Research Study on Autistic Families | Autism PDD

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The research study posted below (which was also posted last week) has been approved by the Institutional Review Board of the University of Medicine and Dentistry of New Jersey, and it is a legitimate study. For further questions you can contact Seniz Celimli at senizcelimli@gmail.com or Dr. Richard BLUMBERG from the Elizabeth M. Boggs Center on Developmental Disabilities at rick.blumberg@umdnj.edu.


Doctoral Student Doing Study for Dissertation Project:

The Elizabeth M. Boggs Center on Developmental Disabilities at the University of Medicine and Dentistry of New Jersey is conducting a cross-cultural study of families raising a child with autism in the United States and Turkey. This research study is being conducted by Seniz Celimli, a doctoral student, under the supervision of Rick Blumberg, Ph.D.

This study aims to understand the differences exist between families of children with autism in the two cultures in terms of social support, parental stress levels, coping strategies, and family adaptability levels. What we learn will help us to identify cultural features that are supportive of family functioning and those that are less supportive.

Your participation in this study will enable us to better understand variation in family dynamics across cultures and will provide us with information that may contribute to more effective supports and sophisticated intervention methods.

The researchers are recruiting families that meet the following criteria:

- Are raising a child with a diagnosis of autism between the ages of 2 to 12 years
- Both parents are second generation citizens of the
United States.
- Both parents are willing to share information about their family’s functioning with the researchers. (All information will be kept strictly confidential)

If you agree to participate in this research study, you will be asked to engage in the following activities:
- Contact Seniz Celimli by email at, senizcelimli@gmail.com, e110748@metu.edu.tr or by phone at 1-718-369-1788 or 1-212-444-8845. If you wish to participate, she will send you a packet of materials including a consent to participate in the study and 4 brief questionnaires.
- Read the informed consent and if you agree to participate, sign the informed consent form.
- Respond to the set of 4 questionnaires. This will take approximately 1 hour.
- Return the consent and questionnaires to the researchers in the self-addressed, stamped envelope.

Thank you for your time and attention. If you have questions about this study, please contact Seniz Celimli at, senizcelimli@gmail.com, e110748@metu.edu.tr or Dr. Rick Blumberg at rick.blumberg@umdnj.edu.

Seniz Celimli
PhD Student

 

Why post it again?  Why not edit the already existing thread that you had started before?  You state both parents are second generation citizens of the United States, that that is one of the qualifications.  If you were really interested in studying the effects of having a child with autism in the family, that would not be one of the qualifications.  And why limit it to age of 12?  Autism doesn't magically go away at a certain age.  If anything the behaviours get worse once these kids reach the teenage years.
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