Hi all. Haven't posted in awhile besides replies. Well just an update. I heard back from our Child Care Center here that does evals for autism. They are sending me some more paperwork that the psychologist wants. He's supposed to be really good in working w/ autism. They also want a copy of my daily journal (hope they're ready for 30 pages! lol). They also want the 30 min video, which I made to send to the Center in another city before I found this local place. So I will give them a copy of it too and drop all this stuff off. Then they said they will call for an appt. Sounds like it might not be too much longer. Guess I won't have to wait for the other center to get back to me from across state. I'm glad I found this place here. At first the one far away was the only one that I had heard of.
I have a question also. I think I've read some of you say that your child would stop certain stims or behaviors and then they would go back to them later. Is there any reason for this or is it just the flow of the disorder? Example: Aiden always had a very strange repetitive behavior w/ certain toys that he would engage in constantly every day. The last couple weeks I have noticed he's hardly done it at all (about 1-2 times a day briefly rather than 20 times). I thought maybe it was nothing more than a quirky phase that had passed. Now the last couple days he's doing it constantly again. He's also not wanting to try to talk anymore. Since he's started ST he was seeming to try to be more vocal and had even added a couple of somewhat understandable words (green, blue, etc) but now he is back to where he was before. Is this just the one step forward two steps back or could there be a reason for him regressing like an upset in his world? I've been trying to think if there's been any major events or changes lately but nothing strikes my mind. Of course I realize those that are on the spectrum feel and notice things diff than I might.
Also I hear about those saying their child is oversensitive to sound like vacuums. It can be opposite too though right? I am thinking ds is undersensitive to sound. During the 4th of July we had over 0 in fireworks! It was an awesome show in our whole neighborhood. But ds didn't care less hardly. He didn't get bothered by the loud sounds and didn't even want to watch or participate. All he wanted to do was run around the yard and collect peices of the fireworks to do is "odd" play with. Even my nt dd covered her ears a few times and at least I expected ds to react in some way. I know he isn't dx'd yet but if you could give me any thoughts on it I'd appreciate it. Sorry so long. I guess I should post more lol. Thanks.
Amber
P.S. I'm so glad I have this site! I checked out another autism site and holy cow are they strict! I tried to share a website on a post about sensory issues for someone, and the site administrator emld me that I can't do that or I would be banned! Sheesh! Security is good on inet but they go way too far you can't share anything.
Amber,
Thanks for the update on the center that will be doing the eval. From what you said it sounds good to me and a much easier choice then having to travel further away.
Adam goes through certain phases with stimming behavior. He can go weeks without doing it and then out of the blue he will start flicking light switches etc. (Now the vocal stims are a different story...they still happen daily.) To be honest with you with him at least it seems like he will start doing it more frequently when I am not engaging him as much in constructive activities or redirecting him in some way. With adam's speech it's weird because he will some days use up to 5-7 word sentences and then others hardly use language at all. I've also noticed that he will be taught something and then seem not to know it a couple days later and then know it again..LOL I have no idea why this is but especially with colors he does this. And it usually happens when i'm trying to brag on what he has learned..LOL figures huh?
As far as sensitivity to sounds. Adam could care less about loud noises. This is the same reason we thought he might be deaf when he was a toddler. He has never covered his ears either for any sound. Some sounds will excite him like thunder and he will go, "oh wow" and it makes him jump but then he giggles. Like it's some kind of game..LOL Anyway this is what it's like over here anyway...don't know about the others children. Take care and keep us posted.
Karrie
Amber I do still encourage you to have your child's hearing fully tested. Gabe could care less about sounds on some days and other days he is sensitive to you breathingKarrie
Yes I was planning to bring that up at eval too. I do think he has ok hearing because if I am 2 rooms away and say (not yelling even) "Aiden come get a sucker" he comes charging. So I think he can hear me just fine. But yes I will look into checking it as well. Thanks for your input.Amber,
I think it's great that you have kept a journal and have all your info together.
I do remember fretting over everything Takoda did while waiting on that OFFICIAL DX. I think your just so focused and everything he does or stops doing is a mystery before the Dx. It is good to hear that you will soon have some anwsers.
Nelle
Good luck with your eval. I'll be praying that everything is okay with him, though I know you have a lot of concerns.
Kellie
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