Just wondering if any of your kids had a MRI around diagnoses to rule out brain jury? My daughter at 2 1/2 years old was not really talking and walking on her toes pretty much all the time. Extremely easy baby that never cried or fussed. She had a MRI for the toe walking. The test results were given over the phone and we were told she had "delayed myelin" on her neurons(fatty sheath not as thick as should be) I asked if that was why she was so quite and not talking/tuned out and the neurologist couldn't rule out the language problems being from delayed myelin but couldn't explain the tuning out part. Of course he offered no advice or medicine for myelin delay but I gave her EFA fish oil after looking into it on the internet and found it helps with brain function and speech delays(late talking children website) She got a ppd-nos label from him but we were still not sure if the myelin had a bigger role than he knew. We got the autism label after having her evaluated by a developmental pediatrician, a "provisional autism label from the school at 3 yrs. old" So we decided to do ABA/speech therapy with her and she is doing amazing in kindergarten totally mainstreamed. She still socially not like her peers and her pragmatics remind me of a 3 yr. old at times. She is very loving though and hugs us and tells us she loves us. She gets jokes & laughs all the time..she had very little facial expressions at 3 yrs. old and couldn't even say 'mama"
okay if you are still reading..I apologize:( I tend to get very wordy and can't stop............someone please stop me!!!!!!!!!! Blessings, Shelley Hey Shel, You reminded of something some one told me a while back that doctors just "practice" medicine and sometimes just dont really know what the true issue is with your child. My son went from speech delayed to developmentally delayed, to PPD-nos. To now him being in a austism program where his teacher is telling me he really doesnt seem autistic but there is something thats not quite right. So right now i'm in limbo trying to decide what is the best thing for him as far as his education is concerned and how to get help. I get so over whelmed at times that i just cry because i dont know how to fix this "booboo". I got rid of the post! So you would not have to scroll so far down! I read about that and stopped all vaccines at diagnoses...a little too late:( I had all my mercury fillings in mouth replaced-nursed both kids:) I remember the Hep-b shot hours after she was born and I was also induced with pitocin both having mercury in them:( She did get the heavy metal tests stating she had no mercury in blood but found out it stores in fat in organs and hair testing is more accurate:( I did do the L-glutisone (?) cream to detox her-smelled horrible! I have heard epsom salts are good to naturally detox..not willing yet to do IVIG to her after I was told to sign many documents of them not responsible for any side effects of it.. couldn't do it.:( Thanks for the LONG article:) I was just curious if others had it as well? Our therapist felt the reason was more of what came first.. the autism first: resulting in neurons not firing or maturing because of it(her lack of interest in the world)..or the delayed myelin resulting in autism symptoms..nobody knows for sure. Thanks for the reply.. Shelley Shelly, Read the Epsom salt label. The reason they say to use it is because it has 13% sulfur. Mercury has an affinity for sulfur and helps draw it out. Also We had a Nurogenomic profile test done on our little girl. She showed negative for GSTM1. Which means she is UNABLE to get rid of HEAVY METALS. Now we know why this happened to her! If we were to Gene Profile before vaccines then we would have know Not to vaccinate her. The first time we checked her very little metals showed up and NO mercury showed up. Now 14 months later and she is off the charts with numerous metals and no IVS are used. Only Trans Dermal DMPS every other night at home. We add minerals every other day to replace what comes out. Check Out this Chart! They use Sulfur in DMPS and DMSA and that is why it draws the metal out!!
Thanks, Shelley Good morning Shelly, Its not a patch, Its a cream that you rub on kind of like Ben Gay. It dissipates in a few min and is a little sticky. You put it on at night just before bedtime and that is it. It smells a lot like rotten eggs for a few min. But Gracie grabs for the bottle every other night and hold her arms out. The cost is About 0.00 a bottle , last a month and our Ins. will pay for it. The only thing is you can only get from one Pharmacy and we had to work on getting them on our policy. You ask if we have seen any changes. YES!!! When we started. Gracie sat in front of the TV. Now She is in school, although it is in Special ED. We have not done the ABA which we understand work to some degree. But we have been working with a neurologist. We have had 4 EEGS and seen allot of progress with his work as well. ( No Brain damage, Praise GOD). I mentioned just last night to my wife, after we took her to McDonald's yesterday. "Did you notice anything different today at McDonald's". She said "NO". I said no one was staring at her the whole time! She was perfectly normal playing with her brother and playing chase. Other then her Little speech. Which is coming but slowly. She was just a nother kid there!
By the way, Your daughter is Beautiful also. My wife said she looking right into the camera very nicely as well, One thing Grace does not like to do all the time. Hi! Cross7, how did you get started on your daughter's program? Do you see a DAN! doc? And has IV pitocin induction been shown to be associated in any way with autism? I was induced with IV pitocin. Any guidance would be much appreciated! Shelley, Type away! I read the whole post and you weren't rambling...Maybe we as parents just have so many ideas, so many questions, so much knowledge, so much to remember, that we all just get used to it all! Blesings! AndrewsMommy, Its a very long story. We do use a DAN Dr. in Arizona. Your question about Iv Pitocin can only be answered by reading the ingredients of the medication. Although I have not heard of it causing Autism. More the rogam if required for your second , third and so on babies, and other vaccines that might contain mercury. Most childhood vaccines do not contain thimerasol (Mercury)now and have not since late 2003 and early 2004. Although the Flu and tetanus still do! I do know from working with a DAN DR. and a neurologist, several therapist and my own research that the younger you start the better chance for recovery if you suspect any form of Autism.
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