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Friday I took my son to the university to have all day testing. We did this last year as well. I told them everything my son is doing. Including hand flaping , toe walking , lining up toys, repeating what i say back to me, saying words over and over,playing with the wheels of his toys, slaming into things,falling on purpose,only eating certain foods,not eating any foods that are hot. staring at lights. he is 4 and is testing at the 2 year range in talking and 16 months understanding what is said. he is at the 70 percent mark for IQ.borderline range. They wont give him a PDD dx because he is social . he will look at you and say hi . he will play ball with you. He seems to just play by kids his age though . I dont know what to think.Did they have a developmental pediatrician evaluate him?  Sarah got provisional label of autism by a team of child psychologist, OT/PT/ST and autism specialist...but her dev-pediatrician stated autism.  I think some professionals have trouble with the autism label but our dev-ped had no prob. at all and stated he knew within minutes...she toe walked too but never flapped, never lined up things and no sensory issues other than picky eater.  She had <5 words a day at the time....she wouldn't show us toys or look at what we pointed at..she had a hard time responding to her name and although she was excited to play with him..she lasted about 1 min. and then she was off doing something else:)  All of know many kids with autism can be social and have eye contact...follow your instincts and find parents in your area and who they went to for answers...I think your child may be so mild when being tested that it is not enough for diagnoses but you know him better than anyone..dont give up:) Good luck!he saw a psychologist,ot, speech and dev-ped. the ot said it looked like pdd the rest said they weren't sure but did not want to give the dx.

Interesting.  Does this affect his educational placement?  That'd be the main concern I have.  As long as he's in some sort of reasonable developmental placement with the publci school system, I probably wouldn't care much about what the univeristiy experts think.

If it is affecting his placement, I would push for a diagnosis from somewhere - the school system for starters, if you haven't already.

It sounds odd, that, with all of the traits you mention, they wouldn't dx him with a PDD because he plays ball and will say 'hi'.  I'm guessing there's more to it than that, but if that's really their disqualifying criteria, I wouldn't content myself with their dx.

fred39167.3091087963you are right .He is getting services from the school and they are very good although he would be able to get more services with the dx than he is getting now.There are no services through the summerThe school also says he is to social.Sarah always tested well with people she liked and would comply beautifully but...with mama she would meltdown and scream her lungs out.  I feel no one can stop you from getting him the help he needs..some states pay if you have a diagnoses but most do not so I would look at his therapies and if he is progressing ahead I wouldn't worry too much..Most of the sx. you mentioned do disappear as they mature and language comes in..just be mindful if the sx. get worse or more come in..write them down and take him back asap:)

I would push for a dx, for other reasons than just getting services if necessary. For your own mind, to have a "validation" for his way of being (not that it should matter but society apparently thinks so. Heck, even when there is a true explanation for something people shun differences).

And when he gets older he might want to know that he's not just mad or bad or anything like that.

just two cents there..............

 

 

If the evaluation team didn't suggest running any biomedical tests to rule out treatable medical conditions (such as hearing loss), you have even further reason to seek evaluation and diagnosis elsewhere.

Here's a link to a recent discussion of biomedical testing on this forum, with a list of tests that are often given as part of an autism evaluation.

http://www.autism-pdd.net/forum/forum_posts.asp?TID=14004&am p;TPN=2

 
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