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Hi I thought this might be a good way to welcome new members on the boardand help out other members by putting all the information together and hopefully have everything at the finger tips for the parents, caregivers, family members etc of a loved one newly diagnosed or anyone just searching for information that need some answers. Feel free to add other information you may have.. I know I haven't even begun to cover everything! But my hope is for it to help all who are searching for answers! CLICK HERE TO START http://www.autismtoday.com/commercial.htm WATCH the commercial.... (Thanks Cyndie) Have a fear or wondering about autism? Here are some informative links.... http://www.autism-pdd.net/autism-symptoms.html http://groups.msn.com/TheAutismHomePage/startpage.msnw http://www.autism-biomed.org/poster.htm http://www.msnbc.msn.com/id/6895311/ http://www.cdc.gov/ncbddd/autism/actearly/milestones_3months .html http://www.neurologychannel.com/autism/diagnosis.shtml http://www.raisingdeafkids.org/special/autism/index.jsp http://autism.about.com/cs/whatisautism/l/blcharac.htm http://www.cincinnatichildrens.org/health/info/mental/diagno se/autism.htm http://www.cdc.gov/ncbddd/autism/ http://www.childbrain.com/pddq5.shtml http://psychology.plebius.org/disorders/autism/4/diagnosis/ http://www.jeena.org/autism/tests.htm http://www.nationalautismassociation.org/treatments.php http://www.firstsigns.org/treatment/dx.htm What to expect from an Evaluation http://www.fetaweb.com/help/eval.expect.meyer.htm AND http://www.pedneuro.com/services.shtml (thanks Gabu) Wondering if it could be autism? Here are links to information about some onlne tests.... The tests are not ment to diagnose but to act as a guide and to give you information to discuss with your child's Dr. http://www.childbrain.com/pddq6.shtml http://depts.washington.edu/dataproj/chat.html CHAT checklist http://pediatrics.about.com/od/autism/l/bl_autism.htm http://autism.about.com/cs/medicaltreatments/a/txchecklist.h tm http://home.isoa.net/%7Enitetrax/cars.htm http://www.asaoakland.org/chat.htm http://www.neurotransmitter.net/pddst2.pdf http://www-personal.umich.edu/%7Epdpatel/DSM%20files/ABC_che cklist.pdf http://www.neurotransmitter.net/autismscales.html http://www.patientcenters.com/autism/news/diag_tools.html http://www.aspires-relationships.com/articles_dx_assessment. ...htm http://www.autism-pdd.net/forum/forum_posts.asp?TID=59&P N=4 Adults with Aspergers - What about you? http://www.iidc.indiana.edu/irca/generalinfo/standardtests.h tml DSM IV CRITERIA FOR Childhood autism, Asperger's syndrome, Rett's disorder, Childhood disintegrative disorder, PDD NOS http://www.childbrain.com/pddq3.shtml AFTER THE DIAGNOSIS TESTING http://www.greatplainslaboratory.com/autismrec.html#top The Do's and Don'ts after a diagnosis A print out for your family�s and friends (Thanks Karrie) Looking for information and ideas? Here are some links to help you.... http://www.support4hope.com/autism/autism_adults.htm ------------------------------------------------------------ ----------------------- Yellow Pages for Kids with Disibilities Advice for Parents of Young Autistic Children
This
paper is geared toward parents of newly diagnosed autistic children and
parents of young autistic children who are not acquainted with many of
the basic issues of autism...
 ------------------------------------------------------------ ---------------------------
Interview with Mitzi Waltz: Autistic Spectrum Disorders.
Author-advocate Waltz, now studying at the Autism Research Unit,
answers questions about the increasing number of diagnoses, potential
link with immunizations, autism and genetics, current treatment
research, and the impact on families.
PDD Connections WebRing Thanks for all that info. We newbies need all the help we can get! I have one remaining question. What do all those abbreviations stand for? NT, ds, dx, etc. Some are obvious by context, others not so much. Can anyone help with that? Thanks This is awesome! Thank you so much I am still so new to this this is great!!!!  Thank you so much for the info.Island Dolphin Care - swimming with dolphins program for special needs children http://www.islanddolphincare.org/nonflash/5-day.htm It's located in Key Largo, FL ~Brooke~ CUTTING THROUGH THE PSYCHOBABBLE: DIAGNOSING AUTISM AND PDD-NOS PER THE DSM-IV IN LAYMAN’S TERMS This document was born out of confusion experienced by so many parents about the diagnosis of autism or PDD-NOS. When comparing notes, we discovered that even our physicians did not agree. One woman told us her psychologist said that a diagnosis of PDD-NOS was reserved for children on the spectrum who are curable; others have been told that PDD-NOS is not even on the spectrum! We found that many clinicians seem to take a milder diagnosis and simply label it PDD-NOS. This document takes the DSM-IV criteria for autism and PDD-NOS and translates it into English. It also attempts to clarify how a diagnosis of PDD-NOS is made. Please note that not all symptoms may not be present every day. Look at typically developing children of same age (peers) and use them as markers. This document is certainly not a diagnostic tool; it was created by and for parents. To make this easy, (1), (2), (3) are categories, the letters (a), (b); etc that appear under each category will be referred to as symptoms. DSM-IV Criteria for Autism 299.00 Autism A. To be diagnosed with autism, you must have: o At least SIX (6) of the below symptoms from categories (1), (2) and (3). o You must have TWO (2) symptoms from (1- Social) o And ONE (1) each from (2- Communication) and (3 Behaviors and Interests) o The other one (or more) can be from any of the categories. (1) SOCIAL Social interaction is impaired, must have TWO from below list of symptoms: (a) Problems with nonverbal behaviors such as eye contact, facial expression, body postures and gestures used in social situations Examples: o Eye contact – different from peers, may only meet eye-gaze of certain people or have total lack of eye contact – or anything in between o Facial expression – may