Hello,
My Son Zach received his ASD diagnosis 2 years ago at the age of 2, his on set was not "typical" has he had advanced speech-spoke in full sentences at 14 month's , as well as many minor differences. Finally our Developmental Pediatrician ordered an EEG and a MRI to "rule out" LKS. What we found was a slightly smaller left frontal lobe and abnormal activity in the lobe as well. with several EEG's we are not seeing the typical LKS pattern of steady spikes on the EEG, but there is severe distortion, he has been placed on antiseizure med's with no success , and will be placed on steroids shortly. Through out this though we have our Neurosurgen suggesting that Zach is not autistic but having an unknown variant of LKS, something that his dev Pediatrician and Neurolgist disagree with. Zach has been in an intesive EIBI program (40 hrs / week) since diagnosis and has been responding except for speech and a rise in stimming behaviour. Has anyone else had any experience with this
Someone else asked a question about LKS just recently. This is a copy of my response to that post. http://www.autism-pdd.net/forum/forum_posts.asp?TID=1458& ; ;KW=LKS
My son was tested for LKS variant. He had one EKG that showed a lot of activity over his temporal lobe, but that was the only one that did.
I would be sure you see someone who is knowledgable about LKS, especially if they do feel that your child has LKS, you want to work with someone who has experience in treating it. True LKS is extremely rare, and even LKS variant is rare, so most doctors have never even seen a case.
There is a good message board for LKS on the Braintalk forums: http://brain.hastypastry.net/forums/forumdisplay.php?f=153
There is also an LKS Yahoo email group: http://health.groups.yahoo.com/group/lks/
http://www.bobjanet.demon.co.uk/lks/home.html (LKS information)
Articles on emedicine:
http://www.emedicine.com/NEURO/topic547.htm
http://www.emedicine.com/neuro/topic182.htm