Chelation Treatment | Autism PDD
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Chelation Treatment

Hello Heidi,

Pleas explain the treatment you are using.The one with the epsom salts and vitamin c. I would like to try it on my son

 

 

Thanks

 

 

hunter39247.0554861111

Sure thing.  I have 6 kids, two aspergers, 1 with delayed speech and tourrettes, 1 with delayed speech, and 1 with OCD and incoherant speech.  My kids are nearly all symptom-free now.  I just cry all the time when I see other affected kids because I know they could get better as well.  I have done much research.

Well, studies show that Vitamin C can reduce mercury levels and of course has a million other benefits.  Chewable, buffered or Vitamin C with bioflavoniods are recommended.  I guess we have gotten the best results from chewable and buffered powdered.  I remember that Vitamin C affects vitamin E absorption, so research that because I think you have to make sure they get Vitamin E here and there as well.  I give everyone at least five times the RDA, but they say it is good to give 20 times the RDA and that it is best to give it more than once a day since Vitamin C only stays in your body less than an hour but is needed throughout the day.  I have also read that large doses of Vitamin C is what some doctors give to combat vaccine reactions, given the same day or the day after. 

Epsom salts:  Well, I read in some forums that Autism moms were finding success using epsom salt baths with their children.  Well, I have too many to fuss with that, so I bought the epsom salt cream.  You just put it on 1 to 3 times a day.  It comes in zinc or magnesium with sulphate.  The sulphate binds with the mercury to remove it, and then the magnesium is absorbed through the skin as well, to help the intestines work better.   I read that symptoms are increased at first but then decrease.  Well, that is what happened here.  It really helped with the mood swings for two of my children.  We all use it here now.  I just apply it once a day.  Now, it took a month to get noticeable improvement on one of my Aspergers who was on practically nothing else at the time, and it took only a couple of days to see noticeable results for my other Aspergers who was on many supplements. 

Now, these two therapies really need to be done for a long time because they slowly work and need to be continually given, maybe after two years one can stop them and see if symptoms return.  My kids have been on treatments from 3 months to 9 months now.  (Some I just started 3 months ago.)

Also keep in mind, that these alone, will not be enough to get most children symptom-free.  I also do nutritional supplements, fish oil, etc. 

Fish oil will also take out toxins but only if it is high quality.

Ask me anything, anytime. 

 

 

that is funny--it's working fine here. Well, I did herbal chelation on two of my children with good results but I really recommend antiviral and diet treatment foremost.  I think slow chelation, like with epsom salt and Vitamin C are much less worrisome.  I am definitely not against stronger chelation, because it does help, but I doing the slower chelation methods now and it is working.I recently found a web site which evaluated the different autism therapies  The only thing not on the "quack" watch was ABA.  This particular site was skeptical of everything else.  I was especially surprised that they questioned whether or not sensory dysfunction was real.  I agree with AndrewsMommy.  Keep and open mind and do your homework.   

Well, AndrewsMommy is too vague for me to help with an opinion.  I do not have the time or resources to become a medical doctor, and I have to rely on doctors who have a financial interest in selling the DAN/chelation stuff because they seem to be the only ones speaking and publishing on it.  The fox guarding the chicken coup.  I'm still very early in this analysis but so far its not possible to get straight answers. 

[edited to remove ambiguity]

Horseless39218.6127662037This is exactly this kind of information I am looking for.  Thank you very much for the link and your comments.  I think in about 20 years the medical profession will have come to a definite conclusion about all of this and exactly what causes what.  But thats too late for us.  Again, thanks.   

Dear AndrewsMom:

What do you think of the stealth virus or SV 40 theory?  I noticed that antiviral supplementation works well for my children.  What if it knocked out the body's ability to detox and such.  I'm giving it my vote for now.

 

 

 

 

Dear AndrewsMom:

I thank you for your straight-forward information.  You are right about the fact that we are all learning methods to help our children from doctors who decided to do something different.   I am so grateful to them.  I cry when I watch my children live normally, where as before, they were so unhappy and frustrated.  Its a miracle, I just wish we could solve the causation dilemna today. 

For those of you unfamiliar with stealth virus info, here is a link...

http://www.909shot.com/Loe_Fisher/blfpolio197.htm

My opinion is that viruses and or parasites may be part of the list of potential causes or environmental triggers of autism.  I do not think that the potential polio immunization contamination issue is related to the rise in autism cases, at least not at this point in time.  This is another reason why I have lost faith in the FDA.  I used to blindly trust the CDC and the FDA...this is a part of my PROFESSION.  But with age and experience comes wisdom (hopefully, anyway), and I would like to investigate personally...Perhaps one day when Andrew is older and doing even better and better!

The DAN! docs who started the biomedical treatment protocol did so for the right reasons.  They questioned the medical authorities of the time and collaborated to determine if there was anything that they were all seeing that could be a part of the cause of autism.  They did not blindly believe, and they started doing their own research...No one questions the motives of the parents described in the movie, "Lorenzo's Oil", right?

Finally, my being a doc helps me to understand what I read.  I graduated med school in 1989 and residency in 1993.  Nothing prepared me for the experience of having an autistic child...NOTHING!  I knew as little as other parents do.  My profession gives me a leg up on the speed with which I can read, learn, understand, dissect, criticize, etc. etc, info, but I am still a Mommy!  I have the same feelings and questions and sense of urgency as everyone else.  Going to medical school wouldn't help you as a parent if you DID have the time because the answers are unknown.  This is why I say DO YOUR HOMEWORK...TALK TO PEOPLE...ASK QUESTIONS...READ...SURF THE NET...This is what I do, and I'm a doc!

Good luck to all (sorry about the soap box towards the end!)!

Dear Horseless,

I start out vague because I don't always know what people are looking for.  I am here as a parent, and I do not "practice Medicine" on these boards.  I have been criticized for too much info or for info that has been misinterpreted, but I always do my best to help.

With conventional medical hat on, and from my residency training, I'd have to say, "Avoid Chelation", but that's the "party line"...It doesn't mean that it's RIGHT.  With maternal hat on and because I have always been interested in alternative/complementary medicine, I would say to read as much as you can.  Heidi N's posts are good.  If you want a true overview to the biomedical theories and approaches to the treatment of autism, read "Children With Starving Brains", by Jaclyn McCandless.  She is a physician and the grandmother of Chelsea who has autism.  The third edition recently came out, and there are annotated footnotes.  Excellent book to get you started!

Dear Horseless:  That is why you are here, to learn.  I know this stuff is unbelieveable.  I have cried for months about the stuff I have been learning and don't want to believe. 

Your question concerning if there is a FDA warning on DAN doctors.  Well, I don't think there could be because DAN doctors are all medical doctors.  If the FDA feels a medical doctor is a quack, they just pull that doctor's license.  Thus, I don't see why they would put out a warning.  And there are lots of studies showing chelation helps, but it is not the absolute answer for most.  Let me find some for you.  I came across them months ago when I was researching it all.  I didn't save any though.  Here is a website that just took a second to find.  It has numerous medical studies published.  The first paragraph of each study is called and Abstract and it is free.  For the whole study, you would have to pay, but you only need the Abstract.  The Abstract is a summary of the reason for the study and the findings.  When going to this website, you will find a study showing a correlation and if you look to the left of that page, you will see other studies, of which you can click on and read the abstracts.  I looked over a few briefly, and most said, there is a definite correlation, and in my past studying, that is also what I found.  I know for myself, that my kids are all affected, and I got immunization shots while pregnant, had 13 silver fillings and had dental work done while pregnant.  All of these are no no's.  Well, now I know, but if I would of known earlier, I believe things would have been different. 

Please keep an open mind, because our children depend on us.  I want to help as many as possible, so please keep learning and keep asking questions.

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?itool=abstract plus&db=pubmed&cmd=Retrieve&dopt=abstractplus&am p;list_uids=14976450

Heidi N

I am interested in this Vitamin C theory of chelation
I have heard about it

but I wondered if you can point me to some studies
or more information

If it is appropriate
maybe start a new thread

regards
forker

Okay...

Chelation IS a medically PROVEN treatment for very specific things like severe LEAD POISONING, for instance...It is therefore not an excessive stretch to consider the possibility that heavy metal poisoning with mercury or other metals could be treated the same way.

Yes, I understand that there are supposedly no studies proving a link between mercury, either in a vaccine or in another type of exposure, or other heavy metals causing or even contributing to autism.  However, I do not totally believe this.  I am a loyal, idealistic, board certified, American Family Physician, but I have seen many things with my own eyeballs that have discouraged me and caused me to doubt some of what comes out of the mouths of spokespeople for the FDA, CDC, and NIH.

Do not jump to conclusions.  Do not judge others.  Keep an open mind.  Do your homework...

There was a time when osteopathic physicians, or DOs, were considered "quacks".  Now osteopathic manipulative medicine and chiropractic treatments are standard procedures that help millions each day.

I am just curios what kind of behaviors your son had that kept him out of school. My son was in a class where they expected nothing out of him, and that is what he did. Now, he is doing well at a private school. I also think age  has more to do with it than medical treatments. How do you know your son just isn't maturing?

If anyone could provide the website for any warning from the FDA about chelation specific to ASD/ADHD,  I'd appreciate it.  I looked for quite a while and unfortunately their website seems to keep every scrap of any junk anyone ever submitted so I got nowhere doing keyword searches.  While we did do the testing (surprise surprise they found all sorts of metals and things, but gee my pediatrician asks why did they have to send the specimens to a place in France?), I am very highly suspicious of all of this.  Theres a few thousand people (even with Dr. in front of their names) who will not hesitate to take advantage of desperate caring parents if it can mean a dollar for them.  So, does anyone have a link to any FDA or other government source for warnings about DAN/chelation?     

Whenever I stop his supplements or any of my other children's supplements, their symptoms return. 

There are very few symptoms he didn't have.  He was so out of it, that without psych meds, he would have had to been institutionalized.  With the psych meds, he was able to do special needs schooling, but he had to have many modifications and it was still a struggle.    His symptoms are really too long a list, but I will touch on some.  Staring off into space, impulsively assaulting, communication was not productive, it took him sometimes an hour just to begin to take a test (he would gaze, drop things, ask questions, argue, write and erase or pick at a speck of dust for hours), make repetitive noises, bump into people, insist on sameness, transition was a nightmare, deny everything you point out to him, tell you he knows everything about everything and that you know nothing, throw things, hit himself, say and do things he denies remembering, fall out of his chair, not look at anyone in the face, refuse to go anywhere by himself (bathroom, another classroom), always wearing a jacket even on very hot days, not bathe, etc.  It took us an hour and a half just to get him up in the morning, out of bed.  We had to wake him up every 10 minutes with lights, pleading, noises, yanking him, etc. 

Today, he gets himself up and even showers most days.  But, he still likes to wear the jacket.  

Some really excellent info has been provided.

Someone had asked earlier about the tests that measure heavy metals.  I just to provide an example as to why a test would not be accurate, particularly the blood and/or hair test.  Many parents and mainstream doctors expect to see that in order for a child to have heavy metal poisoning, that the labs results would yield elevated numbers.  This may not be the case in many ASD children because many of they have the problem of not being able to properly eliminate the toxins from their bodies.  Basically, the heavy metals and toxins just build up, there by increasing the burden.  Heavy metals are known to interefere with so many different aspects of how the body functions.  DAN doctors or clinicians don't just look at the hardcore heavy metal results, they look at other labs such as stools and blood that may indicate there may be a problem with how the body is operating on a cellular level.

For instance, both of my children tested low for heavy metals on their blood results (which only shows recent exposure, not body burden).  Yet, the other results showed that they were deficient in glutathione which helps the body eliminate toxins, particularly heavy metals.  We did a chealtion challenge and they excreted a lot of metals.  We aren't blindingly  just picking any ole' chelating agent to pull the metals, we (like others) will do a challenge to see if the chelating agent is pulling a good quanitity of metals before we decide to continue the treatment.  If it doesn't work, then we try another.

There is another test that measures the total body burden of metals using porphyrins...specifically measuring coporphyrins.  It was originally created by a lab in France, but there are some labs that are starting to do the test in the US...however, I am unsure how accurate they are compared to the French Lab.

There was one that was mentioned at the DAN conference that was performing an equal in quality test to the French lab called Metimetrix out of Norcross, GA.

www.autism.com is where you can get more info about DAN, heavy metals, etc.

Great post, Little Byrd!

I ordered the urinary porphyrins test from the French lab and received the kit.  My next challenge is to "catch" an early morning urine!

AndrewsMommy39224.2357060185

[QUOTE=livsparents]It's heartbreaking the death of that child in Pittsburg, but it was a mistake that caused his death.  The risks are there, but the danger is somewhat overblown...[/QUOTE]

 

You are absolutely right that it was a mistake caused by a doctor that did not use the correct chelating agent on the child.  He use the EDTA without Calcium versus the EDTA with Calcium that is generally used on children.  I also think that the child also had other health issues.  It was a very sad sad incident.

It's heartbreaking the death of that child in Pittsburg, but it was a mistake that caused his death.  The risks are there, but the danger is somewhat overblown...

Recently, some doctors and parents have recommended chelation therapy as a potential treatment for autism. However,there¡¯s no scientific evidence currently.
Proponents believe that autism is caused by mercury exposure, such as from childhood vaccines. Chelation therapy supposedly removes mercury from the body, which cures autism.But extensive studies have revealed no evidence of a link between mercury exposure and autism. In addition, chelation therapy is not approved as an autism treatment and can be associated with serious side effects, including liver and kidney damage that can result in death.