seem inappropriate to what the situation warrants, may have blank gaze, may not greet you with a smile, may have same expression on face most of time – or any combination thereof o Body Postures – may hold arms close to sides, may try to avoid certain types of social contact, may appear unapproachable due to posture o Gestures – may not respond to a hand held out to shake hands, arms out for hugs etc. May not understand social ‘cues’ we take for granted (b) Does not make friends like other children in same age group. Examples: o While peers are learning to play together, the child is off by themselves o Children learn to play by imitation, this child is not imitating the other kids o Seems to have no interesting in socializing with peers o May approach peers, but not to play…watch and see if the child is approaching in the same way peers approach each other (c) Does not share objects with others for enjoyment. Examples: o Does not bring you something that interests them to share with you o Does not point in the distance (i.e. to an airplane) to share with you something that interests them o Look at peers and how they show things they are proud of (ie. Artwork) and see if child does the same thing (d) Lack of social (Consisting in dealings or communications with others) and emotional (characterized by emotion) ‘give and take’; Does not respond to social or emotional cues Examples: o Does not seem to seek out or enjoy the company of others; may be aloof o Does not smile back when you smile at him/her (without prompting) o Does not reply “hello” to your greeting (without prompting) o Does not seem especially happy to see you when you return home after work o Does not seem to pick up on the ‘vibes’ of others o Does not become grateful or excited in anticipation of outing or gift (in the same way a peer would) o Does not attempt to comfort someone who is crying (2) COMMUNICATION Communication difficulties (Must have at least ONE of the below symptoms): (a) Delay in, or total lack of, speech, but does not use gestures to communicate (Delay = not at same level as peers) Example: o Does not point to what s/he wants o Does not ‘mime’ his/her needs (ie. Mime ‘eating’ if hungry) o Does not shake or nod head for ‘no’ or ‘yes’ o Does not shrug shoulders to show s/he ‘doesn’t know’ (b) If child can speak, cannot start or hold up their end of a conversation (appropriately) (c) May echo phrases, words, songs, parts of movies etc. (d) Does not engage in imaginative play (as peers) Examples: o Will not pretend to drink from toy teacup o Will not pretend to brush doll’s hair o Will not use items for make belief (i.e. a stick for a cane or a magic wand) o Will not make dolls ‘talk’ to each other o Will not take a toy airplane and ‘fly’ it around the room while saying ‘zoom’ (3) BEHAVIORS AND INTERESTS Repetitive behaviors, interests, and activities – child may get angry if this ‘pattern’ is interrupted. Must have at least ONE of the below symptoms: (a) Child is so focused on an interest that to remove the interest will result in a meltdown (b) Routines or rituals must be followed, they appear to have no function Examples: o Lining up cars is not necessarily playing ‘garage’; if you attempt to join in, the child will tantrum, walk away, push you aside, etc. o Family members must always sit in same seats; failure may result in tantrum o Must take same route home; one deviation may cause meltdown o Must wear red shirt on Tuesday or risk a tantrum etc o If you go to the video store, you must rent “The Brave Little Toaster” every time or risk a tantrum (c) Repetitive behavior such as hand flapping, rocking, ear flicking, chewing on clothing, vocal ‘stims’, spinning etc. Establish if this is self-stimulatory by doing a functional assessment like the Durand Motivational Assessment Scale: http://www.monacoassociates.com/mas/MAS.html (d) Preoccupied with parts of objects Examples: o Spins wheels of toy cars o Focus on one part of a toy (i.e. doll’s eyes) o Cover parts of book so that s/he can look at one piece B. Child is either delayed (not same ‘age’ as peers) or acts differently from peers in ONE of the following (must be noticeable before age three): (1) social interaction, (2) language as used in social communication, or (3) pretend play. C. Child does NOT have Rett’s or Childhood Disintegrative Disorder 299.80 Pervasive Developmental Disorder, Not Otherwise Specified PDD-NOS is a diagnosis by exclusion. If a child presents with some symptoms from (1), (2), and/or (3), and their pattern of symptoms is not better described by one of the other PDD diagnoses (i.e., Autistic Disorder, Asperger’s Disorder, Rett’s Disorder, or Childhood Disintegrative disorder) then a professional might decide that a diagnoses of PDD-NOS is warranted. When comparing PDD-NOS to Autism, PDD-NOS is used when a child has symptoms of autism as above, but not in the configuration needed for an autism diagnosis. Social component is where the most impairment is seen. Children who fail to meet criteria for autism and don’t have adequate social impairment typically have a developmental disability, and their symptoms can by accounted for by that. Looking at above description: PDD-NOS is most often diagnosed when children have significant social impairments, but don’t have the symptoms in area (3). A child with PDD-NOS may have the same (or more, or less) number of symptoms as a child with autism, but instead of having 2 from #1 and one each from #2, the child might have 1 symptom from #1 and one from #2, plus two from #3. A diagnosis of PDD-NOS is not necessarily a less-severe one than a diagnosis of autism, but can be sometimes. Severity of any spectrum disorder can be determined by the amount and severity of symptoms listed above. It is imperative to obtain a thorough psychological assessment performed. If you do not understand during any part of the assessment, ask questions. You should feel comfortable to go home and ‘digest’ the information given to you, form any questions or concerns and contact the diagnosing clinician to get your answers. Many thanks go out to R.C. for her help with this project!
