has seen a HUGE leap( rather than a regression ) in his receptive speech ! So now we are just focussing our efforts on the engaging?RDI methods BTW I stuill have not added dairy in - but am not going out of my way to avoid it Still I am glad I tried it
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Hello everyone, My name is Candace,and I'm a sahm to my wonderful son Zane; who is PDD-NOS. I'm also a freshman in college. I'm working on my first thesis paper, and the topic is changes in behavior after changing the diets of ASD children. I would like to use personal accounts from parents with ASD children as well for my resources. I would like to know if I may have permission to quote any of the responses used in this thread? Thank you for any replies, and I look forward to chatting with all the parents here in a more casual fashion in the future.
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