Just wait...there will be proof now that the government has funding to do clinical trials.  I have seen great success in my ASD kids with chelation and we are pulling a lot of metals out, not just mercury - lead, antimony, arscenic, etc.  This crap should not be in their bodies at the levels they are for if my kids did not have ASD, they are sure to develop some other health problem in the future.

This is why parents need to do their research and find reputable doctors who practice the DAN methodology...not some crackerpot.

I wanted to add that their is justification in chelation therapy in my kids because of the lab results showing elevated lead and mercury in their bodies, as well as the chelation challenges where significant amounts of metals are being pulled out.  Our insurance pays for it, as well.  We are using a product that is FDA approved for removing lead from children with lead poisoning.  Lead happens to be one of the top metals that we are removing. 

Our DAN doc won't chelate a child if there is no basis...that is crazy.  Which is why you must research.

 

[QUOTE=Zona Dad]AndrewsMommy:

Cardinal rule of medicine: First do no harm. If you are a family physician
board certified by the American Board of Familiy Practice and practice by
the standards put forth by the AMA and this board, I do not believe you
can justify chelation therapy in our children.

I am a Diplomat of the American Board of Internal Medicine (ie board
certified). I have seen first hand the dangers of chelation therapy in my
ICU. The case of the one child is not an isolated one. I do not
recommend chelation therapy and will not recommend it unless it
somehow obtains FDA approval. I doubt it will since it is not a new
procedure and has had plenty of time to have been proven effective.

Parents:

Please understand that most 'non-traditional' therapies try to 'cure'
afflictions that are not remedied by traditional medical practice. These
'cures' are not proven, but mostlly anecdotal. It is not to say that none of
the products with such claims never make it to main stream medical
practice. There have been some including, Saw Palmetto for prostate
disease, that have been proven to be effective. However, that is one in
thousands of thousands. I generally do not post in these sites, but feel
that I must do my duty as a concerned parent and health care provider in
posting my comments.

I am not against naturopathic medicine. I as a parent of an autistic child
have gone through the same turmoil and mental torture all of you have. I
want to find a 'cure' for my child. The best 'cure' is through physical/
occupational/speech therapy at this time.

Our children with autism spectrum disorders vary in their functional
ability on a daily basis. Behaviors often attributed to autism are often the
same behaviors seen in 'neurotypical' children. We tend to be much more
critical of them in our ASD kids. These 'therapies' are often lauded as a
benefit when we see our ASD kids behave better, then blame something
else when they take a downturn even though they are on the same
medication that was supposed to have prevented such downturns.

At best, these remedies will provide a placebo effect for our children. I
admit I will definitely take a placebo effect result over none. But, not if
there is ANY risk to my child. Unfortunately, there is some risk involved
with chelation.

By the way, DAN doctors are not a certified by any legitimate autism
organization. They only have to attend a confernce or seminar for a day
or so to be on the list. Do you really want to make them our autism
expert for your child? Please look for physicians that have a board
certification in pediatric psychology or pediatric neurology. If you can't
find one in your immediate area, stop wasting money on all these other
treatments and take a 'vacation' with your child to go visit the nearest
one.

Please note, I am not 'bashing' anyone, only trying to protect our children
from harm. Don't gamble your childs health for a cure, but rather enjoy
their gifts and cherish their way of life. I do.[/QUOTE]

I worked for many years as a chemist and I am quite familiar with EDTA.  I would not use this without the approval and supervision of a physicican.  It has the potential to poison the system, and strip out helpful as well as harmful minerals. 

Taken orally I do not think you could absorb an adequate amount of this material to effectively chelate minerals stored in the body.  It is used in intravenous treatments, but these are performed (hopefully) under a physicians supervision.  A physician should only prescribe this treatment after both they and the patient understand the risks, symptoms of poisoning to watch for, and the expected benefits outweigh the risks.

I understand the desperation of a parent with an Autistic Impaired child.  My 12 year old son Joseph is AI, and just came home from his second stay at a Psychiatric hospital today.  I have spent much money on alternative cures, and have seen little benefit from them. 

My advice is to work with a trusted healthcare provider and love your child with all your heart.  As a parent your hearts desire is to fix your child.  Somethings are just beyond are ability to fix. 

 

 

 

[QUOTE=AndrewsMommy]

Thanks for the info, Little Byrd!

Hey, is that a picture of a sandpiper or a sanderling or a piping plover, or is it another kind of bird?  Do you know???

[/QUOTE]

Honestly, I haven't a clue.  I picked it because it was a bird:)

Thanks Heidi

forker

Dear Forker:

Well, the Vitamin C thing is vast.  There is a ton of stuff on it and you really have to read a ton of studies to get a grasp on how it works because the studies are contradicting.  Basically, Vitamin C is part of therapies that work, but used alone, it will not give you the miracles we are looking for in our children.  I remember that the studies that say it works, also used it in combination with various other rememdies, such as zinc and amino acids. 

I am finding success using Vitamin C, epsom-salt cream, fish oil, probiotics, vitamins, minerals, digestive enzymes, special diet, and ginger root.  If I had to, I would also use green tea, amino acids and milk thistle.  I have used them with great success, but wonder about long-term use.  All of the aforementioned items will assist in detox in general, including heavy metals.  It takes longer, but I would imagine its much safer, but only if done correctly. 

It is important to realize that a combination of therapies is what is working.  I am not against medical chelation, I just haven't had to do it yet.  Although, a product I used was very similar.  I find it scarey, as well as all this other stuff.  But, I just study a lot and use small amounts.  As much as it is all scarey, not having my children communicate is more scarey.  I studied, and I took the plunge on trying treatments and I don't regret anything at this time.  I would recommend starting at the www.AutismResearchInstitute.com website.  It is vast, but you can find all kinds of studies and on-going treatment recommendations.  I mostly used their stuff, but I only used 1/20th of the stuff they recommend at 1/4 the doses and got success.  Therefore don't just plunge into it.

A lot of their stuff is considered safe by most anyone, like Vitamin C, and epsom-salt cream.  You can also find a list of doctors that know this stuff on that website.  Near me, there is a clinic that does this protocol that actually helps you pay for stuff if you make less than $80,000.00 a year.  My insurance pays for the lab work except for the deductions of course.

In their search menu, you can type in Vitamin C, chelation, etc.  Look for their current treatment consensus paper, it is written by a bunch of doctors.  Most of these doctors have children with autism, so that is what makes them different. 

I don't mean to sound so doubting, but I did diets and vitamins with my son. At first, I think I tricked myself into thinking they worked, because they were so costly and time consuming. I thought he was much more calm, but in reality he was malnurished. He just watched TV all day. Plus, these kids are so young, and I don't want to ruin their bodies. Do you have a doctor helping you? What kind of testing do you do?Question - Did you have your children tested to find out the level of metals in their system prior to this trying this treatment?  (Is there such a test?)  Also, are there side affects associated with ingesting this much Vitamin C?  I'm not knowledgable on this subject and just curious.Sarah had high lead and we did a cream to detox her..had her doc take her blood sample a few months later and it was normal.  The cream stunk like a skunk!  Too scared to do the IV chelation..or secretin too 

Well, I did everything without a doctor.  I went to doctors and specialists in my town and they all just said, "there is nothing anyone can do but counseling and psych meds."  Well, I already had done that with my 14 year-old since he was 2 and none of their treatments ever got him into regular school.  Thus, I just did what DAN doctors say to do and what other people on forums said that worked and some of my own research on the web, and prayer. 

I started taking my now 15 year-old to a DAN doctor in Austin about a few months ago to see if they maybe could treat him so that he would not be dependent on supplements.  So far, the extensive testing has helped, but he currently has no fewer symptoms since doing what this doctor says, who is actually becoming quite well-known.  I do think it will pay off in the long run though.  I just started the B12 shots about 6 weeks ago.  I think they are helping as well.  The Doc recommended certain vitamins and fish oil and such.  I am learning a lot about Kyle.  I couldn't believe some of the testing.  Like he had no Bifidibacteria in his stomache, yet I had him on probiotics with that strain for several months.  And he had low minerals, all of them, especially calcium.  Yet his fingernail tips are white and his bones are strong.  I guess his body had difficulty getting it into his other cells and keeping the levels up in his blood.  And he had drank milk several times a day.  I have since taken him off of milk products.  He also tested allergic to the foods Autistics normally are allergice to:  milk, yeast, wheat, rye, barley.  He had other allergies as well, but those were the highest.  You need to do allergy tests to show to school officials and other professionals so they will believe you when you tell them not to give your kid wheat and milk. 

My favorite part about DAN doctors is that they really know stuff.  All Kyles prior doctors and specialists just gave me the run-around and didn't help him at all.  Its nice to talk to a doctor who understands. 

As far as Vitamin C goes, Kyle's DAN doctor recommended he take 4,000 times the RDA in a buffered form.  I really think he is probably correct.  I bought it, but I usually forget to give it to him since it is a powder that has to be mixed in juice.  Aside from that, he does get about 8 times the RDA in his other supplements.  But if you were to give such a high dose, you have to also give Vitamin E.  You can research it on the web.

High doses are attributed to lowering mercury levels, but I would rather just give 8 times the RDA and not worry about if the high dose is affecting other things.  I have patience.  It will take longer, but my kids are already doing well enough for regular school now, so I can afford to wait. 

I only had Kyle tested for heavy metals after I chelated him.  They all came back normal.  How happy I was, but I was informed that they are not very reliable.  The DAN doctor now wants to do another type of test for mercury.  Its all complicated because the tests are somewhat unreliable and kids who test normal, improve when chelated.  So its all very complicated.  I haven't done the other test yet; I am scraping up the money.  I will do the test just out of curiousity, I am not planning on doing a chelation therapy at this time. 

OK, I think I answered the questions; let me know if you have more.  God Bless you.  Start with prayer and God will lead your way. 

 

Just wondering what "behaviors" chelation cures.

Well, I think very few people actually get cured with chelation.  All these treatments are just so new that there is still much to be learned.  According to the Autism Research Institute, most parents feel their children benefitted from chelation.  But, its really just a part of the recommended treatment therapy.  I used a strong herbal chelation treatment on two of my children for one month.  With no other treatments, they became completely symptom-free for 3 weeks.  My 15 year-old's symptoms returned all at once, right after he ate a food with MSG in it.  My 5 year-old's symptoms started creeping back as well at the 3-week mark.  I then immediately started them on vitamins, minerals, fish oil, antioxidants, and digestive enzymes.  They still have some symptoms, and they are reliant on their current therapy to keep symptoms from worsening.  But, they are now able to do regular school; whereas, they were not before. 

As far as which symptoms are affected, it can be any and all.  The two boys I just mentioned started therapy 9 months ago when I actually learned children could get well.  I have adopted a 5 year-old girl with Aspergers, Bipolar, ADHD, speech problems, conduct disorder and ODD and just started her on the nutiritional supplements, diet, etc., but not on any strong chelation.  I just wanted to see the difference.  She has been on treatment for 6 months.  I think she will also now be able to do regular school, whereas before, she could not.  I withdrew her from Pre-K due to unbelievable behaviors, much like that of a out-of-control two-year old.  The school and her counselor said they had never seen such behaviors in a 4 year-old before.  Well, she will be in kindergarten next year and we will see then, but I think she has had a significant reduction in symptoms.  Her prior foster parents came to visit her and couldn't believe the difference.  I told them I need them as witnesses because when I tell poeple, they don't believe me.  They don't believe that nutrition can do so much.  I don't blame them, I wouldn't believe it either, if I had not seen it myself. 

 

Chelation made the FDA's list of top ten most fraudulent practices.

In my opinion it should no be done period.  I'd never do it to Sharlet (of course I researched it profusely when Sharlet was dx).  There are plenty of fantastic non-invasive therapies out there to try if the current techniques you are using aren't working for your child.

Chelation is simply not supported by evidence based science in any way.
I do not agree with any invasive therapies that don't have scientific studies to strongly back them up.  Parent testimonials are useless when making a decision about something as serious as chelating. 

If chelation really does work, then the studies that are being done will find the evidence to support that.  IMHO parents should wait untill then.  Their are serious flaws in the current training systems for doctors delivering these types of treatments.
Once again this is just MY opinion, and I'm not trying to cause any arguments. If you do lots of research, you can look at studies that have been done, and read plenty of articles that state there is no real evidence to support chelation.
Oh, and I am talking about the intravenous chemical kind.

edited for grammer
Allegra39217.9784606481[QUOTE=AndrewsMommy]

Great post, Little Byrd!

I ordered the urinary porphyrins test from the French lab and received the kit.  My next challenge is to "catch" an early morning urine!

[/QUOTE]

Great Plains Lab just circulated a flyer recently indicating that they also now do the urinary porphyrins test.  I have not talk to my DAN about it, but I suspect that the test would be identical to the French Lab.  The best part is that it is only $99 (french lab is worund $115-120) and it can be covered by certain health insurance, specifically BCBS PPO.

You can do the same w/ Metimetrix, but they don't file the claim on your behalf.  (I had asked them this at the DAN conference).  Plus, it can be cheaper when you file the claim vs GPL or Metimetrix filing the claim.

little byrd39227.1994212963

Thanks for the info, Little Byrd!

Hey, is that a picture of a sandpiper or a sanderling or a piping plover, or is it another kind of bird?  Do you know???

Hello everyone!
This is my FIRST time on this board!!
I would like to thank You all for creating this side , my name is Monica I live in Poland .My 9 yo Nicole is autistic( but not for long)
I belive I can add some to this discusion.
First of all , I DO belive in Bio- medical treatment for my child .To cut the long story short  I have "covered " all aspects of educational /speech /Si ?Tomatis /ABA/ just to name few treatment related to my child  condition .
I educated myself , went on to DAN conferenses , met lots of doctors etc
To this day I tried number of treatment labelled as "off" or alternative , and I can state that this made HUGE difference to my child.