A notice to our readers... This document was put together with input from parents, not physicians. It is not to be used as a diagnostic tool, nor is it to be considered professional advice. This document references web sites that may be of interest to the reader. BBB Autism Support Network makes no presentation or warranty with respect to the accuracy or completeness of the information contained on any of these web sites, and specifically disclaims any liability for any information contained on, or omissions from, them. Reference to these web sites herein shall not be construed to be an endorsement of them or of the information contained thereon, by BBB Autism Support Network. (c) BBB Autism – July 2002 This document is the intellectual property of BBB Autism Support Network. Permission to reproduce and hand out is granted, provided the document is displayed in its entirety. Other permissions may be requested by email: liz@deaknet.com. The purpose of this copyright is to protect your right to make free copies of this paper for your friends and colleagues, to prevent publishers from using it for commercial advantage, and to prevent ill-meaning people from altering the meaning of the document by changing or removing a few paragraphs I was looking at the www.coping.org and found it has lots of interesting things on it. Thanks for posting the site. Found other issues as well that we are dealing within our household [QUOTE=Jen143]
There is an awesome resource w/ loads of free videos about autism called and there is a video from Dan Marino on there talking about how one important thing was that they never treated their son any different than any of their other kids. [/QUOTE]http://autismeducation.net/earlyindicators.htm Early Indicators of Autism
Over the last 10 years, researchers have identified several red flags to consider in the early diagnosis of autism. Some research is based on retrospective video analysis of social, communication, and play behaviors in the first two years of life for those children later receiving a diagnosis of autism. Other research uses screening methods of children at risk with follow-up over time to determine if the diagnosis is maintained and what might be predictive at 18, 24, and 36 months of age. We have learned that there are key factors alerting families and providers to the possibility of autism. These include:
Recognizing early indicators is just the first step in the assessment process. Currently, there are efforts in both child neurology and pediatrics to more clearly specify practice parameters for screening and diagnosing children suspected of Autism Spectrum Disorder. The Quality Standards Subcommittee of the American Academy of Neurology and the Child Neurology Society has issued a report with practice parameters for both the screening and diagnosis of Autism Spectrum Disorder (Filipek et al., 2000). The screening parameters indicate that professionals must include or consider:
OMG! I am in tears right now...I have only posted like 3 times since I joined this amazing forum just two days ago. You all have already given me what has been taking me years to gather together. All the links!!! I guess its time to come clean. Cam is not the only one with Autism in the family. He had an uncle, a cousin (since passed on to the other side) and one other relative who shares his characteristics...his mama. I was diagnosed with ADD in 4th grade and put on Ritilan. (It has had negative affect on my adult years). This was back in the early 70's so next to nothing was known about Autism. It wasn't until I began caring for children and adults with Autism at age 14, and then so perfectly was blessed with my own Autistic genius...not to mention the family history and all; well, do the math. Cameron has exceptional abilities in music and acting...mimicking..with voice and movement both. My exceptional ability is in music. I learned 8 different instruments by ear as a child and began writing lyrics and poetry at age 7. Cam and I share many characteristics...concrete and literal thinking; repetative movement when agitated; dyslexic speech; constant, racing & broken thoughts; extremely strong memory, both audio and visual. We both have trouble reading, we cannot get him over that hump...from memorization to comprehension. I too had the same exact delays. But I am also living proof, like every other individual who lives with whatever form of Autism, I have been blessed to be able to do some pretty amazing things. I am the founder of a music and arts education program which I am working towards developing into a learning center for Autistic children. In addition to this, I recently got my first song produced in Nashville. My song titled "Abandoned Houses" was published and is up for a meeting with one of the oldest record labels in Music City. I leave for Nashville to meet everyone face to face for the first time on the 18th of Feb!!! So see, dreams really do come true no matter what your ability! Anyway, I have such a passion to make this learning center happen. It has taken me 10 years to set it up. I taught one season at our local Council for Family & Children First...it was a hit!! Unfortunately due to a bout with Cancer and a lot of surgery, I have not been able to resume the workshops. That is all about to change. I am healed, cancer free, and getting back on track. This is for all the children. Everything I do is for this, my life's work...this is our family's legacy. I have learned early in this game that if we are to get anywhere for our children, and ourselves, we have to do it ourselves...collectively. If you only knew how much y'all have helped us, God bless you! It can be very difficult for me to sort through all the info...takes me a great deal of time. If you want to check out our non-profit program...visit The Notez Muzic & Artz Education Workshop Smiles with Blessings! ~MamaKel~ Wow! Looks like it's time for me to do my homework. Thanks for gatheringall this up so all I have to do is read my rear off. HOLY COW! This is the BEST list of links and info I've found yet!
THANK YOU!!!!
My son was always a happy baby. Never cried much. Hit all his milestones. Now he is 26 months. Doctors were concerned because he doesn’t respond to his name and doesn't communicate too well. He does have a few words but he only uses them in books. And even those words are not clear. (Babb for ball). His social skill used to a lot better, but lately he has being staring more and becoming less connected. We had a service from the state out to the house and they were the first to the use the word Autism. We I mentioned it to his daycare provider, she agreed. We still haven't had a formal diagnosis. Am I losing him...could this just be a phase? I also have a new two month baby boy. Are his chances higher now to get it? PLEASE HELP. I felt that he was so normal just a few months ago, but now is fading!!! I haven't heard of a case simialr to his. Nancy
Hi! I am new here and my name is Kristen. I am not new to autism but these post are great reference for us....some we know, some we don't. Thank you! I found this link of free PECS if anyone should find it useful: http://www.members.tripod.com/trainland/pecs.htm Scroll to the bottom and there are several lists.
We have a beta site running for communication and collaboration specifically designed for people with Autism, Asperger's, PDD etc.
