I was noticing the thread: Your ASD kid's symptoms at age 2.5. There was some great feedback there!
Would some forum members be able to tell me a little bit about your little ones with ASD back at age 12-18 months? I imagine for most of you, that would be before diagnosis.
I have so many questions. Feel free to answer or pass over whichever you like.
1) Which signs and symptoms concerned you at the time?
2) What red flags do you now notice in retrospect?
3) What did others say to you when you voiced your concerns? What did other people say about your child in general? (e.g. "What a pleasant boy!" or "He just needs a spanking, that's all.")
4) What was an average day like? How did your child react to routine activities like mealtime, diaper changes, playmates/siblings, naps etc.? How did he react to disruptions like visitors, outings, and restaurants?
5) If your child had regressive autism, how did this present itself?
6) Was your child an easy or difficult baby?
7) What did your child's doctor say about his delays or regressions?
8) Did anybody here procure an early diagnosis? (before age 2)
My son is nearing 18 months and displaying a number of red flags for autism. I'm pretty convinced this is the case, but your feedback will definitely help me keep my resolve in the face of those who say, "But he doesn't look autistic..."
Thanks so much!
1) Which signs and symptoms concerned you at the time?
Headbanging, horrible screaming & crying, not walking, not crawling, tantrums that took 3 people to make sure she did not hurt herself or someone else, night terrors
2) What red flags do you now notice in retrospect?
Sensory issues (with food, baths, teeth brushing, clothes, noises, etc.)
3) What did others say to you when you voiced your concerns? What did other people say about your child in general? (e.g. "What a pleasant boy!" or "He just needs a spanking, that's all.")
"She just needs a spanking!", "she is just a little behind", "she is just a fussy baby", "this is not normal", "you need to get her help" It was all over the board at that age but those closest to me made it seem like it was my fault, that I did not discipline Ali properly and I just needed to spank her.
4) What was an average day like? How did your child react to routine activities like mealtime, diaper changes, playmates/siblings, naps etc.? How did he react to disruptions like visitors, outings, and restaurants?
Sooo long and hard to get through, she would wake at 8:00 and stay up till 2-3AM, she resisted naps, hated having meals, cried and screamed a lot, had HORRIBLE tantrums at diaper changing time, she watched tv at times, constantly wanted my attention, outings caused tantrums that made going out seem not worth it, night time was a struggle...when I tried to get her to sleep she screamed, hit herself, hit me, woke up so many times, often I would walk her and rock her for an hour before she fell asleep, then if I put her down she screamed.
5) If your child had regressive autism, how did this present itself?
N/A
6) Was your child an easy or difficult baby?
DIFFICULT!!!!!! There have been good days, but there are always issues, if I stick to routine and nothing unexpected happens, we may have a wonderful day....but how often is that?!
7) What did your child's doctor say about his delays or regressions?
Mostly that I am doing the best I can and look into another clinic or doctor to help with her difficulties
8) Did anybody here procure an early diagnosis? (before age 2)
Tried....but Dr would not hear of it.
My Ali has come a long way, I am so proud of her when I think back to the first 2 years and how hard they were.
He spent 45 minutes at 13 months stacking three blocks over and over again.
2) What red flags do you now notice in retrospect?
No observable communication skills. Lack of facial expression to register excitement or anger, boredom or anxiety, unless he was really happy or really upset. Almost no understanding. Could not follow any directions. Could not chew food. No eye contact. Did not react to major changes in routine but very strongly to minor ones.
3) What did others say to you when you voiced your concerns? What did other people say about your child in general? (e.g. "What a pleasant boy!" or "He just needs a spanking, that's all.")
Not sure if I voiced concerns before the age of two, but was told he just needed to catch up.
4) What was an average day like? How did your child react to routine activities like mealtime, diaper changes, playmates/siblings, naps etc.? How did he react to disruptions like visitors, outings, and restaurants?
See above.
5) If your child had regressive autism, how did this present itself?
No regressive autism, autistic since birth.
6) Was your child an easy or difficult baby?
Easy.
7) What did your child's doctor say about his delays or regressions?
They started voicing concerns when he was about 2.5.
8) Did anybody here procure an early diagnosis? (before age 2)
No.
1) Which signs and symptoms concerned you at the time? Appeared deaf Not enough words
2) What red flags do you now notice in retrospect? He had lost language. At 9 months he said bye and hi with a wave and it went away and I didn't seem to notice or put it off to him being shy.
3) What did others say to you when you voiced your concerns? What did other people say about your child in general? (e.g. "What a pleasant boy!" or "He just needs a spanking, that's all.") At 17 months my sister kept him for a week and was testing him in her own way because she knew he was delayed. After the visit she voiced her concerns to me.
4) What was an average day like? How did your child react to routine activities like mealtime, diaper changes, playmates/siblings, naps etc.? How did he react to disruptions like visitors, outings, and restaurants? He didn't start to have major sleep issues until closer to 2 I believe. HE seemed to thrive off of routine but that didn't seem any different to me at the time
5) If your child had regressive autism, how did this present itself?