Also , I belive not ONLY mercury is killing all generation but PESTICIDES!
Not many of you realise , that vaccines are also a biological  weapons!!
Look into the story of Gulf War vets and see the similarities!!!

Same tryptophan metabolites , same gut , neurological , memory problems.
Ok, back to oral chelation.
I tried DMSA , EDTA, cilantro , NAC and now I'm about to start Zeolite.

I can state , that Cilantro is wonderfull , it does not stear up thing( remember doc do not want you use things that you DO NOT need prescriptions for!!!)

Liver-aid (Hu Gan Pian)to support  detox ( liver is MOST stressed and if not working smooth can make child more sick!!)


Next week we start Zeolite- I will keep you updated..


Cilantro +water( reversed osmosis!!!) does lots of good !!

I would like to meet this orthodoxed med doc - and his poor child.
My girl is almost cured ........so we can compare!

Dear Nikolaczek97:

Thanks for sharing.  I too, am starting chlorella and soon to start Cilantro.  I am trying it on myself first.  I always do that.  I am full of mercury and have all kinds of related symptoms.  Luckily, no mental symptoms.  Anyhow, I started Chlorella about a week ago, and I really like it so far, but one week is just not enough to go by.  But so far, it really is keeping me on my feet.  I never tried Zeolite.  I have read about it, but I guess it just sounds too weird for me to try at this time.  I have read both good and bad about it on other forums.  People use it for other illnesses too, like MS, CFS, Lupus.   Have you tried Chlorella with your Cilantro and why not stick with Cilantro if it is working?  The thing with Zeolite that scares me is:  How does the body get rid of it? 

Hello all!

I have been working with a few parents of ASD children.  The current look into oral chelation took me to look at liquid zeolites.  After I had seen a bit of the research, I found they are completely safe, unlike EDTA or DMPS.  The liquid zeolites have been proven to not take out any calcium, magnesium or any other beneficial minerals, having only an affinity for the detrimental heavy metals.  Since much of the ASD patients seem to have a connection with Thimerasol and mercury poisoning I figured that it would be worth looking into.  The preliminary results have been incredibly promising and it is even more effective (in my humble opinion) than the IV chelation because the child does not even have to know they are taking the chelating elements!   If anyone wants more information, please email me so that I can send you some more information!

Sincerely,

Sean

Dear Seanleegardener:

I have never used zeolite because I base my use of things off of others' experiences and have found little on zeolite pertaining to personal experiences.  Can you tell me if you used it and what was your experience?  I am always looking to learn about things. Thanks

Nikola, are you utilizing powdered zeolite or liquid zeolite?  There is quite a big difference in whether the substance get into the intercellular fluid as opposed to just going into the gut and clearing out debris.  Since having studied liquid zeolite for some time now, I am quite convinced that the efficacy of highly purified liquid zeolite is magnitudes more efficient than taking the powder for purposes of heavy metal, PCB, pesticides, insecticides, larvicides, fungicides, depleted uranium, dioxin and so forth, detoxification.

Also, the process that is utilized in the purification of the zeolite liquid is very important as well as if the zeolite molecules are small enough (micronized).  If the liquid is not clean and pure you risk contamination of other elements that are not beneficial (like other heavy metals) as well as a more ineffective zeolite compound.  This is because the pores of the zeolite structures are already filled up with other things, therefore making it less efficient in what you are taking.  The second thing, about micronizaiton, is very important because it allows the zeolite to cross the blood/brain barrier and to get into the blood, lymph and so forth to clean out the deepest parts of the body.  If it is not thoroughly micronized, then you will only have the zeolites go through the Gastrointestinal tract and clean the bowels.  While not necessarily a bad thing, it is not what we are looking for when doing serious oral chelation, we want something that is going to be passing deep into the tissues and cleaning them out.

If you are not already using liquid zeolite, please send me a private message so that I can direct you to my source.

I hope this helps everyone!

Sean

Dear AndrewsMom:

Check out this website I found.  I think I am going to start the chelation protocol that he says, first chlorella and then cilantro.   I ordered the fancy chlorella it says to order; it will be in on Wednesday.  I will try it on myself first.  Since I have multiple chemical sensitivity, I am a good candidate for testing out things before I give it to my children.  I don't even give them vitamins unless I take them myself.  And believe me it has paid off.  Anyhow, this Doc obviously has some smarts. 

http://www.collegepharmacy.com/AMTrx/Images/Extended%20Kling hardt%20Protocol.pdf

 

Oh, and by the way, did you'all here that there is a U.S. federal court case that started today concerning suing the CDC, stating the vaccines cause autism.  Can't wait to see how it goes.

AndrewsMommy,

The French test, measures poryphins or whatever - is that expressed as a ratio with creatine (due to fluctating concentrations of compounds in the urine, I guess these measurements are often expressed as ratios to other things that are always in the urine)?  I think I read somewhere that it was.  If so, have you tested for creatine levels to ensure that they are not low, or is there a reference range for creatine on the test itself?  I read somewhere else that low creatine is very common with our kids (my girls actually had slightly elevated creatine levels, which is why I looked into creatine in the first place, but I digress), and if a kid has low creatine, and the test uses a creatine poryphin (sp?) ratio to determine elevation of poryphin (sp?), couldn't what looks like an elevated poryphin level just be a lower than normal creatine level?  I'd be interested to see the output from the report.

Do you think that the report will clearly state when an elevated poryphin count could be skewed by an abnormally level of creatine?  I ask, because I note that many parents are doing these tests on their own.  I expect that a doctor would know about the ways these things are measured, but perhaps not a parent, so I would hope that the tests are designed such that they could be interpreted by parents.

Also, has it been proven that an elevated poryphin count neccessarily means mercury?  Could there not be a false positive, here?

fred39245.3310532407

Welcome, chemist!  I'm a family doc.  Chelation makes me a bit nervous too, but if my son tests positive for heavy metals, then I'll have to do something.

Out of curiosity, do you know of any physicians in the USA who are willing to work with parents who want to chelate their children for heavy metal poisoning?  I know that DAN! doctors do, some alternative clinics do, and the occasional pioneer doc does, but in the latter case, he/she is both highly praised and severely criticized by the different sides of the fence.

Fred,

AndrewsMommy can give you are more scientific answer, but I will respond from what I learned.  Yes, the creatine level does impact the readings, but the lab adjusts the level based on the childs creatinine.  Something to also note, based on Dr. Rossignol's paper on this in early January (Autism One Radio) is that the creatinine levels in females fluctuate throughout the day and he indicated that the best method to get a reading is to collect the urine for a 24hr period. 

The average level is around 1000 (give or take 200 to 300).  But keep in mind that the test is used as (1) method to help parents and the doctor to determine if they should chelate [the info is used in conjunction with other labs so the decision to chelate is not soley based on the french lab) and (2) method to monitor the amount of metals left in the body after doing rounds of chelation.  Docs also use urine toxic test as another test to be used in conjunction with the porphyrins test.

Anyway, Andrewmommy can explain it better...just wanted to provide you w/ some info to think about.

 

 

[QUOTE=fred]

AndrewsMommy,

The French test, measures poryphins or whatever - is that expressed as a ratio with creatine (due to fluctating concentrations of compounds in the urine, I guess these measurements are often expressed as ratios to other things that are always in the urine)?  I think I read somewhere that it was.  If so, have you tested for creatine levels to ensure that they are not low, or is there a reference range for creatine on the test itself?  I read somewhere else that low creatine is very common with our kids (my girls actually had slightly elevated creatine levels, which is why I looked into creatine in the first place, but I digress), and if a kid has low creatine, and the test uses a creatine poryphin (sp?) ratio to determine elevation of poryphin (sp?), couldn't what looks like an elevated poryphin level just be a lower than normal creatine level?  I'd be interested to see the output from the report.

Do you think that the report will clearly state when an elevated poryphin count could be skewed by an abnormally level of creatine?  I ask, because I note that many parents are doing these tests on their own.  I expect that a doctor would know about the ways these things are measured, but perhaps not a parent, so I would hope that the tests are designed such that they could be interpreted by parents.

Also, has it been proven that an elevated poryphin count neccessarily means mercury?  Could there not be a false positive, here?

[/QUOTE]

I am interested in the idea of zeolite as we decide on the next step for chelation of our son. However, my doctor feels that if it works, it is great but it only works for about 5% of ASD people who use it. Have you any comment on that?

We are using MT promotor at the moment and about to do the French Porphyrin test before deciding which step next. I am reluctant to use DMSA due to side effects on gut, am wondering about footsies? I am reluctant to shell out lots more money. it is costing a small fortune in supplements weekly as it is- particularly as I am outside the US so have to add postage to it all and insurance doesn't cover such things in our country so I want to try and do the 'right' chelation approach for Riley next.

Thanks for any opinions

 

Well, there is a bit of interest when it comes to differentiating chelation therapies and what they do to what kinds of heavy metals.  My experience has been that the majority of those who have some form of ASD brought about by mercury as the prime constituent (typically from laced thimerasol) have a much higher rate of positive reaction because the affinity liquid zeolite has for that specific metal is much higher than for the other ones.  Zeolite works hierarchically in that it will bind and attach with certain elements before it will go to others.  A prime example will be that it attaches to mercury before it attaches to lead and it will attach to depleted uranium (DU) before it attaches to arsenic.  It is still being fully understood.

One interesting piece of info I came across is that liquid zeolite does not have an affinity for physiologically cruicial minerals/metals like calcium, magnesium, boron, silicon/silica, and so forth.  It does not work like traditional chelation therapies like EDTA and DMPS in that it will take out both good and bad minerals.  It only works on the positively charged, heavy metals like lead, cadmium, arsenic, DU, mercury and so forth.  I have seen plenty of labs at this point to convince me that it is totally safe for basically anyone, not just adults or children, to be taking.  I am currently on it myself and have been for about 4 months now.  I have been working with a local teacher who heads the ASD division at the middle school.  She works with the parents (a semi-difficult but rewarding task) in educating them about the possibility of reversal, not just management, of ASD.  From what she has been telling me, the results are undeniable. 

As far as the small fortune you are spending, maybe we can talk on the phone.  I have been teaching nutrition for 8 years and I may be able to help you narrow it down to a more critical group of constituents.  Private message me if you are interested.  Also, the liquid zeolite chelation product I am taking is actually starting to be distributed in the UK.  I believe it will be a matter of a few months.  If you are interested I may be able to help you out prior to that.  Like I said, just PM me and lets see where that goes :)

Blessings be upon you and your family

Sean

I am the person about the abstract.  The answer was not to show how, nor teach, it was only to give her a glimpse of information from which she can use to further study on her own.  Most of the real studying is from methods that doctors and parents have said that worked.  Most people don't have the backgrounds to read research correctly, nor do most professionals.  Well, maybe the professionally trained could if they took the time.  The ones I went to school with and worked with, did not.  I was the only one to question them, and they would tell me, "Who cares, we don't have the time to think about it."  For the parents here, reading the abstract gives them the idea of the possibility that some of the how-to websites they read may have validity.  

I am so happy that you have a research background and come here for ideas on how to help our kids.  I will be happy to give you some ideas on areas to do research.  There are also many good websites on different methods that are working for our children.  I do have theories to your questions - not originated by me.  For one, I have read that the mercury is already in the mother from her vaccinations, and passed on to the fetus, which would explain the non-decrease in autism, if it is actually true.  For two, I read the famous Danish study that purportedly found an increase in Autism aftere thimerosal was removed.  Well, I also looked up the authors.  All of the authors I could find information on, which was most of them, had a position pertaining to making sure children receive their vaccines.  There are also many criticisms to that study I found quickly by googling.  But, aside from that, the DAN website said that parents report more success from chelation than any other treatment on their website.  I have not yet formally chelated my kids, but I do believe their is a need for it, either formally, or getting the body well enough to do it, itself.  Now, what I have found amongst the professionals, is hypotheses of: either the virsuses destroy ones ability to detox, or the heavy metals destroy ones abililty to fight the viruses.  But most thereapies that are working, have to do with detoxing, and getting the body healthy enough to fight the viruses.  The viruses are either the known injected ones (the ones we are suppose to kill and develop immunity against, but don't) or the unknown ones, (stealth viruses from contaminated monkey tissues used in making the vaccines).  In addition, many say that the vaccines cause one to be allergic to self, due to the measles protein markers being similar to wheat protein markers, and myelination.  Basicallly, I am just giving you ideas here.  I obviously don't have the answers either.  I believe there is probably many factors that contribute (overly processed food, all those radio waves from electromagnetic fields, kids not playing much outside any more -- less sun, chemicals, pesticides, more vaccines, etc.)  For me and my family, I believe the main culprits were vaccines and thimerosal.  I unknowingly doused myself with tons of thimerosal from 13 almagams, contact lens solution, preparation H, vaccines (of course), and I can't remember what else at the moment.  But when I trace back my health and symptoms, I can trace it to those items.  I had other symptoms as well that pertain to mercury toxicity:  metal taste in mouth, swollen, bleeding gums, multiple chemical sensitivity, etc.  The most important is that I have been sick ever since I received a vaccination shot at the age of 15.  Well, that is what I have read and found.  Please help our children. 

Oh, and as far as the Vitamin C thing goes.  We take it here, and no one has had any new cavities yet.  As a matter of fact, it keeps our teeth from develping plaque.  We don't use flouride either, and still no cavities.  Well, we do have cavities, we just haven't had any new ones in the last year, since we started taking Vitamin C and started using non-fluoride toothpaste.  Maybe some have enough Vitamin C and some don't.  We don't here. 