OK- I LOVE this string!!!!! I have added it to my favorites. I was having a hard time with finding information that I needed, but this is an awesome resource. Especially the information about therapy dogs. Thanks so much to everyone who added information to this string! mommaniki Here is a link to the Autism Shop in Hopkins, MN: I just went there and it is AWESOME! They have the store online too- so you can have it shipped to you. Hi, I am new to the boards and I keep seeing "meh" what does that mean? Thanks Paisley Hello everyone. For more support and information whether its to share information and support or give it about Autism, Adhd and other co existing disorders, also come join us at WWW.ADHDAREUS.COM We are all in this together so the more support the better. Hope to see you there  Help.... 5 year old new to my life.... Uncontrolable banging.... walls, glass, tables, tvs, etc.... how to stop it or methods used to redirect behavior.... child just starting to verbalize.... couple of sounds if prompted.... understands when you say stop but goes right back to behavior.... any suggestions.... also trying to find support group in my area.... Heres my site about my son with autism - more about living with him than the clinical aspects or wonder cures - http://autism.cashhosters.com/_sgg/f10000.htm[QUOTE=justlearning] She's doing well on risperdal now and I'm doing a research paper on the safe and effective use of risperdal so I'm roaming about all over the net. Oh, she's gained 5 lbs a mo on it for 7 mos. From 93 lbs to 128 lbs at 5'1. I'm hoping she'll plateau, as the doctor says, soon. I am new to the boards and new to this very overwhelming world of Autism Spectrum Disorder. My son will be 3 in 2 weeks and has been diagnosed with ASD for about 5 months now, but we really knew something was wrong as early as 18 months. Our current peds Dr. knew nothing about the early signs of Autism and so he kept putting things off until DK (my son) turned 2 1/2. DK now gets 16 hrs a week on intervention (ABA) and 1 hr of speech, but this all ends in a few weeks when he transitions into the school dist program. Both my wife and I are doing everything we can and trying to learn as much as possible, but we really woudl like to find a support group that we could join or turn to for information, such as finding a new peds. dr. in uor area or diet suggestions. We live in a town called Rancho Santa Margarita, Ca. halfway between Los angeles and San Diego. Does anyone know of any support groups in that area? Look Up TACA-Now . They run quite a few meetings in Southern California. Costa Mesa is not that far. They have quite a few resources listed as well, many in Newport Beach, Irvine area. Their web page has got a lot of information. Good Luck Hi I am a mother of a son name Gabriel that just turned 8 he was recently diagnosed with combined type ADHD with PDD-NOS and I have been really looking for a way to comunicate with him on a level that he will understand. I stumbled onto this site and I found it to be very useful in understand what my son is going through I had no idea thanks for the info.Wow - awesome info. - thanks for all the links!  thanks for the info!This has been a popular and helpful thread to many "Meltdowns" -- the inside scoop (or rant) posted by stickboy26 What a wealth information! Thanks so much for putting this together!Hi. I am new here. I can't tell you how glad i am to have found this forum. And how much I have learned from reading the posts. Thank you thank you for sharing.
Welcome aboard!
All I can say is a million thank yous for all this info!!!!!!! I am so lucky to have found you all!!!!!!!!!
I have an 11 year old son who was diagnosed with Autism when he was 2 years old. Cameron received ABA for 7 days a week, 7hrs a day for the first three years of his diagnosis. Our lead therapist attended school with him full time for JK and SK and p/t for grade 1. When people meet him they do not know that he has Autism, the always compliment on his great personality, sense of humour and manners. Cameron has asked me on a few occasions if he's different, he also asks why he had therapists years ago, he thinks its because he was a bad kid. I want to reveal Cameron's diagnosis to him, but don't know how. He will not take is well, as a matter of fact his 13 year old sister is begging me not to tell him because she's worried he'll never be the same. His big brother (23) is the one that found this forum, please advise. Thanks Danielle [QUOTE=caminator]ICameron has asked me on a few occasions if he's different, he also asks why he had therapists years ago, he thinks its because he was a bad kid.I want to reveal Cameron's diagnosis to him, but don't know how. He will not take is well, as a matter of fact his 13 year old sister is begging me not to tell him because she's worried he'll never be the same. His big brother (23) is the one that found this forum, please advise. Thanks Danielle [/QUOTE] http://www.autism-pdd.net/forum/forum_posts.asp?TID=16063&am p;KW=b9st8&TPN=1 I am new here also, and just found this thread. I posted a thread about a school question yesterday. I have a 10-year-old son that shows a lot of tendencies towards being autistic. He has been diagnosed with adhd, and sensory integration disorder. I am in the process of trying to have him diagnosed / screened for autism, but seem to be in a run around between dr's offices and the insurance company. I want to scream at times because the insurance company said they don't cover any Neuropsychological testing , and I don't know is that the only kind of testing or is there something else I need to ask for?