6) Was your child an easy or difficult baby? Colicky at first. Then a great baby...then a VERy difficult toddler.
7) What did your child's doctor say about his delays or regressions? Nothing. Told me he was a boy and some boys talk late. No big deal. Had a developmental pediatrition tell me that he was NOT on the spectrum.
8) Did anybody here procure an early diagnosis? (before age 2) Not here....he was over 3 when he got his diagnosis.
1) Which signs and symptoms concerned you at the time?
appeared deaf - delayed social and language milestones across the board.
2) What red flags do you now notice in retrospect?
see question #1 :)
3) What did others say to you when you voiced your concerns? What did other people say about your child in general? (e.g. "What a pleasant boy!" or "He just needs a spanking, that's all.")
We heard a lot of things like 'twins learn to talk later', that sort of thing. A lot of people dismissed us as hysterical and of not being able to handle our children when we asked or pleaded for help. Lots of people made us feel sort of inadequate.
4) What was an average day like? How did your child react to routine activities like mealtime, diaper changes, playmates/siblings, naps etc.? How did he react to disruptions like visitors, outings, and restaurants?
Crying and tantrums. That was our life for the first two years. One or the other was always screaming, and sometimes my poor son, too, who was just 2.5 when they were born and had to endure having his loving, doting parents reduced to shuffling zombies over the course of several weeks.
5) If your child had regressive autism, how did this present itself?
They never regressed
6) Was your child an easy or difficult baby?
Very difficult. Aburdly so. I often had to come home from work during the first three months to help out because my wife would be sobbing and melting down, herself. We could never take them anywhere because it woud always end the same -they'd start screaming and we'd have to leave and my wife would cry. They were so difficult, we had some discussions about giving one of them up for adoption because my wife didn't think "she could handle it". We never got past the casual discussion stage with that.
7) What did your child's doctor say about his delays or regressions?
They actually had 'just enough' language and social ability that the pediatrician didn't really pick up on anything and their standard tests that they give you to detect these things didn't pick up on it, either. It wasn't until they were nearly three, and I ASKED our pediatrician to please take a closer look and see what he thought, that he told us that he thought Abigail might be on the spectrum. He said that Evie probably wasn't (they both are).
8) Did anybody here procure an early diagnosis? (before age 2)
No - but I knew - just didn't want to admit it.
1) Which signs and symptoms concerned you at the time? between 12-18 months it wasnt so noticeable,he just said like 2-3 words at the time (mommy,daddy,milk..) he walked by 1 and crawled by 6 months.
2) What red flags do you now notice in retrospect? At 2 he still had same language as he was 18 months, so its like he froze after that. But he did add more single words to his vocabulary and he started repeating what ppl asked or told him.
3) What did others say to you when you voiced your concerns? What did other people say about your child in general? (e.g. "What a pleasant boy!" or "He just needs a spanking, that's all.") when my son hit 2 ,my dad told me, he has speech problems, by 2 a kid should be talking more. so i tol dthis to his ped. but she didnt see no delay. when he was 2 1/2 was when i approched her again and told her about his temper tantrums, echo words ,hyper, short attention span etc... she gave me refferal cause i asked her to and then he started getting ST at home. ppl just use to say "What a shy boy he is".
4) What was an average day like? How did your child react to routine activities like mealtime, diaper changes, playmates/siblings, naps etc.? How did he react to disruptions like visitors, outings, and restaurants? When he was 2 he use to be awake from 1am to 6am everyday,mealtime was normal i guess, he didnt get poty trained until 3 1/2 yrs old, playing he was rough with kids , he use to nap everyday between 1-3pm ,he was very active and all over the place.
6) Was your child an easy or difficult baby? he was easy to handle, got worse after 2,when it all started to be obvious.
7) What did your child's doctor say about his delays or regressions? his ped. thought he was a late talker, i had to push her for that refferal for ST. as soon they evaluated him, yes, he was delayed in some areas. about the tantrums she would laugh, and when he was in crowded place she wanted to run ot of the place, another joke for her ( dont worry she is not his ped. anymore)
8) Did anybody here procure an early diagnosis? (before age 2) my son was 3 when diagnosed with pdd nos.
1) Which signs and symptoms concerned you at the time?
Language delay. Response to name. Sensory (rubbing textures).
2) What red flags do you now notice in retrospect?
Playing next to us not with us. No pointing. Avoiding chew mixed textures.
3) What did others say to you when you voiced your concerns? What did other people say about your child in general? (e.g. "What a pleasant boy!" or "He just needs a spanking, that's all.")
Handsome nice boy. Why is he not talking ?
4) What was an average day like? How did your child react to routine activities like mealtime, diaper changes, playmates/siblings, naps etc.? How did he react to disruptions like visitors, outings, and restaurants?
OK. No sleeping problems until 2.5. No problems with routines. Very willing to play with kids. But not succesfully.
5) If your child had regressive autism, how did this present itself?
No. It was there.
6) Was your child an easy or difficult baby?
Colics but after very easy baby.
7) What did your child's doctor say about his delays or regressions?
He is OK. Late talker.
8) Did anybody here procure an early diagnosis? (before age 2)
NO.