Allegra, I am not trying to stir the pot here. But why would you de-worm that beautiful daughter of yours, yet you wouldn't chelate her if her tests showed she had elevated levels of toxins?

 As a labrador retriever breeder who raised two daughters, and worked for a veterinarian for 3 years, I can tell you that the vast majority of children do not have worms. If Sharlet had tape worm, you would see little grains of rice like worms in her stool repeatedly. This makes no sense at all to me that you would consider that but not metals.

 

 

GrammaSusie !!
I understand your point , but some  people do not belive in helping incurable.
They are great belivers of God and they missin( this may- not be a sytuation with
allegra) .

Ok,when  people are you ready to see some "seeds", this is a recepie :
buy whole spice cloves - blend it in coffe grander , take gelatin capsules and feel it up ( about 3-5) or you can just  chew whole( tastes bad!!!)

Watch your feses next day!!!
Cloves kill ONLY the eggs!!  That is so simple that everyone can do - and see .

To kill all stages ( eggs , larvas , worms )  you need more .
But this simple thing can change your view on worms .




Hello!

I will use LIQUID ZEOLITE (WAIORA)
I only use original distribiutiors .
I wanted  my child to be a part of study , but it takes too long- I will go on my own.
Also I liked what Heide stated about Vit.C mega doses , they always worked with my kid .
Now , In looking for the best sourse on non- acidic VitC in Europe
 Heidi- do You make Epsom salt cream yourself or  buy from ex Kirkman?


I buy from Kirkman because I don't want to worry about any chemical reaction the epsom salt might have if I were to make it myself.  It could possibley mix with atoms in whatever base I were to choose and become a different compound.  It might be a little expensive to purchase, but it lasts a long time.  I just give 6 members of my family one scoup a day, and it lasts 3 weeks.  Thus, if you were to only give it to two members and gave one scoup a day, I am sure it would last a long time, thus ending up not costing much. 

As far as Vitamin C goes, Thorne Research sells a bufferred Vitamin C that is suppose to be all that.  I bought the powder but I have been having difficulty using it because it has to be mixed in juice and it makes the juice taste funny.  I think becaue it makes the juice taste alkaline which is not quite what we are used to when we drink juice.  I am thinking about either buying a flavored powder or the pills.   I need to find out what other ways they sell it.  Anyhow, this buffered formula is suppose to make the stomach more alkaline (which will help fix microflora problems) and it also makes the stomach lining absorb the vitamin C just in case the individual has difficulty absorbing Vitamin C. 

Hello!

I have used it and have found quite an immense difference in the 5 months that I have been taking it.  My before picture is that of not being able to remember anything and constantly loosing my place in a conversation or on a page of a book.  Since taking it, my memory has become much more pronounced and has become more capable of recalling facts and figures.  I believe this to be because of the chelation of the mercury out of my body due to dental amalgam fillings I had a while ago.

I have shared the zeolites with quite a few people now and almost all of them have experienced major results from taking them over the course of 3 to 6 months.  I would be happy to send you a compiled list of testimonials that I have put together!

Please private message me with your email so I can send you some more information!

Sincerely,

Sean
[QUOTE=Heidi N]

Dear Seanleegardener:

I have never used zeolite because I base my use of things off of others' experiences and have found little on zeolite pertaining to personal experiences.  Can you tell me if you used it and what was your experience?  I am always looking to learn about things. Thanks

[/QUOTE]Hello! Heidi!!
Thank you for your letter ! Thanks Buddy, too for the links!!!
\
I use Cilantro drops into the revesed osmosis water with -out  chlorella .Some how iodine in it dis- agrees with my girl.
For the  past 7 years we had problems with re-mineralisation after chelation !!!
Chelation itself was good( apart from candida streare-ups_)but just adding cynk was making my child go BUZZUKIE!!!
She would stimm like mad!!( mostly shaking hand- like trying to shake off the slime, also she will wet herself during the day , masturbate( on softy toys and big ball)and
high pich voices .

Cilantro help with -out all this!!! I give her cilantro 5 drops in glass filtrated water 4 x a day plus extra water ,soups , juices etc .So she is drinking about 2 l a day.
To help detox liver I give Liver-aid--which stops glutamic -pyruvic transaminase
so toxins are not getting more toxic.
This is also helping her gut.
To re-mineralise I only use SKIN JELL  (Bisholin) it is used to absorb with the skin.
No- ORAL minerals( they are non-organic and are only 5-10 % absorbant anyway!!!)
Zeolite is like Bentonite- but clear-out from all they absorbed from atmosphere .
I can not comment on this - as I will start nextweek( I will buy it from UK)



I would strongly urge that anyone considering treating a liver issue, should get liver function tests first, and chelating should get proof of high levels of metals.

I believe that treating something that doesn't actually exist in a child is just as damaging as not treating something that does.

Not all kids wit autism have other medical problems, some are otherwise healthy.  I worry about these kids getting all sorts of treatments that they don't need.

edited for spelling
Allegra39260.3101967593Heidi! One more thing.
Zeolite pulls only BAD metals ( they are attracted to negative charged Zeolite ) but not all GOOD ( like CA, Fe ,Zn Mg , etc)
so you just  do not add minerals to your child .Because I always have troubles to measure how much GOOD is going with BAD ( sometimes I thought  that  TD-DMPS is pulling just the cynk I used 24 hours before) that this time I will try- Zeolite - not to worry about adding anything back.

Just to be on the safe side I will do base cynk/magnezium serum levels in  her blood before zeolite - to check if she is not under .
Lupus , MS ,GWS etc are all metal/pesticides related diseases .

Do the parasite cleanse as well!!!!

In Poland we have some clinics that do all BICOM2000 bioresonanse test on heavy metals , toxins , paracites .
It looks like , ALL autistic children have tapeworms ( from dogs!!!) to clear that we use Praziquantel ( or Metronidazolum, Vermox) and all kinds of clostridium .
Do the cleanse first.
I do not  do diet any more ( she was on this for 4 years - but we challenged gluten/casein /sugar )


Hello Allegra!!
Where in Austrtalia do You live ??
I lived in Sydney and had  my child going  to doctor Undrewood.

Hi nikola,

I live in Hobart,  I am interested in what you said about "ALL" autistic kids having Tape worms from dogs, Sharlet has never had any contact at all with dogs in her life, except seeing them in a park, but after her dx.  Can these come from cats?
Well, I am not judging you, you obviously want the best for your child and are doing what you think is right for your child as we all are.  I am happy for you that you are having positive results.

But I will not be risking anything to try and cure Sharlet because her health is not something I would risk in the hope of some improvement.  Many "treatments" can be damaging to a child and in some cases very dangerous.

I am proud of Sharlet, she is beautiful and autistic, and I wouldn't change her.
Thats just my opinion, I'm not trying to say that what you are doing is wrong for your child.
Yes Allegra!!!
Cats have the same tapeworms ( humans get this from: playing in the sand , eating dirt, from natural farms where organic fertiliseres are using animal feses , from dirty hands , inherited from parents , eating wild animals ( rubbits etc) fish( some forms of tapeworms are from fish- cat sourse )
look into curezone/parasites

Belive me - after giving Parex ( Monotech) from Health Food Shop to my children all eggs ( like cucumber seeds) come out!!!


Please buy Hulda Clark   book "Cure for all diseases" and read about autism .
This book was  wri
tten in 1994  , time when ONEONE knew autism- metal- parasite- pesticide relation .

I belive Gordon , Shatock ,McCandles - they all learned from Hulda .

To some this parasite - toxin - connection may sounds bit crazy- but in Poland we have a group of  many Mums - that write they stories and some  kids are cured NOW!

Bicom2000 is a machine - some naturophatics have it- is non-invasive and in just 1 hour you can tell what is going on.
Of course orthodox med docs do not belive-- until they themself get sick .
In Sydney my very best friend has pharmacy( Neutons Pharmacy) on York st , he is seeing ALL politicians , doctors etc buyis hydrocolons , Parex and all natural herbs!! They prescribe the DRUGS to they patiens , as they are obligated !
No DARE to treat autism cancer in natural way!!

But we do!!!
Sharlet has never been treated for worms!
I am going to buy something to treat worms tomorrow!!!
Thanks for bringing this up, I hadn't even thought about it which is terrible.
I'm not saying that I expect anything but her being free of worms if she does indeed have them, but it certainly  can't hurt. 
I belive You must be special !!
I NEVER accepted the fact that my child is different .My-be this is just me .

I I'm more of Behaviorist than Option type of person.
I always wanted my child to do everything  her older sister does ( swim , ride , sing play , dance) she was always challenged to do MORE.
I never limitted her to just minimum.
I belive that to ACCEPT child"s disability is equal  ANGEL type of human .I'm not!
sorry , I will fight with my fists for my girl!
So far no harm!
I embrace neurodiversity, and I have autistic adult friends who are very happy the way they are (not just high functioning) some of the adults call the therapies the endured as children "torments"

Many autistic people resent going through so many treatments.  I don't want this to happen, Sharlet is happy most of the time, and autistic people want to be accepted not cured in the majority of cases.  I think we simply sit on opposite sides of the fence.  Which is fine :)
Allegra39260.3623263889If I can be a help- just mail me .I'm very expierienced in worms!

When you start - make sure she is drinking 2 l a day of water!
Best to do garlic- edema next day.
Observe all "seeds" hair  likes , etc.

This all clearing can take 2 years!!!not just one pill!!!
When You read about parasites you will realise that themself CAN stop child development!@!!!B12 is a food for Ascaris!!they are RED from it!!!
99% stool test Do not show ANY worms!!
Once you see difference in you child - you will know that she had something!!

On curezone there is a side on parasites.
Ok , our children are the 3 generation NO demormed!!!
Ask any vet what would happened to puppy if he will vaccinate - if is not dewormed( will die or have ear infection , or sick , joins and some psychosis!!!!)


That makes sense.  thanks for that, I will get onto it and let you know how it goes. I accept this .
Is fine .Still , I belive that all autistics are curable , and the thing that makes them happy are -LOVE
One more  thing Allegra!
I dill with autism 8 years and I have done MANY!  liver , blood , hair , stool tests.
Great Smokie , IWL , etc had all the test ......
To 99% tests my girl was healthy- but that was only ..........superficial!
When I digged deeper  I  this was not true .
MB12 helped to understand a lot of  issues    in   KREB cycle .
This is like peeling onion- one layer off- next to go.

My child had ALL problems , but to understand them I had to learn so much .
In Australia I met family with 4 ( 3 kids were on spectrum) last one UNVACCINATED , from birth on diet ( mother had diet during pregnancy) and stiil child is autistic.

Home treated with pesticides ( for termites) had arsen in it - plus all OP .
Liver cholineesterase was block ( but not for long to show)

I understand you  are  sceptics , but this diseese is so HARD that we had to look into ALL aspects - and risk ALL .
So far so good .

Thank you Nikolazcek97 for all that information you shared.  I am going to look into what you are saying.  You know I never thought about it before, but my house was treated for termites.  And the worst thing is that my septic system was being worked on the other day and all kinds of cucumber-like seeds were visible in our feces.  They float to the top I guess.  I am still wondering what to do about it.  Some of us had worm tests that came back negative, but I heard they are very unreliable.  Thus, I guess I will look up a bunch of treatments and pick one.  I am very angry about all this because worms should be easy to diagnose and treat via orthodox doctors.  Anyhow, I ofter look at my and my children's feces and never noticed the seeds before.  I guess they are well-hidden.  I asked the septic worker, and he said that the seeds had to come from our toilets and that in no way could the seeds get there unless they were flushed from our toilets.  Thus, I am feeling grossed-out and need to get onto to doing something about it.  I need to ask if they can get some seeds out for me so I know exactly what type. 

Thanks,

Heidi

Nice report Heidi!!

The truth about human- warm relations is like  night- day  fire- water.
Worms are as old as humans ! But only since 1940's we have autism!

Long time before autism was called "American disease" because ONLY in America there was it!!( Elle Lilli is American company - to put timerosol into vaccines!)

Anyhow , worms do not do harm , unless there  is immunity deficiency!!

They become very agressive , take over , kill , spill they toxins , bore gut , lay eggs in brain , liver etc
Many test do not work- UNLESS you take deworms into you.
Chinese woodworm , garlic ,
In fact Juish people do it EVERY year in Easter time .
Still , there is autism in Israel - because they too have vaccines ) they stop some liver detox passways  and pesticides + they do just the same + so WORMS have a paradise!!!
One more thing .
Orthodox medicines are very toxic , they work ONLy on one to 10 species , but  human can have 120 'at the same time!!!
This is not my opinion+ please read Parasites menase or guess what come to your dinner) amazon.com

Heidi

Seeds are....................dog tapeworms ) they have rice-cucumber seeds like fragments
To read about tapeworms etc go to curezone.com
People from all over the world write about they fight with MS Bolerosa lime , etc.
They start with parasites , then kidney cleanse ,liver and on the end chelation .
It looks like + all those autoimmune diseases are connected to dirt , toxins our body can not detox .To have this or other problem is more related to
place we live + paint ,pesticide , Hways etc ,parasites you have , liver problem ,

Why Amish do not have autism__
no pesticides , no USG , no vaccines .............they de+worm regulary!!!

[QUOTE=seanleegardner]Nikola, are you utilizing powdered zeolite or liquid zeolite?  There is quite a big difference in whether the substance get into the intercellular fluid as opposed to just going into the gut and clearing out debris.  Since having studied liquid zeolite for some time now, I am quite convinced that the efficacy of highly purified liquid zeolite is magnitudes more efficient than taking the powder for purposes of heavy metal, PCB, pesticides, insecticides, larvicides, fungicides, depleted uranium, dioxin and so forth, detoxification.