Thanks! As a "newbie" member, I just wanted to say Thank You for all of your effortsin compiling the informational websites. As an Auntie, I am trying to assist my sister in getting the latest and best information to help get my nephew everything he DESERVES! Hi my name is Paul and I am autistic and I have been diagnosed autistic at the Norwood Clinic in 1961 and this is my first post. Cheers Paul [QUOTE=PersonChris]the ling that goes to The Do's and Don'ts after a diagnosis A print out for your family�s and friends (Thanks Karrie) does not go anywere, so where can th The Do's and Don'ts after a diagnosis be found now?[/QUOTE] Welcome! I have no idea where the thread went to on that particular subject but did find this article you may find helpful... http://www.expresshealthcaremgmt.com/20050715/diseasemanagem ent01.shtml (check out all the valuable info on this site through the link provided above)
Dos and don’ts for parents with children diagnosed with ASD Dos
Don’t
I'm glad I finally made the step and found my way here. I'm completely exhausted and will tell more about myself soon. ; )Oh heck, I'm not in Albania like my profile says; have to fix that!  Hello I am a mother of three girls and my oldest daughter 11 1/2 was diagnosed PDD-NOS in 2007. The major problem we are running into with her right now is school and aggressive behavior. I had to make a tough decision and place her in Camelot full time. When I have more time I will tell you more about my daughter. Thanks mom2grlz Hi - actually I introduced myself the other day, but wanted to add that I am worried that my 16 1/2 month old daughter might have Rett Syndrome. It sounds really scary. My son has not been diagnosed as autistic but seems very borderline to me - he is in PT and OT now. from reading this board, it seems pretty common to have more than one kid w/issues. I really thought that having a girl as our second, we wouldn't have to deal w/any of this delay stuff. Anyone else have both a boy and a girl with similar delays? ThanksHi - I am new to the spectrum, and finally found answers to my husband's quirky behaviors over 18 yrs, and my son's severe depression resulting from as. (Had I known earlier, maybe we could have prevented the hospitalizations etc) My son's dx came from a children's psychiatric hospital after 5 mos. of spiraling depression and my refuting other dr.'s mis-dx of schizophrenia, bipolar, conduct disorder, etc. (He'll be in residential treatment for 3-6 more mos.) My way of explaining this dx is, "It's like puzzle pieces sitting in front of me the whole time; the Dr. finally revealed the picture of the finished product so I can put the pieces together." Overall, my son 'seems' quite normal, but is not. Same goes with my husband. As a result, I have quite a few people who even refute this dx (including a young nurse). I know better. I live with them. I now have answers. I don't know where to start. I am a newly married, 31 year old SAHM of three. I have a 6 month old son, Anthony....a four year old daughter, Mariah...and a five year old step-son, Xjavier. So far my 6 month old and four year old seem to be developing right on track. My step-son has developmental/speech delays and we are trying to get him help. Last year he was diagnosed with ADHD by a developmental pediatrician and prescribed Focalin. He is EXTREMELY hyperactive. Looking back, I know see that this diagnosis was too rushed. Of course ADHD would explain the hyperactivity and inability to focus but what about the other speech/developmental delays? My husband and I started researching and feel strongly that Xjavier has Autism. There are too many symptoms to ignore: poor eye contact, hand flapping, walking on his toes, strict routines (lining up shoes/toys a certain way), screaming fits, playing with feces, crying without tears, injuring himself (he will tie belts/strings around his neck until he can't breathe), cannot carry on a conversation, though he is verbal, echolalia, and much much more. I am so frustrated because I am at home all day with the baby and my 4 year old daughter. I need help with Xjavier. I cannot take my eyes off of him for one moment. His behavior is getting worse. He is not sleeping much and that means no one gets any rest because he has to be supervised constantly. We are on a waiting list with a developmental pediatrician to get a formal diagnosis, but what do you do in the meantime??? We still give him Focalin on occassion to calm him down. The only time there is peace in my home is when Xjavier is asleep or out with his father. My daughter is trying to mimic his behavior and it is driving me absolutely nuts. All of this has driven me into a state of depression and frustration. I will need to seek counseling and possibly be medicated myself. I have a history of depression as well, and currently am suffering from post partum depression. I know they say God won't put more on you than you can bear, but I'm starting to question it. I am looking for a few people for some support and insight. Those who will not judge me for being angry, or for not wanting my world turned completely upside down because of my circumstances. How do you deal with a child that you cannot discipline whatsoever? He acts as if he is DEAF. Do you just let them do what they please? My patience is wearing thin. Please, I need help....My family is at stake here. Sincerely, Rainy Hello everyone. I just found this board when I was looking for answers after a particularly bad night with very little sleep. So here I go: My name is Claire, I am a stay-at-home mother of four children, the oldest (age 21) and youngest (age 12) having been diagnosed as autism spectrum disorder. Our other two children are 16 and 14. I homeschool all 4 children as this is much easier (I used to be a paid French teacher in our school system and our oldest son was so frustrated by the fact that he was not being understood, that his behaviour escalated to the point of pulling him out of school and teaching him at home instead. The others were always home educated. Our two sons are very limited in their verbal skills, the 12-year-old still needs help with toileting skills, and he still needs a nappy at night. Our oldest son has recently become very agitated and frustrated over the smallest changes in his "bedtime rituals" and he is keeping me up for hours until he gets things "just right". He has always shown an extreme rigidness and need for sameness but this has now changed to include tantrums with exagerated hand movement, jumping up and down and some high-pitched noises. Because my husband works outside the home and we have 3 other children sleeping on the same floor, I stay up with him and rub his back, trying to calm him down so he lets the others sleep. I am getting exhausted by this (did I mention I am also in the middle of menopause and I have recently had a bout of labyrinthitis (inner ear infection which affects energy levels as well as motor balance) ? Needless to say, I am looking for anything which might help me get some much needed zzzzzzzz. We have a doctor's appointment scheduled for him next month but being a brand new doctor, he will likely not cooperate at all (he takes forever to get comfortable with new people)
Any advice would be so greatly appreciated. So very glad to have found you all.
