Sarah I'm sorry to hear you're having a bad few weeks here. I don't know
if you've tried this idea yet but it may help with store trips I know I used it
and it did wonders for my little guy. Try using a picture schedule for the
day and take it with you. Also he thankfully loves Dora the Explorer and I
can tell him first store then lunch then park (or whatever three things are
next in the day). I can't talk about anything other then the thing we are
on then like if we are going to the store I can't ask what he wants for
lunch or it messes him up but I can talk about what we're getting at the
store and being at the store. I know also if he's upset about something
that he can't get across he gets self injurious and angry acting at those
times I back off and will try to see if he'll take a sensory break. Hope this
helps even a little.
I wish you all the luck in the world.Sarah I am glad to hear you are checking with the neuro. NOTHING to play games with thats for sure! They do grow quickly so maybe she needs a med adjustment. Has there been any changes (even minor) that may be upsetting her? Im so sorry you have to go through this It isnt easy to watch our child be so out of control I know. Hang in there know we are here for you and PLEASE let us know how shes doing!
No there's nothing I can think of that's different. It's just so frustrating isn't it?
You think you have something "figured out" and then it just explodes.
I'm not naive enough to have thought she was cured, but I thought we were making progress. It's like one step forward, two more back. You just don't notice how different your child is until you see them around others either. It's just sort of depressing.
I feel angry and frustrated for her, though I know she really doesn't understand it all anyway.
Sarah
Hi-
This is only my second time posting. I'm mom of Jessi, 26 months with Tuberous Sclerosis, Autism, and Epilepsy.
Jessi is having a HORRIBLE couple of weeks. She is being very self injurious over everything. Whether it's because she can't do a toy, or I tell her no, or for no reason at all, she's hitting, pinching, biting, punching herself. Drawing blood at times.
She's undersensitive to pain so that's not the issue.
I can't take her anywhere. We went to a few stores today and all she did was cry, scream, and do the above injurous things, while saying "no, ouey, bite".
She is not making good eye contact again, won't answer when you speak to her or ask her questions a lot of the time, and is doing a lot of verbal and physical stimming.
We went to the playground yesterday and she just sat in the sand, running it through her hands and then grinding her hands and feet into it. Then a kid tried to pick her up and she allowed it, but tried to keep on doign what she was doing.
When she'd had enough, she started slapping at the kid. Not once did she actually acknowledge the other kids existence, which isn't abnormal for her anyway.
I'm at my wits end here. I can hardly even touch her without it being a huge thing. And if one more person tells me "Oh, she's 2", I'm going to beat them up.
Oh really then they should come and take her a few days and try their "conventional" parenting on her and see if it works.
Sorry,
Sarah
When was the last time she has an eeg? Also what meds are she on?
Tammy
She had an EEG last month, post-op. She had a left temporal resection, left temporal lobe topectomy, and anterior 2/3 corpus callosotomy. Her EEG looked great.The only reason I ask is recently I was told that very anger, aggressive behaviours can, in some cases be seizure related. But yes I would definitely ask your child's neuro.
Tammy