Also, the process that is utilized in the purification of the zeolite liquid is very important as well as if the zeolite molecules are small enough (micronized).  If the liquid is not clean and pure you risk contamination of other elements that are not beneficial (like other heavy metals) as well as a more ineffective zeolite compound.  This is because the pores of the zeolite structures are already filled up with other things, therefore making it less efficient in what you are taking.  The second thing, about micronizaiton, is very important because it allows the zeolite to cross the blood/brain barrier and to get into the blood, lymph and so forth to clean out the deepest parts of the body.  If it is not thoroughly micronized, then you will only have the zeolites go through the Gastrointestinal tract and clean the bowels.  While not necessarily a bad thing, it is not what we are looking for when doing serious oral chelation, we want something that is going to be passing deep into the tissues and cleaning them out.

If you are not already using liquid zeolite, please send me a private message so that I can direct you to my source.

I hope this helps everyone!

Sean
[/QUOTE]

[QUOTE=seanleegardner]Nikola, are you utilizing powdered zeolite or liquid zeolite?  There is quite a big difference in whether the substance get into the intercellular fluid as opposed to just going into the gut and clearing out debris.  Since having studied liquid zeolite for some time now, I am quite convinced that the efficacy of highly purified liquid zeolite is magnitudes more efficient than taking the powder for purposes of heavy metal, PCB, pesticides, insecticides, larvicides, fungicides, depleted uranium, dioxin and so forth, detoxification.

Also, the process that is utilized in the purification of the zeolite liquid is very important as well as if the zeolite molecules are small enough (micronized).  If the liquid is not clean and pure you risk contamination of other elements that are not beneficial (like other heavy metals) as well as a more ineffective zeolite compound.  This is because the pores of the zeolite structures are already filled up with other things, therefore making it less efficient in what you are taking.  The second thing, about micronizaiton, is very important because it allows the zeolite to cross the blood/brain barrier and to get into the blood, lymph and so forth to clean out the deepest parts of the body.  If it is not thoroughly micronized, then you will only have the zeolites go through the Gastrointestinal tract and clean the bowels.  While not necessarily a bad thing, it is not what we are looking for when doing serious oral chelation, we want something that is going to be passing deep into the tissues and cleaning them out.

If you are not already using liquid zeolite, please send me a private message so that I can direct you to my source.

I hope this helps everyone!

Sean
[/QUOTE]

 

Thanks for the interesting informtion .Please send me your source.I need to try for my 5 year old son.Tito

Dear Dr.: Daniel's treatment is done thru his Dan Dr. I have not done the detox think cause toxins are everywhere. You can't avoid them all either. I know a lady who did chealation and her sone still is way behind at 14. He is now on anti inflammitory/anitvirus stuff and finally better. They even tried him takeing cow stem cells to replace his. Digestive enzymes first/probiotics. Then anything else. Both of these help the gut out. I also have learned a acid gut ia bad and leads to cancer. Drink apple cider vinegar our health food owner told me it makes the gut alkaline. I agree with all of you...I wouldn't believe everything you hear. It might be a good idea.

Dear fbamgbola:

Obviously you are correct that too much of certain vitamins can cause severe damage, even death, but so does too much water.  The reason autistic kids are given the higher amounts is because testing is showing they are very low and can not absorb the vitamins.  Also, they are getting better on the higher dosages of vitamins.  Theory also has it, that the toxins and pathogens are using up what little of the vitamins that are getting absorbed.  Thus, its tricky; one needs to study much.  Luckily, there are lots of places to get information on reversing autism today.  I can not believe what all I have learned.  I don't know what all you have tried or stumbled upon as of yet, but www.autismresearchinstitute.com and yahoo groups are good places to start.  Let me just add that my kids went from not even being able to do special needs schooling without psych meds to regular school with no modifications.  And there is so many more out there.  The methods that work are vast, as long as they address nutrition, pathogens and/or toxins.  

I hear of people who said they have tried this and that, and it didn't work.  But when I ask them to tell me the details so that I can give them some pointers,  very few reply.  The ones that do, always have left stones unturned, usually viruses.  But my point is, autistic and other ill children are getting better.

People do need to be warned that no matter what they do, they do need to study and ask forum members about it.  Of course, you can also ask a doctor.  There are doctors now that are successfully treating autistic children and even writing books about it.   Most people tell me that their pediatrician, and other docs, have not been any help.  But, I do hear occasionally that a gastronologist was very helpful.  Thus, seeing one of those kinds of docs or a DAN doc, or a doc that also studied in homeopathy or naturopathy is what is working.  Many people I have talked to said they didn't use a doc at all because their doc just shrugged his/her shoulders. 

One thing you mentioned that I have not yet studied is folic acid in the way you described.  You say giving too much with other B deficiencies is a problem.  Well, how much is too much?  Give me the details on this knowledge, and I will have learned one more thing.  From what I have been reading on the forums I attend (about 10 a day), is that usually the normal US RDA of folic acid is given with the methyl B12 to make sure it is absorbed.  That is the "going talk".  And also I have read that some autistics are seriously deficient in folic acid and pretty much all vitamins.  Anyhow, I have also read that occasionally some do better on folinic acid and other types of B 12.  Thus, if mine hadn't  responded to the folic and methyl B12, then I would have studied more on that.

Heidi  

Heidi

How did the chlorella go? We stopped giving it to my son as it was giving him a tummy ache.

We are looking at the zeolite more now as we got the porphyrin back from France and he appears to be high in Mercury, arsenic, lead, PCBs and maybe Aluminium. We have been using MT Promoter but I feel as if I want to speed things up a bit. We also use Lglutathione cream from Kirkmans and vit C (but not high enough dosage by the looks of yours Heidi) I don't want to use the ones that cause side effects on the gut so zeolite seems to be the way to go.

Interested to hear what others have ended up doing.

Rachel

Dear Rachel

I stopped the Chlorella.  It didn't help and made some symptoms worse.  My kids and I do well on the supplements, but of course we are all dependent upon them.  The goal now is to be "cured".  Anyhow, after much more research and visiting forums, my plan is to de-worm, de-virus, and then chelate.  I have heard both good and bad about the glutathione cream.  I have not tried it.  Currently the chelation protocol I am planning on is the "Andy Cutler" protocol, I guess one would say, since he wrote the book on "Almagam Illness, Diagnosis and Treatment".  Anyhow, I have been visiting a lot of forums, and it looks like my current philosophy is stabilize on supplements and diet, de-worm, de-virus, possibley treat bacteria (many have lyme disease, Difficile, shigella, etc.) and then chelate.  Chelation will allow the body to fight off the pathogens, but they get worse before the get better, thus treating them first is a very good idea from what I have been reading, although it may not completely rid them until chelation is well on its way.  Right now I am reading the famous cure books: Andy Cutler's book, Hulga Clark's book, Dr. Candless's book, and Amy Lansky's book.   They seem to be the ones everyone is talking about on these forums.   Anyhow, chelation needs to be done slow because well, it won't work unless it is.  We need to be patient.  From what I have been reading, chelation can take 2 to 3 years.  But, it has to be done correctly and they need to be on supplements, and they need to address viruses.  That's my tidbit for the day.  "Yahoo Groups Autism Mercury" is an excellent forum on Andy Cutler's chelation protocol and it mentions others as well.

Faith is everything,

Heidi

Dear Daniel's Mom:

I read that taking away wheat and dairy helps even if not testing allergic.  Plus some labs don't test well.  Anyhow that is very interesting about the two ASD, kids.  What I do know is that these children are getting well when they are treated for toxins and pathogens.  Thus, the cause has to be that.  Toxins and pathogens can be transmitted from the mother while pregnant.  Also, I have been reading that they are transmitted within families to each other.  I have also read that many ASD's are testing positive for lyme disease which you can now get from musquitos.  In addition, MSG is either the cause or at least makes ASD's worse.  And MSG is sprayed on nearly all produce unless it is organic.  It is also added to nearly all packadged and processed foods, including baby formula.  Not to mention all the toxins that are accumulating in the environment.  I go to lots of forums, and one lady bought a lead tester and said that her dishes tested positive for lead, amongst other surprising things in her house.  Plus, even some paints still have lead.  I read several times, that the paint companies were asked to voluntarily not use lead; it was never mandated.  China has been in the news putting toxins in our kid's toys and dog food, and who knows what all they got away with.  Whenever I hear about ASD kids getting into regular school or making great progress, it always has to do with nutrition, toxins and pathogens.  Now the methods of treatments vary.  Many work; you just have to use nutrition, and address pathogens and toxins.  My kids had severe aspergers, bipolar and ADHD, speech problems, one could not even pronounce any words anymore at age 4.  They used to not be able to go to special needs school without psych meds, and now they are going to regular school, no psych meds and no modifications.  I am just using nutrition.  But I want to be able to stop giving them supplements everyday; its a work-out.  I am now researching which method of ridding toxins and pathogens I want to use.  I bought books addressing zappers and biomed, homeopathy, and chelation.  I will read them all and come up with a plan.  This is so much work, but it is much more peaceful in my house now. 

 

 

I talked with a Mom of 2 asd kids. 1 had shots the other didn't. Daniel isn't celiac/diary allergic. Our dan tested for viruses/Epstein bar/gi processing/allergies/parisites. Daniel was free from this all except some allergies to corn/peas/gbeans/yeast/oats. Loads of outdoor allergies.Cats/dustmites also.

Tea tree oil is great for bath's/teeth/hair/skin/cleaning. Quit if a large rash appears. Allergic!

For those who buy into everything the FDA has to say about chelation and fraud, I offer this:

If the FDA were to allow studies that "prove" that chelation works as opposed to disproving it, that would mean they were admitting mercury's role in autism spectrum disorders, as the purpose of chelation is to remove this and other harmful metals.  This would make them at the very least partially responsible for the autism epidemic and would result in endless lawsuits against vaccine manufacturers, doctors, the FDA, and other organizations which amounts to a HUGE loss of money.  Also, thimerosal would most likely be removed from ALL vaccines (flu vaccine and a few others still contain it unless you request differently), which would again cost large amounts of money.  Thimerosal is a preservative used in multi-dose vials of vaccine; removing it would mean that many single dose vials would have to be used, which would cost the govt. a LOT of cash. Dental amalgams would surely follow along with other "mercury cleanup" efforts in our environment upon demand from parents of children irreparably harmed by this most potent neurotoxin.

Most, if not all of the published studies the viewing public reads are government funded.  The government has been known to interfere with data and pay scientists to provide the desired outcome.  Without funding, scientists could do no studies.  Many egos are involved in science; it's not as pure a field as they would have us believe. 

The FDA is far from perfect.  They have allowed medications and food products to be sold at the cost of many lives due to their faulty "pre-approval" process.  Saccharin, Vioxx, Thalidomide, Fen-Phen, and foods tainted with E. Coli and Salmonella are just a few examples, not of human mistakes, but of tragic negligence resulting from the rush to get these products on the market and a lack of long-term studies.

I'm not some strange conspiracy theorist, but do believe that we should not blindly swallow everything we are told, especially when the information is readily available.  The Freedom of Information Act has made it so, along with the advent of the internet.  Many people will go on supporting the FDA, DEA, military, politicians, presidents, and other "powers that be" no matter WHAT information they are given.  It often takes for someone to lose a loved one at the hands of one of these powerful organizations before they will approach reality with an open mind, which is the most disheartening part of it all. 

 

 

Natural is so expensive also. Try with fruit juices. All here will swallow as well. I want a 1 vitamin in all with this all. We had 1 until we learned it had metals in it.

Daniel is homeschooling this year.

I am a physician. i have been reluctant to try any nutritional or medical therapies on my kids. Partly, because they hate to ingest anything other than what they like. Thus it will be a big time trouble to try any of these intervention. Reading some of these postings had rekindled my interest in trying out some of these therapies. I must warn you that some vitamins could result in deleterious effects if they are taken in large doses; particularly VITAMIN A and E. Too much folic acid may also lead to neurological deterioration in those with Vit B deficiecies. Nevertheless, I am a believer. 

Hi,

My name is Jennifer, I have a 2 1/2 year old son with Autism Spectrum Disorder. He barely eats anything at all and practically lives on milk. I would love to hear more about chelation and the pros & cons. Mason gets DHA everyday and a multivitamin but I would love to be doing more to help him.

Thanks Heidi

Dear Jennifer:

I am still debating chelation myself.  As much as I think it works, I currrently think formal chelation should only be used after other treatments have failed.  I see you give him DHA, but really he needs the whole Cod Liver Oil benefits.  Since he is so young, you can really help him.  Start with digestive enzymes and cod liver oil.  Then let me know how it goes.  Make sure you give him the digestive enzymes twice a day, or even up to 4 times a day.  More might even be better, but I just do twice or thrice for convenience.

Heidi

Dear Jennifer:

I forgot to tell you, lose the milk.  No milk, no wheat.  It may seem impossible, but it really has to be done.  The fact that he craves it so much is you sign.  You see, most of the children get an opiate effect from milk and wheat.  Its like a drug to them.  They crave it like drug addicts crave drugs and have withdrawals like drug addicts have withdrawals.  I know it sounds crazy, but it really does help to toss out the milk and wheat.  They will get worse and better for about a month and then the cravings will be gone and things will be more smooth.  My whole family went off dairy and wheat.  I didn't think we could do it, but everyone is so much more healthier that we no longer miss it.  We just drink whole juices and only organic apple juice (unorganic apple juice has detrimental toxins), and we use rice milk in our cereal or eat oatmeal.  I mean we just started eating other foods, and all is worked out well.  We don't even have plans to ever return to milk and wheat. 