Many thanks. Claire in Canada Hi My name is Jen, I posted here once before. My almost 10 year old daughter Kate, was just diagnosed with : Asperger's, ODD, ADHD (combined type), and an unspecified mood disorder. So we are doing weekly therapy and DaytranaWelcome to the board everyone. Hi all!! don't forget if you have specific questions to post them in the other forums.. they'll get a response much faster that way!!! Hi everyone!I am new to posting but have been a lurker for quite some time. I am an SLP working in the public schools and come here to gain better insight on parent perspective. Just wanted to introduce myself! -Aisling Hello, My name is Brandie. I am married with 3 wonderful boys ages 9, 6, and 2 1/2. Two weeks ago we found out that our 6 year old has Tourette's Syndrome and my 2 year old was just diagnosed with AS,PPD. My 2 year old was born 5 weeks early and has been delayed since birth. Drew has had feeding/speech problems since birth. Drew never cooed or did anything at the time when other children develop. Drew has developmental aphasia, hypotonia of his mouth and body, and now AS & PPD. Our neurologist also suspects that our 9 year old might have Asperger's Disorder. Right now we are waiting for the hospital to call us to schedule the MRI and genetic testing for my 2 year old. The neurologist has also referred Drew to see a Gastroenterologist for his feeding problems. He wants him to have a swallow study done, just to make sure that there isn't anything else going on other than the low tone in his mouth. For the last 6 months Drew has been in our EI program and receiving Speech/Feeding Therapy. He has not made any progress with his words....but has made tremendous progress memorizing ASL (American Sign Language). He is slowly learning to communicate with signs. I am glad that I found this forum. I am still in shock over this dx. My dh and I are just taking it all in. I just wanted to say hi and thank you for this sort of forum. [QUOTE=roneydapony]Hi all!! don't forget if you have specific questions to post them in the other forums.. they'll get a response much faster that way!!! [/QUOTE] Dear Roney Hi I am the father of Nicole a daughter of 14 with aspergers and adhd , we were keen on chellation and other cures for ASPERGERS AND ADHD can you advice me ?? Mehernosh Shroff [edited for privacy]
My daughter, Emily, is 12 years old and has not been formally diagnosed. Her therapist suspects PDDNOS. She has always been very rigid and prone to temper tantrums, but speaks and interacts just fine here at home. She has been to the therapist 9 times and won't even look at him. No words. Teachers report that she isloates herself from other students and is extemely quiet and withdrawn. It seems as if her social behavior has worsened with adolescence. Does this ring a bell with anyone here? Thanks.
[/QUOTE]Hi I am the father of Nicole a daughter of 14 with aspergers and adhd , we were keen on chellation and other cures for ASPERGERS AND ADHD can you advice me ?? Mehernosh Shroff[/QUOTE] I have aspergers and other associated conditions one being ADHD so does my older son. I felt very sad reading your post to think that people want to change us instead of understanding... our biggest problem really is society not, or not wanting to understand and all the pointless fad treatments because of this. There's no scientific evidence that chelation therapy is an effective autism treatment. In recent years, some doctors and parents have recommended chelation therapy as a potential treatment for autism. Proponents believe that autism is caused by mercury exposure, such as from childhood vaccines. Chelation therapy supposedly removes mercury from the body, which cures autism. But extensive studies have revealed no evidence of a link between mercury exposure and autism. In addition, chelation therapy is not approved as an autism treatment and can be associated with serious side effects, including liver and kidney damage that can result in death. There is no cure for autism. As a result, unproven alternative therapies are often suggested to parents who — frustrated by the lack of effective medical treatment for autism — are desperate to find something that will help their children. However, in clinical studies, these alternative therapies are usually found to be ineffective and sometimes harmful. Talk to your son's doctor before starting any alternative autism treatment. Although no cure for autism exists, early behavioral and educational interventions can help children with autism improve their communication and social skills. Sometimes we do withdraw into our own world because others do not try to understand us and alienate us. Yes we do become frustrated and angry, but who would not when people keep trying to change what they do not understand, our symptoms are in fact a part of who we are.I was never happy, never fitted in this world until I was diagnosed myself last year - complete revelation, every think now makes sense and at last I can understand and be myself, now society in general is my biggest problem. If you really want to help someone on the autism spectrum read as much as you can by people on the autism spectrum, and embrace your unique child, we just see and think a little differently and can only be happy if allowed to be ourselves, would you like me to try and change you into some think you are not! Adolescence can become a very difficult time for these young adults, as peers may no longer be willing to tolerate someone who seems different. Moodiness, depression and anxiety can also develop in adolescence due to hormonal in balances, and the increased separation of the young adult and their peers. The age when they are trying to establish themselves in this world can be so different when no one seems to understand, which often leads to the child backing away from society in general. These children are often happier in their own space and this is ok to a point if have someone to understand them, nothing worse than someone trying to talk to them who does not understand themselves, child will withdraw more. Unfortunately there really are not enough professionals who really understand what it like being on the autism spectrum... to be able to help your child you need ton read and understand as much as you can yourself. Articles from people also on the autism spectrum.. This link may help a little, browse down to nothing wrong with our child, young adult etc...: http://asplanet.info/index.php?option=com_content&task=v iew&id=36&Itemid=73 Hi. I'm new here. My name is JHS, short for John H. Stubbs. I was born on September 5, 1988. I am currently 19 years old and I was diagnosed with Asperger Syndrome, which is a dash of Autism, at the age of 13. Anyways, that's it for me. Have a nice day! Hi everyone! My name is Diana and I'm a new teacher getting started studying the particular challenges surrounding children with autism/asperger's/pdd/nos and deafness. I'm very interested in working with music therapy with these children and also supporting their language through the use of American Sign Language, my one true love. :D Besides my hubby of course. :p Just thought I'd introduce myself. See you on the boards. P.s. The link for Autism and Deafness on the front page of the introduction post doesn't work. Does anyone have other links? (Maybe I'll post this question in another place too, since it doesn't seem appropriate for the intro thread.) ~Diana~ Hi everyone! I like to introduce myself. My name is Lee and we have a son who was diagnosed with PDD NOS when he was 18 months. He began his ABA Therapy Treatment 13 months ago. Today he is now 4 years old and started talking in 2 or 3 words and sometimes talks in complete sentence. As proud parent, it's tough sometimes to admit that your kid could be facing so many hurdles in life at such a young age. Fortunately we have received tremendous support from Pediatric doctors, state, and school district. With his therapy treatment one-on-one approach, it we do not pay a penny, its both subsidized by the state (CA) and our shool district. A program that would normally cost us $5000 a month which we do not have. Ever since he started ABA treatment his mannerism, behaviorism, and speaking ability has dramatic improved. But we know we still have a long way to go. But we are confident and have faith in this program that one day he will sit with the regulars. This fall he scheduled to attend 2 days a week (3 hours per day) in a regular pres-school setting. The rest of the day is spend on more treatment. One thing about our son, he is very happy, engaging, he looks when you call out his name, and very talkative. We don't really know what he is saying at times, but at least he tries a lot. I almost forgot to mention. We also have a daughter who is two half years old who doesn't have any sign of austism. Hello. I've just joined the board and wanted to introduce myself and tell alittle about my children. I'm Sheryl and I have two sons. They are identical twins and will be 5 years old this October. Both my sons were diagnosed with ASD when they were 3 years old, though at less than 2 years old I suspected it and couldn't get any validation from medical professionals. Little by little they showed more and more warning signs until by age three it was undeniable that they had Autism. We have been working hard since then and my sons have overcome so many things. Once my husband and I understood their learning style and how they ticked, we have been able to work with their PRE-K ESE teachers, various therapist in and out of school, behavior therapists and lots of trial and error to teach many skills that they didn't learn on their own. We encouraged them to speak with PECs pictures at age 3 and still use them now to help them say what is so difficult for them to say. They have acquired so much spontaneous, communicated and useful speech. When they started talking around two years old it was only verbal stimming, strands of cartoons they watched. They continued to verbal stim less and less and now its only about 10% stimming and the rest is appropriate speech. It wasn't until my sons were about 4 that they called me Mommy like other kids do. I feel fortunate and proud of them for the way they've come out of their shells little by little and into my world. It took a lot of me going into their world too and we have met somewhere in the middle. We still have much to do and many challenges to face in this world. I just try to keep a balance between loving my kids for who they are and trying to help them overcome (or embrace) their differences. I am here to share experiences and information and I'm always on a quest for more helpful information for my boys and other children like them.
