Goodness what drama | Autism PDD

Hey Nikki,

Sorry youhad to go thru all that but hey, give the fool a shovel and let him dig himself alittle deeper. it is good that the dr was present during the conversation, if you could get him/her to simply write that the ex does not have a full grasp of the children's conditions and that he needs to further educate himself on not only the dx but the proper therapies, this might work in your favor.  I hope everything goes well fro you and the kids on monday.

Wow that is crazy drama. Sorry you have to deal w/ someone that sounds very pigheaded by your post. I do hope all goes well w/ court and also w/ your boys' progress. Best wishes.

Amber

Well, my ex husband and I almost got into a free-for-all in front of the Pediatrician today. Luckily I kept my cool and came off fairly well. I did NOT want to blow up in front of my boys. But man, he makes it hard! I asked the pediatrician to please explain to my ex that our boys are autistic. He keeps saying that they are on the "PDD spectrum" and that is totally different from the autism spectrum. He basically made a fool out of himself. 

I explained to him in front of the doctor that there is no such thing as a "PDD SPECTRUM" and the Dr agreed and tried to explain things to him. He made it very clear in front of all of us that he thinks nothing is wrong with them, and he even said at one point that the Dr was not qualified to even discuss autism. I think she loved that comment!

Anyway, it was stressful. BUT, it can only help my court case, because now I have a Dr to back up that everything I have been saying about my ex's attitude is true. It is so ridiculous that he doesn't want to get help for them.

On another note, I got back Jonah's OT Eval a few days ago. He scored in the 1 percentile. THAT was depressing. It seems like everytime I think I know all of his problems, there are more. We haven't even been able to get Noah tested yet. Who knows how that will turn out.

We have our first court date on Monday. I will keep you all posted. Thank you for making me feel like someone is listening and cares. You guys are almost all I have sometimes.

Ask the dr to write a letter regarding the appointment to file in the court record.

Sorry to hear bout your ex, mine is the same.  Even after he saw how behind he still really didn't want to deal with the issues... He just hasn't realized *he* is the issue not my ds :P

I read the link, and you know what? You are right. I actually knew about that, and had read about that before. But anyway, what had happened is that the Neurologist had actually said a few months ago that maybe he actually was PDD-NOS instead of Classic Autism, mostly because the ex was pushing it. i have noticed that since he is so much more outspoken than me at these appointments (until today anyway) that he can usually get a Dr to say that MAYBE the boys aren't really ASD, etc...  ANYWAY, the Doc said something along those lines, and he started saying that he wasn't autistic...  I don't know if I explained that very well or not, but hopefully you get the picture. 

BAsically, he has been fighting the diagnosis for 2 1/2 years, and finally I am getting somewhere, and finding the strength to stand up to him for my boys.
I don't think it would be unusual to go from a autism dx to a pdd-nos dx.  I know with Gabe some days I wonder if he has autism over having the pdd-nos.  awwwwwwwwwwww EX.S can really ruin the day can't they.SORRY you had to deal with this. I wish u all the best with court..

http://info.med.yale.edu/chldstdy/autism/pddinfo.html

According to Yale Developmentally Disabled Clinics it is not.  Your husband said pdd, not pdd-nos.  And according to this clinic autism falls under PDD so maybe there are two sides to that in the medical profession.  Which the doctor should had known about.

Wow Nikki, you sure have your hands full.... I just wanted to let you know that I'm Praying for YOU, your KIDS & your SITUATIONS all the way around!

Sending PRAYERS & POSITIVE energy your way!!

God Bless you all & keep you all safe!

Linda...aka...Tony'sMom...aka MWN64Thank you all... I guess I didn't explain things very well. The ex really has no idea what PDD or PDD-NOS is, it just sounds better to him than autism. If you ask him to tell you why he thinks they have either one, he just says that is what the doc said. He doesn't have one clue about any of it. So it isn't like we are fighting over what the diagnosis is, he just makes it a point to tell everyone that neither one is autistic, they are just behind, and they will go to kindergarten without an IEP, therapies, or an aid. So while most of us have to fight our school districts for these things, it is 100 times harder for me when I have an ex sitting there siding with the schools!

Actually, I have to say, even the teachers pretty much agree that Jonah at least will need a full time aid. THAT is how much in denial my ex is.

Ok, enough ranting, I am going to read some new posts and go to bed!

Thanks again everyone, your thoughts and prayers are SO greatly appreciated!

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