Heidi 

Heidi,

Thank you for the good advice. The only thing is with the milk & wheat~ He does not eat anything but crackers and pretzels and dry cereal. He has major eating and self feeding issues that even some proffesionals have said to me: "A kid like Mason may starve himself for days....etc." I can't even put soymilk on his cereal because he refuses to use a spoon and then it's "wet".  I did switch to soymilk for a while there but the fat content in it is so much lower than whole milk etc. He really needs all the fatty stuff he can. I offer him all sorts of nuts; pecans, peanuts, almond slivers, cashews....but he really just wants his milk! My mom, husband and myself are going to "throw the bottles in the trash" this weekend and get ready for the hellstorm that will follow. I will offer him milk in a cup but he will never take it. I will try the digestive enzymes and cod lilver oil. Is it acydophilis??

Dear Jennifer:

Acidophilus is a probiotic, which he also needs, but my experience is that acidophilus never works.  It is difficult to find a probiotic that works.  This is the best I have tried so far, in that I believe the probiotic strains will actually take so that you only have to give it for about 5 to 10 days.  I have tried many other brands, but none took - in other words, when you stopped the probiotic, it didn't keep growing in the stomach.  The only thing I don't like about this one is that it has l-glutamine in it.  I think its ok short-term, but would not give glutamine long-term unless one has celiac.  I did give it to every one in my family including my 3 1/2 year old twins.  Look at his stools and decide how long to continue to give it to him.  I gave it to my twins for about 10 days.  Their stools got better than worse.  I feel the worsening is from too much of a good thing.  Now I have stopped, but do feel the probiotic strains took - for a change.

http://www.rockwellnutrition.com/product.asp?itemid=1091

Anyhow, the fact that all he eats is wheat and milk is your big clue.  And he probably isn't even digesting them to get any nutrition from them.  The digestive enzymes will help decrease his cravings and increase his cravings for other foods.  Then somewhere along the line, take the dairy and wheat away.   Organic rice crispies and organic Toasted Os are usually ok'd by many of us doing diets.  See if he will eat those.  I stopped buying wheat and dairy, and everyone got used to it.  They also sell gluten-free waffles in the freezer section.  Try those with some genuine pancake syrup. 

Heid

Thank you Heidi, great ideas. I will get some of the probiotic acidophillis~thank you for the link. I wish Mason would eat gluten free products, maybe I just have to go to a specialty store for him and it probobly wouldn't hurt to do it myself! Mom2mason,

I totally agree with Heidi, it is an absolute necessity to get him off all grains and all dairy products.  The alergenic reactions that he is most likely having to these substances are keeping him wanting to supress the symptoms by just eating more of them. 

Doing oral liquid zeolite chelation, which is totally safe and non-toxic, along with a whole food vitamin C like acerola, amla, or camu camu is wonderful for its clathration/chlation properties.  The whole trip with herbal chelation is that it can be very tricky and it takes quite a bit of effort to get the child to take some of the major herbs like cilantro juice.  The liquid zeolite chelation you can just drop on his food, in his drinks and he will be none the wiser that it is there,doesnt taste like anything, doesnt smell like anything, doesnt look like anything.  The studies they are doing with it right now are amazing in that they are showing beyond any reasonable doubt that it is completely safe even for children and pregnant and lactating mothers to take.  I can send you more detailed info if you drop me a private message.

Blessings,

Sean


[QUOTE=Heidi N]

Dear Jennifer:

Acidophilus is a probiotic, which he also needs, but my experience is that acidophilus never works.  It is difficult to find a probiotic that works.  This is the best I have tried so far, in that I believe the probiotic strains will actually take so that you only have to give it for about 5 to 10 days.  I have tried many other brands, but none took - in other words, when you stopped the probiotic, it didn't keep growing in the stomach.  The only thing I don't like about this one is that it has l-glutamine in it.  I think its ok short-term, but would not give glutamine long-term unless one has celiac.  I did give it to every one in my family including my 3 1/2 year old twins.  Look at his stools and decide how long to continue to give it to him.  I gave it to my twins for about 10 days.  Their stools got better than worse.  I feel the worsening is from too much of a good thing.  Now I have stopped, but do feel the probiotic strains took - for a change.

http://www.rockwellnutrition.com/product.asp?itemid=1091

Anyhow, the fact that all he eats is wheat and milk is your big clue.  And he probably isn't even digesting them to get any nutrition from them.  The digestive enzymes will help decrease his cravings and increase his cravings for other foods.  Then somewhere along the line, take the dairy and wheat away.   Organic rice crispies and organic Toasted Os are usually ok'd by many of us doing diets.  See if he will eat those.  I stopped buying wheat and dairy, and everyone got used to it.  They also sell gluten-free waffles in the freezer section.  Try those with some genuine pancake syrup. 

Heid

[/QUOTE]That answers it for me, LittleByrd, thanks.  AndrewsMommy:

Cardinal rule of medicine: First do no harm. If you are a family physician
board certified by the American Board of Familiy Practice and practice by
the standards put forth by the AMA and this board, I do not believe you
can justify chelation therapy in our children.

I am a Diplomat of the American Board of Internal Medicine (ie board
certified). I have seen first hand the dangers of chelation therapy in my
ICU. The case of the one child is not an isolated one. I do not
recommend chelation therapy and will not recommend it unless it
somehow obtains FDA approval. I doubt it will since it is not a new
procedure and has had plenty of time to have been proven effective.

Parents:

Please understand that most 'non-traditional' therapies try to 'cure'
afflictions that are not remedied by traditional medical practice. These
'cures' are not proven, but mostlly anecdotal. It is not to say that none of
the products with such claims never make it to main stream medical
practice. There have been some including, Saw Palmetto for prostate
disease, that have been proven to be effective. However, that is one in
thousands of thousands. I generally do not post in these sites, but feel
that I must do my duty as a concerned parent and health care provider in
posting my comments.

I am not against naturopathic medicine. I as a parent of an autistic child
have gone through the same turmoil and mental torture all of you have. I
want to find a 'cure' for my child. The best 'cure' is through physical/
occupational/speech therapy at this time.

Our children with autism spectrum disorders vary in their functional
ability on a daily basis. Behaviors often attributed to autism are often the
same behaviors seen in 'neurotypical' children. We tend to be much more
critical of them in our ASD kids. These 'therapies' are often lauded as a
benefit when we see our ASD kids behave better, then blame something
else when they take a downturn even though they are on the same
medication that was supposed to have prevented such downturns.

At best, these remedies will provide a placebo effect for our children. I
admit I will definitely take a placebo effect result over none. But, not if
there is ANY risk to my child. Unfortunately, there is some risk involved
with chelation.

By the way, DAN doctors are not a certified by any legitimate autism
organization. They only have to attend a confernce or seminar for a day
or so to be on the list. Do you really want to make them our autism
expert for your child? Please look for physicians that have a board
certification in pediatric psychology or pediatric neurology. If you can't
find one in your immediate area, stop wasting money on all these other
treatments and take a 'vacation' with your child to go visit the nearest
one.

Please note, I am not 'bashing' anyone, only trying to protect our children
from harm. Don't gamble your childs health for a cure, but rather enjoy
their gifts and cherish their way of life. I do.

Well, praise the Lord for my placebo-now-symptom-free children.

Ok, I'm probably going to ask a bunch of stupid questions but the scientist in me (and researcher) is thinking of the problem and not the band aid.  If kids with autism require chelation therapy to remove high levels of heavy metals, where are these metals coming from?  Why aren't their bodies removing them the way that yours and mine do?  If vaccines no longer have thymerisol in them, why are there still high levels of heavy metals in their systems?  If thymerisol is the 'cause', why do countries that had it removed from vaccines over 10 yrs ago have the same incidence of autism of countries that have just removed it recently?

I have a couple questions about the Vitamin C as well.  I know that my dentist told my sister not to eat Vitamin C tablets because they destroyed the enamel in her teeth.  In her first 25 yrs of life:  0 cavities.  In two years of eating Vit C, over 30 cavities.  She brushed her teeth regularly (she's "normal/average", no sensory problems) so that probably was not the issue.  Is this a safe process now?

And regarding whoever said that just reading the Abstract of a scientific article was enough....YOU ARE MISTAKEN!  There is a LOT more to reading a medical related article than just the abstract.  You need to check the sample size (would you expect the same results if the sample size was 2 kids?), the methods (are they safe?  are they able to be replicated?), if there was reliability (if you do the same thing, what are the chances you'd have the same results?).  There is an article I found that tells the 'lay' person what to look for in a well developed study.  If I can find the link, I will edit it into my post.

I am not a parent of a child with ASD, I work with them on a daily basis.  I am not for or against any treatment a parent is going to try with their child as long as they don't put their child's health at risk.  I worry about chelation because of what I read about the CHEMISTRY behind it....the treatments don't match up with what chelation is actually supposed to do.  But again, I wonder why everyone is trying to put a band aid on what seems to be a constantly reoccurring problem.  I work with parents who have their children on strict diets, some that are not on any special diet at all....and its funny.....the kids that eat whatever they want, don't partake in any special treatment (outside of OT and speech) are making the most progress.....


Thanks Kelly for educating and sharing. 

Let me tell you the latest news I have been learning.  I finally figured out that the common denominator amongst our kids was low immune function, and that the pathogens and toxins varied somewhat amongst them.  The only reason I am learning all this is because pros in this area have learned this and posted it on the web for free.  Thus, all that you read here is stuff I have read on the net. Well, then I found out that many of these chidren are testing positive for Lyme disease, some say 90 to 100 %. 

Well, lyme destroys a part of the immune system, much like AIDS does.  This part is called CD-57.  With these low natural killer cells, these kids then just start stock-piling up pathogens and toxins.  The coinfections to lyme and mercury are the real symptom-causers.  Of course, many other pathogens and toxins store up as well.  The toxins, most commonly mercury, make the lyme proliferate.  Without the toxins, the lyme normally lays dorment.  You can get lyme from birth or a myriad of ways: sex, ticks, fleas, lice, mosquitos.  The lyme can be passed on for generations forever.  The weird thing is that lyme and it's coinfections and subsequent stock-piling the body does of other pathogens and toxins, causes all kinds of different symptoms. 

Whole families are testing positive for lyme, with each member getting different symptoms.  This is the news of the century right now.  Countries that don't even have ticks are getting lyme disease.  I just got my son and I tested for the CD-57 natural killer white blood cells, and we are both low, indicative of lyme.  Very few infections cause the CD-57 levels to go down, lyme being one of them.  We are testing this week for lyme and coinfections, but my son already presented with one coinfection rash, the Bartonella rash which he got when his DAN doc put him on Flagyl.  Thus there is no doubt it is the answer for my family, and my entire extended family, etc. 

Anyhow, testing is quite difficult because most of the tests are less than 50% accurate.  The going test for kids is the C6 peptide test.  There are forums for lyme disease and lyme associations that talk abou this.  The cure is also a puzzle.  Ridding pathogens, toxins and diet just like for autism, is what works.  And just like for autism, many different methods work as long as you address pathogens, toxins and diet.  Docs will treat lyme with antibiotics and how well it works varies, curing some in weeks, not helping others for years.  That is where diet and toxins come into play.  Now note that everything I just mentioned is stuff I read on the net, I am no scientist.  Here are some websites, if you need further help on finding information, let me know.

http://www.publichealthalert.org/March%2007%20PHA.pdf

http://www.lymeinducedautism.com/

http://health.groups.yahoo.com/group/lyme-autism/

http://www.anapsid.org/lyme/strickerpanel.html

http://findarticles.com/p/articles/mi_m0ISW/is_285/ai_n19170 369

Note that by googling key words you can find a bunch of other websites to explore.  Note also the C6 peptide test is recommended for these kids.  Not sure which labs do this, or if the talk is just one lab is reliable.  Ask on the autism-lyme forum.  I am doing expensive testing on Wednesday from Central Florida Research Lab and Fry Research Labs, but others say Igenex is also good.  Many of the lyme tests are not accurate, so make sure you do some research. 

 

 

 

Hi

We have had our son on biomed for about 4 years now. Starting with multi vits.-he gained weight after he stayed the same weight for 2 years. Then came probiotics-improved bowel movements, better control of yeast.

Heidi- We also started out slow on chelation. After getting heavy metals test back showing he had large amounts of metals in his little body. We started with NDF Plus. It has the chollera in it. Along with probiotics and milk thistle for live support. You have to start out at 1 drop or a dilluted drop. After 6 months of NDF, we retested and the lead and mercury levels were going down. He still had behaviour problems , but not like before. We realized he was battling yeast in his tummy and in his head. Today, he is on a probiotic cocktail. Sach B's, Caprylic acid and PD. We alternate Oil of Oregano and GSE for yeast as well. So many drops on wrists or bottoms of feet. The yeast was under control and after many months of heavy research we started Oral DMSA. I cannot describe the improvements. He gets bimonthly bloodwork to check for kidney and liver problems. I will also add that he is on LiverLife. It decongests the liver and kidneys so that they will drain acids right. How do i know he drains acids right? I have PH test strips that tell me so. I was very skeptical at first. I didnt believe anything. I have tried things that havent worked for my son, but i have to admit i have not wasted my money. If it doesnt work i dont do it. If it bothers him it is gone, no questions asked. ALso Heidi, we do the high Vit C w/ bioflavonoids. If given together, it yields even better results than on C alone.

I am glad that i choose biomed. It has changed my son and brought him out of a silent world. The days are gone where he would just look at you with a blank face. Now he talks and chatters about everything. We still have a long way to go and it will be a slow steady process.

My son is mainstreamed and in first grade with one aide and i am very proud of him. He is my world and i would never do anything to hurt him. I go on my gut and i am always right. If it doesnt feel right, i move on. My son is 7 years old and has many happy years to come. The doors have opened. One final note. My baby loves computers and can do anything with them. Look out Bill Gates(who also has autism) he's comin for ya.