Thanks for putting this list together for us. God Bless You ! Hi, my name is Barbara. I am 53 years old and grandmother to 7. The one that concerns me is my grandson Ian. He will be 4 years old on Aug 20. I have felt for a long time that he may be autistic. He didn't want to be held much. When he got a little older, he would push away. When he learned to crawl, he had a tendency to go to a wall and bang his head repeatedly. When he learned to walk steadily, he would run in circles, something he still does. He knows a few words, repeats what you say to him. He never smiled much as a baby and a toddler. He doesn't like to look people in the eye. He doesn't play very well with other kids. When he received giant Lego blocks, all he does is stack same size, same color, knocks them down, and start over again. Most of our family members have tried to talk to the parents, but my son thinks things like this are over-diagnosed. Ian is now starting to get violent with my son, punching him when he doesn't get his way. I am becoming concerned for the safety of his 5 month old brother. Is there any way I can work with Ian when he comes to visit that may help? Does anyone have any suggestions on how I might be able to convince my son that Ian needs help? My daughter-in-law is finally starting to see things, but still doesn't really consider autism. Thank you!Young children and very young children who exhibit many of the signs or characteristics of an Autism Spectrum Disorder can learn very good coping skills quickly. We have provided some practical, fun, and sometimes silly ways for you and your child to interact.-------------- micheel EDITED DUE TO INAPPROPRIATE CONTENT Right now I have games to teach emotion, categorization, prepositions, and books to teach "wh" questions plus some other stuff. It's all free. I take requests too. I'm always looking for new ideas of things to create. http://freeprintablefun.org/search/label/Free%20Printable%20 Learning%20Activities%20for%20Autistic%20Children
Just want o geet everyone hello. i am dspeately in need of friends who share smilar concerns about autism as i do. Just want to introduce myself as a newbie and say hello. I'm 34 and though I live a relatively "normal" life, I believe that I might be borderline autistic. I wrote a longer post on this in the adults forum, if anyone cares to take a look and answer me. Thanks.wow perfect, thanks for this! Just want to say "Hi" to all the members. It is a "WOW" feeling when I see some many active members sharing information on Autism online. Great place to be in! hi, forgive my lack of eloquence because i was stunned today. 5yr son sent him off to kindergarten, smart kid academically sound. always been a lil shy like me, he normally warms up and grows. has a hard time with change. 2 weeks today kindergarten teacher calls my wife on the phone says concerned he's high functioning autistic. He doesn't know hat to do in the class. e.g. doesn't know where to put homework, he hopped back to school from their walking field trip 2 day. didn't put his library book back in the right place, doesn't get the day-day steps that other kids are getting.
