Wray -- Yes I just heard about the 30 day rule and it is hospitalization at ANy time in the child's life, including for preemie problems. I just told a friend of mine whose son was hospitalized a few years ago for psychiatric problems at the beginning of adolescence. She never knew and he was in the hospital for just about 30 days. She's going to look into it.
go to www.ssa.gov and you can search for whatever you want to.
Here is a link for the listing of impairments which as long as they met the critrea there(make sure to check part A and B, and click the evidence requirements to check those. SSI is based on income, but you can get credits for medical expenses you pay out of pocket, working, and several other things.
http://www.ssa.gov/disability/professionals/bluebook/Childho odListings.htm
It is based on income and here is another link that will help explain that. The rules are Federal.
http://www.ssa.gov/notices/supplemental-security-income/text -eligibility-ussi.htm
Hope this helps some. Also, when you do apply send all the medical records. You get a copy and send to them. Do Not assume they will get everything they need. It took me one denial and 8-9 moths to get SSI for my oldest, Then I learned and it took less than 3 months for the other 3 children.
The amount you get is based on income, resources, and what is deductable.
Venus
It could be at any age here and since I was only involved in age group that is all I know about. But I am fairly certain that it has to be applied for somewhere around that 30th day. Like the parent I was in contact with at the time had found this out AFTER her child was in the hospital, probaly been discharged around a month or so. And this parent COULD NOT go back and file based on that hospital stay after the fact. I do understand though, that's it no questions asked for an entire year.
My question is then this? What happens if you get it for that year and then it is discontinued at the one year mark, but the child still needs it and is turned down from that point on? It seems to me that the parent would then be in a rat race to get insurance or services covered in one way or another since it can just cut off. Can SSI be cut off at anytime in all situations?
I don't think they just cut you off. They don't even do their re evals on time all the time.
What I do when I know my re eval is coming up is find other resources to meet my needs then if I am knocked off I am ready if not then ok.
I would think especially in the case of premiees and real sick kids they would keep them on until they know for sure ALL is well and things are resolved enough for aducate living.
good luck From what I understand, a child doesn't get cut off from SSI once it's been given if that child has a PERMANENT disability, like an autism spectrum disorder. If there is a preemie that ends up bouncing back and developing normally, that is different. But the trick with our kids is getting them IN in the first place. Once they're getting SSI, it's not hard to prove they are still disabled. I am surprised to hear that Wisconsin only counts the child's income. That's great. In N.Y., the parents' income is counted until the day the child turns 18. On his 18th birthday, he can apply in his own right. But any financial assests he has in his own name or HAD in his own name back 5 years count. So the advice for any parents who want to apply for SSI for an 18yo is to get ALL assets out of that child's name BEFORE his 13th birthday. Something Tzoya said made me think of a rule in my state. If you have a baby that has to stay in the NICU for more than 30 days, on that 30th day you can apply for SSI no questions asked and get it for one year. After that year, the situation is reevaluated. No one really tells parents this in the hospital even though there is usually a social worker or nurse assigned to the family when a child is in NICU that long. I have had parents tell me they found out about it a few days after their child was discharged. After you leave the hospital you can't apply for it under that rule. As far as I know, in my state this rule only applies to new borns, not at any point in their life. And you have to apply from the hospital. Some of the time, the social worker or nurse will apply for you if that happens. I had a job where it was my duty to call all parents in my district who had a baby in NICU recently (at that time) and explain about Early Intervention. No matter what the issue was, I had to contact every parent who applied for SSI for an infant or toddler and who had not contacted the early intervention system to offer those services if the chlid qualified for a referral. Many, many times my contact person would be a nurse or social worker from the hospital. I guess this info doesn't have anything to do with the OP, but it's useful info if you ever find yourself in this situation in the future. Sorry for going on and on about it. Tzoya - a minor CAN lose SSI benefits after receiving them if there is a change in the household income. When ex and I separated several years ago, Tony qualified for SSI as I was not working at the time and had 4 kids living on modest child support. Once I found the appropriate school situation for him and went back to work, Tony lost his SSI due to my income. Fast forward about 7 years and I am again a SAHM (still single) and Tony again receives SSI. However, I did have to re-apply and wait about 4 months for it to get started. The sad reality of the situation is... in order for me to make a positive impact financially (by going back to work), I need to "write off" the first -12 per hour to break even with where we are now. That being the loss of SSI, Medicaid, etc. Not that I am advocate of living this way, its just a sad statement of our society. Mary [quote]From what I understand, a child doesn't get cut off from SSI once it's been given if that child has a PERMANENT disability, like an autism spectrum disorder.[/quote] This is not true, depending on what you are considering SSI. My child got SSI and we owe every penny back to the government totaling nearly ,000. They call it SSI and because our income was different every month they did not do their math correctly and now we owe them. A person can not get on disability until they are old enough to work in our state. Until you are old enough to work and pay taxes you can not be considered on disability and draw income monthly. You can receive supplemental income through SSI but that will depend on the parents income. Medicaid will continue for one year after SSI has been cancelled. ETA: what waiver are you talking about Tzoya? We do not have a waiver to receive SSI in our state. http://www.socialsecurity.gov/notices/supplemental-security- income/text-income-ussi.htm This website has alot of info about the guidelines for SSI. I am in the process of getting it for my son. Hope it helps... mommaniki so once ssi is approved, can someone name a list of what they use it for and if its necessary to have bank account and if you dont, how we keep record of what we use our child's money? things that we dont get a receipt or things that are bought with a credit card? can the first money i get be used to pay off a credit card that has things included for my son and house? I had a long discussion with the ssi worker yesterday when she contacted me. My husband's wages change from month to month also. Sometimes he receives a bonus sometimes not which I told them up front to begin with. I told her I was concerned they would pull his pay stubs at the end of the year and we would end up owing them some huge amount of money. To alleviate this issue we have determined I will call and inform them monthly if we are expecting a bonus and then fax in all my husband's paystubs when he gets them. This way we will know right away if we will be over that month and they can adjust accordingly. It will be a pain I am sure but much better than owing ,000 back at the end of the year!
I did a search and it seems my state is pretty strict (Florida) but I will give it a shot. Liam doesn't have a dx (appt is in Feb) but he has been dxed with developmental delays such as cognitive, speech, language, etc. I wonder if I should try to apply now or just wait.
If you want to apply for SSI the first thing is call the social security administration at 1 800 772-1212 and they'll give all the information necessary to apply for it. Yes your income counts until the child is 18 years old. I know this as I used to be a customer service person for Social security security. The 800 phone number is open from 7 A.M.-7P.m. Please call so you don't have to guess at if you can quailify.
The big bad woolfNot all states do that and even inside that state not all countys do it the same. I have seen inside PA where one county will make you mail in paystubs and in another county you dont. I personally think it is best to mail in the paystubs that way you dont have to worry about an over payment.I am confused here in MN I HAVE to send in our monthly income so they can determine what we get. Our stubs from Sept would determine our SSI amount for Nov. Other wise they will use a estimate of what they think you have made until they get the actual amonts
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