 

kelly

Hey Heidi, thanks for the insight.  I have heard of this before and wondered about it, but none of us caring the symptoms. It says you get really sick and it affects all the organs. My son is as healthy as a boy in a bubble. If it affects the organs, he has had numerous tests and all his organ functions were great. I am though going to ask his DAN about this. I also thought that maybe scientists or whoever started the autism and lyme connection, are trying to get our attention off of the mercury autism connection.  I am always open to new findings and will research this further. If you have any other thoughts on this please let me know.

kelly

Is this like a blood test you take? So if you did have lyme , once you rid the body of mercury and other toxins, the people that are affected with lyme will have lesser symptoms or not have lyme at all? Sorry so many questions on this, i am just ignorant to the fact. I also saw where antibiotics help get rid of lyme? Antibiotics are not good for are kids as they bring out more yeasties. Time for more research. Thanks Heidi.

 

kelly

Not sure.  I would treat lyme along the way of detoxing because people I know who only detox and don't take anything to fight pathogens, have all kinds of worsening and lessoning of symptoms like a roller coaster.  It appears traumatic to go through.  But, I could gather from what I have come across that people who only concentrate on detoxing, get well in about 3 years.  But they still need detoxing yearly or something like that.  My theory is because they are now carriers of pathogens, and since the lyme has they CD-57 count still low, they will just re-stockpile.  The right antibiotics can do wonders.  The wrong ones -- ones that kill good bacteria and let the lyme grow, definitely appear to worsen the whole situation.  The theory is that yeast overgrows because the immune system is too worn out from fighting the lyme.  Thus, rid both pathogens and toxins.  Usually blood tests are used for diagnosing, but sometimes urine tests are used since lyme is found in urine, and probably every body fluid.  That may explain why whole families and their pets are getting lyme and/or coinfections.  Note that people can have lyme for years before having symptoms.  And while the years are going by, your CD-57 count is being lowered. 

No, all your tests will come back normal with lyme, only the CD-57 will come back low.  Yes the organs are affected, but for some reason the tests they have and use will not pick up the problems.  Well, they do pick up minor problems, but the response will be "don't worry about it".  The mercury is still at fault.  The mercury and other toxins make the lyme and coinfections grow.  You really have to have both toxins and pathogens in order to be ill. 

Heidi N

I must say, my two daughters both work with ASD kids and I have two close friends that have kids with ASD.  Of all the things I have heard of, diet always seems to be a constant common denominator.  Moderation and seeing what works for your childs specific needs is important.

Hi. I'm Jan. My son Ethan is now 4 1/2 and was diagnosed when he was 2yrs and 3 months. He's been having OT/Speech/ABA since then. He is now mainstreamed with a shadow. I've never tried supplements by mega doses. He is on mulitvitamins, grape seed extract and fish oils. I've been very skeptical about the GFCF diet but am now going to start it.

I have a new questions:

Where do i buy Zeolite? is it available in the US?

Can i give my son high doses of vitaminC, probiotics, cod liver oil, minerals all at the same time? Does he need vitamin E as well?

Where do you get the B12 shots? i live in asia now ( but originally from Calgary, Alberta, Canada) so i have no idea where to get them. Is it prescription?

Last, i know this is off topic but we are going for our first HBOT treatment/appointment tomorrow..... Does anyone have experiences with this?

thanks for all your help in advance.

jan

 

Dear Jan:

Yes to you can give all those supplements at the same time.  Most often B12 shots are by prescription, but who knows I have seen sites where they sell syringed vitamins.  But really, you can just use powder or liquid methyl B12 that dissolves in his mouth which works as well.   I will leave the other questions to others.  But know that if he does HBOT, they do say he will have to take or not take certain supplements.

Heidi

I also use a lot of supplements and we divide it up throughout the day and mix as many as possible  (and avoid conflicts of enyzmes)

Before breakfast, 2 enyzmes. Pfeiffer multivit in first 'cocoa and rice milk' plus some Ca/Mg powder. more powder in second cocoa and before being given that, he has antiviral and yeast aid mixed in low GI jam

Lunch, some enzymes mixed in melted chocolate (and frozen for up to 2 weeks), plus vit C pill, 2 enyzme pills. In jam- antiviral, drop vit A, acetly L carnitine plus depending on day, vit D, vit E, selenium

Tea- same with enzymes and antiviral, MTpromoterII , pfeiffer primer mixed in jam.

fish oil before bedtime cocoa and then rub cream in before he has story.

We are a well oiled machine now.. It was hard at first but he is used to it now and he gets the spoonful of jam before the nice tasting chewables.

We used to mix them into his tea but some were heat sensitive and the zinc in the primer is so disgusting he was nto eating his tea so we re thought things.

[QUOTE=Heidi N]I am finding success using Vitamin C, epsom-salt cream, fish oil, probiotics, vitamins, minerals, digestive enzymes, special diet, and ginger root...[/QUOTE]

If I may ask, how on earth do you get your children to take all that. I know you said that one is a cream, but what about the others.

Thanks again for taking the time to share your experiences with us all here. It is much more than helpful.

Dear LuvLafLern:

I give this to my whole family of eight.  Most can swallow.  The littlest ones get it in their sippy cups, and one gets chewables, liquid and/or cream because he won't swallow and is too old for sippy cups.

Heidi

There are some supplements you need to be careful on how you administer it because it reduces their absorption.  For example, zinc needs to be given alone because it competes with other minerals, such as calcium, for absorption.  Go to www.autism.com and www.tacanow.com for more info on supplements and minerals.

[QUOTE=siopsy]

Hi. I'm Jan. My son Ethan is now 4 1/2 and was diagnosed when he was 2yrs and 3 months. He's been having OT/Speech/ABA since then. He is now mainstreamed with a shadow. I've never tried supplements by mega doses. He is on mulitvitamins, grape seed extract and fish oils. I've been very skeptical about the GFCF diet but am now going to start it.

I have a new questions:

Where do i buy Zeolite? is it available in the US?

Can i give my son high doses of vitaminC, probiotics, cod liver oil, minerals all at the same time? Does he need vitamin E as well?

Where do you get the B12 shots? i live in asia now ( but originally from Calgary, Alberta, Canada) so i have no idea where to get them. Is it prescription?

Last, i know this is off topic but we are going for our first HBOT treatment/appointment tomorrow..... Does anyone have experiences with this?

thanks for all your help in advance.

jan

 

[/QUOTE]

Thank you for your replies. :) I will be checking out the websites.

I here mixed reviews on chealation. I hear there is no proof this works for sure. Daniel has the same issues as me. The only difference is he is good with math and destroys things which I never did that. How do we get the antiviral stuff?oil supplements if won't atke them rub them on bottom of feet. Works just the same as by mouth. Siopsy,

I have been on these boards for a little while telling people about the benefits of zeolites.  I am one of the main distributors for my company of zeolites and would be more than happy to connect you in with how to buy them.  Please private message me whenever you get the chance so that we can get you set up.  I look forward to speaking with you!

Sincerely,

Sean
I was wondering what dosage you others are using for the chelation therapy.We are trying the Waiora Zeolite 3 drops 3 times a day.It has been one week since he started it.We have noticed his speech improved within about 3 days.
Does anyone know if it is okay to try the epsom salts along with zeolite?

Kerri Hello!

it is quite frequent that people see a very marked improvement using zeolite within the first few weeks.  Seeing it within the first few days is incredible! 

If anyone else is interested in buying zeolites inexpensively, go to http://www.mywaiora.com/434803 and click Join.

I have made myself incredibly in the know about zeolites and if anyone has any questions pertaining to it, please let me know.

Sean

Hey, I want to share about this new product I found.  Its called modified citrus pectin (MCP) or Pectasol,   http://www.vnfnutrition.com/phpshop/index.php?page=shop/flyp age&product_id=30756&category_id=418baaa23348b49ec2c 1147e1f866ca6 

Anyhow, its suppose to remove mercury and other toxins, and has even been studied scientifically to do so.  Anyhow, I and my kids have been on it a few weeks now, and I have already seen some small improvements.  This stuff says there is no side effects.  I really have to recommend this and buffered Vitamin C as the things I have used that I feel have done the most to reduce toxins.  Although, all those other supplements I have mentioned in previous posts also help.  I really think this stuff is going to detox us.  Now I just have to keep working on the anti-pathogen plan.   I am excited about the MCP because the other chelation treatments I have been studying have been a bit scarey and a bit tedious to implement.  But, I recommend starting off with a very low dose and weekly working your way up.  I gave my 3 year-olds a quarter of a pill for a week, and now on a 1/2 a pill.  I started off with a pill every other day, and now I am on a pill every day.  The first day we took it, we all felt depressed, but it goes away quickly.  That's just typical with chelation.  We also had more yeast, which is also typical in chelation.  So make sure you're on a yeast inhibitor.  We use Ginger Root by Rexall.

Heidi N

Ginger is in his multi by Vitalert found at Walmart. I love this supplement it has stuff I never saw in other ones. Vitamins/minerals/Electrolytes/herbs/Antioxidants.We have not done that test.

Daniel's Mom:

I recently heard that C6 peptide tests are somewhat reliable in detecting lyme.  I say the most reliable way is to take a CD 57 test.   Lyme makes it low, but other infections don't.  My son and I just tested positive for Bartonella, a lyme coinfection.  I also tested positive for Babesia, a lyme coinfection, by Fry Labs in Arizona.  People like to use them because they send you a a copy of your blood.  My son had many spur and burr blood cells.  I have not studied why yet.  I always have to research everything myself in order to help the docs diagnose.  So far, they have never heard of the CD 57 test or Fry labs or pretty much anything about lyme other than a bullseye rash, which only 30% get.  Any input on the burr and spur cells?  It looks like every red blood cell is either burr or spur.  I am hoping that it will change after he is treated for the lyme and coinfections.

Heidi N

we can't do anything more right now we are 1 step from welfare.

Sorry Danielsmom, I got you confused with Andrewsmom, who happens to be a doc.

For cheap help, you can go to Walmart, get milk thistle, ginger root, turmeric and green tea extract herbal capsules.  These all protect from the toxins our kids are getting symptoms from, and they are all about $6.00 a piece.  Turmeric is the best choice if you only get one thing, but it will cause yeast overgrowth with some, thus ginger root will keep the yeast down.  Milk thistle and green tea should help a little with bad gut microflora in general and all help protect the nerves from toxins.  They even have a cheap cod liver oil there that is suppose to be pharmaceutical grade (filtered of toxins), thus you really can get some help there.

Heidi N

How about a whole body cleanse from a health food store? Use silver it's a natural anitbiotics. We need probiotics/ enzymes. Strange thing is Daniel has no gi processing problem.

Have you tested Daniel for Lyme using Igenex or Central Florida labs?  Its the most common cause from what I am seeing.  The toxins are making it grow.  There are so many ways to detox nowadays.  Its amazing.  Also, killing lyme is a trauma in itself.  Just testing for it is a trauma.  I guess one in your position could always just give minocycline and see if he responds.  There are lyme foundations that talk about the current recommended antibiotic protocols.  The foundations/associations/agencies that are government-funded or founded are not recommended by those making our children well, but there are plenty of private ones that are great.  They give out great info. and also info on alternative treatments since often the antibiotics are only working while the people are on them, and symptoms return when stopped.  Not always, but its another journey.  Take a short-cut, and test for lyme using Igenex or Central Florida Research labs.  The poryprhins test is also another short-cut I recommend for you.  

Heidi N

Please everyone, I urge you to research chelation first prior to coming to a negative conclusion. This is b/c some of the comments made may provide false information to unsuspecting people viewing the board.

Many of you are right that chelation is an "experimental" medical practive for autism. HOWEVER, it is a tried and true MAINSTREAM medical treatment for toxic metal poisoning, which includes iron, lead, and mercury! In fact, many industrial workers exposed to spills or high levels by accident use artifical chelation methods and that is where many wholistic doctors came up with the idea to help autistic children and other conditions with the method. Please visit:http://en.wikipedia.org/wiki/Chelation_therapy

Above you will find a brief explanation on the history of chelation and it's COMMON medical uses.

I shutter to think that some may believe this is not a true medical treatment, b/c it is. It has not yet been reserached thoroughly enough to invalidate or validate it's effectiveness for neurological disorders. With that said, it WILL help remove toxic metals from the body. Any person wanting to use a non-natural chelation method will want to consult a medical professional, as it requires observation and consistent care with a doctor forsafety.

What you must also be aware of is that MANY of the "natural" chelators are COMMON daily vitamins, minerals, and herbal supplements found in almost every food you eat. I've been reading that some parents are posting for others not to make drastic changes and do too many things at once. However, I think we frequently forget that many of these supplements are in our daily diets or SHOULD BE and are not, due to our fast pace lifestyle! Many forget our diets have changed for the worse over the last 10-20 years and it's no wonder almost all humans are effected by some type of GI problem in their life. The only difference is when a higher then RDA amount is called for and then you must consider possible side effects. Remember that Vitamin C is in almost EVERYTHING you eat...just look at the label! In fact, almost every juice you probably give your child has added vitamin C derived from typically corn (cheapest) and listed as citric or ascorbic acid. The area you must ebner with caution is non-traditional herbal remedies or homeopathic remedies. However, you shouldn't be afraid to add proper vitamins into your child's diet. It's best absorbed from natural foods, but if you have a child that refuses to eat, like mine, supplements are commonly required for one to survive and not become ill.

I know when I posted in the other area some noted I should take it slow, but after realizing that my dd gets almost NONE of the nutrients I am trying to add by supplement I decided that slow is NOT best for her. She barely intakes 300 calories a day and is about to be tube fed, due to her weight dropping and health declining. If your child's diet is not up tp par, then by all means dive in head first and add at minimum the RDA to the diet through supplements. When a brain is starved from these vital nutrients b/c of being fed OVER processed food filled with pestisides, it needs these supplements. Don't be afraid! 

SOrry this is so long, but given many kiddos on the spectrum have gut issues, they probably don't come close to absorbing the required daily nutrients needed. Just food for though, so parents new to supplements do not seem so terrified. Truly the most difficult part of supplements should be which one to use and that yoru child will actually consume, which is my case right now. Preferably from natural sources and not filled with sugar and artificial or manmade ingredients that you cannot pronounce or decipher their origin.

Wow. This is the 1st I've ever heard of Epsom Salt being used for that purpose. I'm so excited to try it with my son. The Fish oil is helping but we have noticed despite diet, vitamins, making sure he has NO Dyes (especially Red) every October and June he takes a turn for the worst. He also seems to have meltdowns right befor a snowstorm or thunderstorm. Does anyone else relate?  

[QUOTE=seanleegardner]Mom2mason,

I totally agree with Heidi, it is an absolute necessity to get him off all grains and all dairy products.  The alergenic reactions that he is most likely having to these substances are keeping him wanting to supress the symptoms by just eating more of them. 

Doing oral liquid zeolite chelation, which is totally safe and non-toxic, along with a whole food vitamin C like acerola, amla, or camu camu is wonderful for its clathration/chlation properties.  The whole trip with herbal chelation is that it can be very tricky and it takes quite a bit of effort to get the child to take some of the major herbs like cilantro juice.  The liquid zeolite chelation you can just drop on his food, in his drinks and he will be none the wiser that it is there,doesnt taste like anything, doesnt smell like anything, doesnt look like anything.  The studies they are doing with it right now are amazing in that they are showing beyond any reasonable doubt that it is completely safe even for children and pregnant and lactating mothers to take.  I can send you more detailed info if you drop me a private message.

Blessings,

Sean


[QUOTE=Heidi N]

Dear Jennifer:

Acidophilus is a probiotic, which he also needs, but my experience is that acidophilus never works.  It is difficult to find a probiotic that works.  This is the best I have tried so far, in that I believe the probiotic strains will actually take so that you only have to give it for about 5 to 10 days.  I have tried many other brands, but none took - in other words, when you stopped the probiotic, it didn't keep growing in the stomach.  The only thing I don't like about this one is that it has l-glutamine in it.  I think its ok short-term, but would not give glutamine long-term unless one has celiac.  I did give it to every one in my family including my 3 1/2 year old twins.  Look at his stools and decide how long to continue to give it to him.  I gave it to my twins for about 10 days.  Their stools got better than worse.  I feel the worsening is from too much of a good thing.  Now I have stopped, but do feel the probiotic strains took - for a change.

http://www.rockwellnutrition.com/product.asp?itemid=1091

Anyhow, the fact that all he eats is wheat and milk is your big clue.  And he probably isn't even digesting them to get any nutrition from them.  The digestive enzymes will help decrease his cravings and increase his cravings for other foods.  Then somewhere along the line, take the dairy and wheat away.   Organic rice crispies and organic Toasted Os are usually ok'd by many of us doing diets.  See if he will eat those.  I stopped buying wheat and dairy, and everyone got used to it.  They also sell gluten-free waffles in the freezer section.  Try those with some genuine pancake syrup. 

Heid

[/QUOTE][/QUOTE]

I have a daughter Nicole who is a Highly functional Aspergers young Adult we need feed back with all treatments we can use herabl chelation is one of them  

Presently we are trying Epsom salt Cream massages and Vitamin C with Lots of garlic in the food ,  my wife is scared to use any drugs

Please advice me about Zeolite , main thing is my daughter refuses to take any tablets etc

Please advice me about Zeolite

thank you

Mehernosh Shroff

 

If you are lucky enough to see this message, you hit the jackpot.  I was on this board a while back, but since learned A LOT.  Here is my recovery story.  I will be writing a book starting in June.  Note also that if I had to do it all over again, I would start off with Cat's Claw, Turmeric, Resveratrol and digestive enzymes.  If one were really poor, you can just try the Cat's Claw and Turmeric.  Know that brand is almost everything.  Some herbs are imposter herbs, etc. especially with Cat's Claw and Resveratrol.  Know also, that some things don't work unless you have stomach acid which many of us and our kids are low in.  Turmeric and Ginger root, and/or lemon juice, increase stomach acid.  Thus, do lots of research to make sure you are doing it right and get a brand that will work.  You can find me at the Borriela yahoo group I mention.  Lots of love and prayers.  Heidi N

Summary of Recovery Knowledge
Due to the many requests for information I have been getting, I put this together. Know that your requests actually make me happy. I am happy to know that you care and are seeking to help these children who are totally dependent upon us to help them. When I tell people I recovered my children, and they don't make requests, I must admit, it bothers me because I feel so passionate about recovery I guess, and wish everyone else did as well. But we each have the right to make our own choices, and I understand that there are other reasons. Love and success to all of you!


My children are recovered, but currently still dependent upon supplements. It took a year for them to be able to do regular school with no modifications. I have 5 (one was adopted). They all had different symptoms/diagnoses. Some were the same. I did it by researching my butt off. This is my current view on autism causes and treatment. Know that these are my beliefs, I am not stating them as fact because I don't want to be sued, and I may change my mind in the future because this is a learn-as-you-go thing.


I believe that Autism is caused by a starving brain from a damaged GI tract from a damaged immune system from pathogens and toxins. Getting nutrition into my children was foremost in relieving symptoms, and ridding the pathgens and toxins is where I am concentrating as well. There are so many different ways, products, practitioners, and choices. I believe its best to get them nutrition right away (digestive enzymes, cod liver oil, vitamins, colloidal minerals, organic foods, remove MSG, remove preservatives, remove artificial junk, remove dairy and wheat or casein and gluten, remove sugar substitutes, remove GMO foods, give probiotics to absorb the nutrients, etc.). I then worked on getting the GI tract in working order with mild detoxers, anti-inflammatories (can be gentle herbs like Turmeric), bile-stimulating supplements, probiotics, yeast and bad bacteria inhibitors (can be from mild herbs or various supplements, or alkalizing supplements), and now I am in the process of going after toxins and pathogens. I believe in treating for ALL pathogens (yeast, worms, protozoa, viruses, bad bacteria), in that order.


I believe that most people are lyme carriers. I don't know the exacts on how its transmitted, but have read that it may be transmitted from any biting insect or animal, including mosquitos. I also read that it can be transmitted via sex and in pregnancy. I have surmised from what I read that Lyme damages the immune system, allowing pathogens and toxins to stock-pile. I further surmise from what I have read that vaccines, electrosmog, toxins, and other things further this damage, allowing the lyme to flourish. I have read that Lyme is very difficult to test positive for because it lives inside of cells and destroys your body's ability to make antibodies to it. I further read that these same antibodies are also not killing the other pathogens the person is coming into contact with. I believe from what I read that mercury, vaccines, and other things add to this same damage in the same area of the immune system. This could explain why parents are reporting that they believe the vaccines bring out the autism. I have also read that bad bacteria and viruses may be able to live inside of the worms and protozoa, that's why I read its recommended to treat the worms and protozoa first.


I used the DAN methods. www.autismresearchinstitute.com and www.lymeinducedautism.com are my favorite websites for knowledge and references. Go to "you tube" as well, and type in subjects like lyme, autism, etc. Please don't ask me what diagnoses, how severe my kids were, how old they were, etc. because I believe that all things are possible -- in that all kids can benefit no matter what. All my children have different symptoms. They all responded to all treatments I implemented. Sometimes the same symptoms would go away with the same treatment, and sometimes different symptoms would go away with the same treatments. One of my children was 14 when I startred treatment. I did not use ABA. I did use a DAN for one child for a brief moment in time. I feel he was helpful, but not necessary to recover my children.


I know many talk about using a certain supplement to rid a certain symptom, and many just want to do one thing at a time. I found that the gluten-free/casein-free diet did not work if they drank a soda or were exposed to gmo and/or processed food. Thus, I feel too many do it incorrectly. Also note that sometimes it takes months to see an improvement for a treatment. I feel digestive enzymes are the most basic key to getting nutrients in. Know that also, all these supplements and diet making my children live as normals do not work if they are around environmental toxins. My kids return to symptoms around carpetting, magic-marker smells used at school (when the whole class uses them at the same time), fluorescent lighting, etc. Thus, I also have no carpetting, and use organic/natural hygiene/cleaners in my home. There are so many variables. I think people fail when they don't understand that die-off reactions come often when something is going to work, and that something like eating chocolate can sabotage gf-cf diet improvements. Thus, know its not just a matter of doing something, its a matter of doing it correctly. I believe you can only do it correctly if you research it, and understand how it works. I would even research foods and how they correlate with children with autism. Such as eggs are heralded as very beneficial, whereas dioxin used on NON-organic apples, is heralded as very toxic to children with autism.


There is much to learn. I know everyone wants the easy, fast way, and that it is very time-consuming and expensive. I never did any expensive things other than some blood and stool tests. I do admit that giving 5 children supplements everyday is expensive. I also take every thing I give my children, myself. Everything. And I do it for a few days or weeks before I give it to my children, and then I keep taking it as long as my children are. My health also went from very bad to very good. I know some are looking for the one thing to do or matching symptoms to products, but its not about that to me, its about getting the body working well, and ridding pathogens and toxins.


Here is what I am doing:

diet (as I previously mentioned)
digestive enzymes, Multi-enzyme by www.kirkmanlabs.com
cod liver oil by Nordic Naturals
methyl B12 powder by kirkman's
niacin (flush-type only)
buffered C by Thorne Research
Turmeric by Rexall
Ginger Root (only some of my children) by Rexall
milk thistle by Source Naturals
multivitamin, Everyday by Kirkman's
chewable folic acid by Kirkman's
lithium orotate by Ortho Molecular
epsom-salt (mg.-sulphate) cream by Kirkman's
colloidal minerals
Mellatonin, sublingual (chewable) by Kirkman
Pectasol Chelation complex by EcoNugenics
probiotics by Mindlinx or Culturelle (sometimes)
Resveratrol by Paradise Herbs

Burbur by Nutramedix

Cat's Claw (Samento) by Raintree

I have used other supplements here and there.

Know that a couple of these aforementioned products are sold only to practioners on some websites, yet on other websites, the same products are sold to anyone. So don't give up if you get a website that sells only to practioners.

I am now in the process of starting to use herbs to kill lyme. Know that many of the treatments that are being given to children with autism, also kill lyme.

We did have lyme testing. We tested positive for lyme coinfections and have low CD-57 white blood cell count, which is reportedly indicative of lyme disease. Know that I only believed in the lyme theory after several docs started reporting that nearly all of their children with autism were testing positive for it. For further information, see www.lymeinducedautism.com and the Yahoo Group "BorreliaMultipleInfectionsAndAutism".


I fully believe that when toxins and pathogens are rid and the GI tract is restored that my children will then be able to live as normals without special diets, and having to avoid toxins, or be dependent upon supplements. I have read many stories on this, and this is why I believe. So far, this faith has done very well for me. Know that I also pray for guidance from Jesus.

Its important to study everything you give your child. Such as buffered C should not be given at the same time as many other supplements. Know also that brand can make a big difference. Thus, study the brand, make sure they don't use gmo products, and that they use the actual herb, not some imposter which does happen.   Know also that things like Mellatonin can be made from very different sources, some much better than others.   Also, know that getting the right dose can make all the difference. Thus, take the time to study to know all about everything you do, and of course, ask on forums as well.


Heidi N

 

I am reading a lot about Liquid Zeolite being a very safe chealltion agent , How ever the same is not available here in India eventhough we have large deposits of Zeolits in India

If any one knows where i can buy Liquid Zeolites here in India please tell me

 

[QUOTE=Heidi N]

Well, I think very few people actually get cured with chelation.  All these treatments are just so new that there is still much to be learned.  According to the Autism Research Institute, most parents feel their children benefitted from chelation.  But, its really just a part of the recommended treatment therapy.  I used a strong herbal chelation treatment on two of my children for one month.  With no other treatments, they became completely symptom-free for 3 weeks.  My 15 year-old's symptoms returned all at once, right after he ate a food with MSG in it.  My 5 year-old's symptoms started creeping back as well at the 3-week mark.  I then immediately started them on vitamins, minerals, fish oil, antioxidants, and digestive enzymes.  They still have some symptoms, and they are reliant on their current therapy to keep symptoms from worsening.  But, they are now able to do regular school; whereas, they were not before. 

As far as which symptoms are affected, it can be any and all.  The two boys I just mentioned started therapy 9 months ago when I actually learned children could get well.  I have adopted a 5 year-old girl with Aspergers, Bipolar, ADHD, speech problems, conduct disorder and ODD and just started her on the nutiritional supplements, diet, etc., but not on any strong chelation.  I just wanted to see the difference.  She has been on treatment for 6 months.  I think she will also now be able to do regular school, whereas before, she could not.  I withdrew her from Pre-K due to unbelievable behaviors, much like that of a out-of-control two-year old.  The school and her counselor said they had never seen such behaviors in a 4 year-old before.  Well, she will be in kindergarten next year and we will see then, but I think she has had a significant reduction in symptoms.  Her prior foster parents came to visit her and couldn't believe the difference.  I told them I need them as witnesses because when I tell poeple, they don't believe me.  They don't believe that nutrition can do so much.  I don't blame them, I wouldn't believe it either, if I had not seen it myself. 

 

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How long does it take to see improvement in symptoms after chelation?

 

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