Said he seems comfortable but socially immature-btw is a summer birthday He is interacting making friends, again academically ok, top reading group. Just socially behind Wants us give another 2 weeks then assess. TA's who are college stuents saying the same since and ok because work at their school's autistic lab. I'm shocked, scared, mad everything. Just want to talk 2 someone advice needed
hello- I can understand why you would be feeling like you are. It is a natural reaction to be defensive when someone suggests something may be wrong with our children. The kindergarten teacher nor her teaching assts. are qualified to make any diagnosis regarding your son. That being said, they are doing the right thing if from their experience they feel there might be something that seems a little off. Take a breath. If you haven't seen any signs or red flags in five years and neither has your pedetrician, than in all likelyhood this will amount to nothing. Maybe your son is just a late bloomer. Maybe he is not paying enough attention to the directions of where things should go. Regardless, if in another two weeks he is still acting in a way that the teacher feels warrants an eval than I would let them do it. Should the eval show there is no problem just a (late bloomer) so to speak, that will put your and the teacher's mind to rest. If they deterime there is more going on you will be glad to know it and will be able to get the information you need to continue to support your son the best you can. Should you disagree with the results of the eval you can always have your son evaluated by someone else of your choosing. I am sorry that this teacher suggested autism right off the bat but I am sure it was not her intention to upset you unjustly. I'm sure she has your son's best interests at heart as I know you do. If you post this under the general forum you wil probably get alot of responses. Good luck and welcome to the site. ttfn [QUOTE=ernestpr]Hi I thought this might be a good way to welcome new members on the boardand help out other members by putting all the information together and hopefully have everything at the finger tips for the parents, caregivers, family members etc of a loved one newly diagnosed or anyone just searching for information that need some answers. Feel free to add other information you may have.. I know I haven't even begun to cover everything! But my hope is for it to help all who are searching for answers! CLICK HERE TO START http://www.autismtoday.com/commercial.htm WATCH the commercial.... (Thanks Cyndie) Have a fear or wondering about autism? Here are some informative links.... http://www.autism-pdd.net/autism-symptoms.html http://groups.msn.com/TheAutismHomePage/startpage.msnw http://www.autism-biomed.org/poster.htm http://www.msnbc.msn.com/id/6895311/ http://www.cdc.gov/ncbddd/autism/actearly/milestones_3months .html http://www.neurologychannel.com/autism/diagnosis.shtml http://www.raisingdeafkids.org/special/autism/index.jsp http://autism.about.com/cs/whatisautism/l/blcharac.htm http://www.cincinnatichildrens.org/health/info/mental/diagno se/autism.htm http://www.cdc.gov/ncbddd/autism/ http://www.childbrain.com/pddq5.shtml http://psychology.plebius.org/disorders/autism/4/diagnosis/ http://www.jeena.org/autism/tests.htm http://www.nationalautismassociation.org/treatments.php http://www.firstsigns.org/treatment/dx.htm What to expect from an Evaluation http://www.fetaweb.com/help/eval.expect.meyer.htm AND http://www.pedneuro.com/services.shtml (thanks Gabu) Wondering if it could be autism? Here are links to information about some onlne tests.... The tests are not ment to diagnose but to act as a guide and to give you information to discuss with your child's Dr. http://www.childbrain.com/pddq6.shtml http://depts.washington.edu/dataproj/chat.html CHAT checklist http://pediatrics.about.com/od/autism/l/bl_autism.htm http://autism.about.com/cs/medicaltreatments/a/txchecklist.h tm http://home.isoa.net/%7Enitetrax/cars.htm http://www.asaoakland.org/chat.htm http://www.neurotransmitter.net/pddst2.pdf http://www-personal.umich.edu/%7Epdpatel/DSM%20files/ABC_che cklist.pdf http://www.neurotransmitter.net/autismscales.html http://www.patientcenters.com/autism/news/diag_tools.html http://www.aspires-relationships.com/articles_dx_assessment. ...htm http://www.autism-pdd.net/forum/forum_posts.asp?TID=59&P N=4 Adults with Aspergers - What about you? http://www.iidc.indiana.edu/irca/generalinfo/standardtests.h tml DSM IV CRITERIA FOR Childhood autism, Asperger's syndrome, Rett's disorder, Childhood disintegrative disorder, PDD NOS http://www.childbrain.com/pddq3.shtml AFTER THE DIAGNOSIS TESTING http://www.greatplainslaboratory.com/autismrec.html#top The Do's and Don'ts after a diagnosis A print out for your family�s and friends (Thanks Karrie) Looking for information and ideas? Here are some links to help you.... http://www.support4hope.com/autism/autism_adults.htm ------------------------------------------------------------ ----------------------- Yellow Pages for Kids with Disibilities Advice for Parents of Young Autistic Children
This paper is geared toward parents of newly diagnosed autistic children and parents of young autistic children who are not acquainted with many of the basic issues of autism...
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Interview with Mitzi Waltz: Autistic Spectrum Disorders. Author-advocate Waltz, now studying at the Autism Research Unit, answers questions about the increasing number of diagnoses, potential link with immunizations, autism and genetics, current treatment research, and the impact on families.
PDD Connections WebRing Once I was new here and received messages from this board. I was diagnosed with Asperger-Syndrome. I wasn't an active member on this board lately. But I read with interest the majority of posts from concerned parents. Till I found this board I just saw the perspective of affected people. I thought a life with Asperger is difficult. Till I read about all the sorrows parents have with autistic children. You gave me a new perspective to look at this subject again. Parents: You are great! Between the lines I read how much you love your children. I put my message under this post, because after such a long time I have to introduce myself to this board again. I hope to read and learn more from you. Elisabeth Hi I am new to this but WOW so much info. I just read one parent talk about their child likes to "run free", boy do I know that. It was cute at first but at near 14, we are hoping he understands to "hide or cover up". He is the size of a 8 year old but is starting to show signs of pueberty(something I wasnt looking forward to), I have decided to homeschool this year because we were fed up with explaining our son after 10 years of school. It is going great and I love it. It does get expensive but thank God for internet. Mym son recieved next to none of speech and OT. they basically see him as , and have lableled him severely mentally retarded. It is sad to have that said but I met some wonderful people in Toronto who really understood my son and what I was going through. It is hard to believe but there are people who understand and care , I just wished that it hadn't taken 12 years to find them. Thanks for all the sites being posted about autism!Busby SEO Test
thank you so much for this information. and thank you for this forum. This is the best list I've seen in all my life. I will definitely pass this on to my Early Interventionist.
Hi all,this is Gomez.I am newbie to this site.Welcome to the forum.I am happy to be a part of this community. EDITED TO DELETE INAPPROPRIATE CONTENT Hello. I am new to this forum or website. I have a 16 year old son who was just diagnosed with autism,he also has learning disabilities. Although he was just "officially diagnosed" it was something we already new. He is a wonderful boy. I look forward to sharing my thoughts and concerns with you all, and also gain knowledge. Thank You, Candy
Hey guys, just thought Id say hello, Im new here. Lou. Hi everyone! Im new also and boydo you have a lot of links posted here but I hope i have more than enough time to process it through and through. Looks like this is my first time posting here. I'm Lisa and 44 years old. I'm new to this board but not new to autism. I have two daughters. Laura is 13 years old and she has autism and mental retardation. Rachel is 11 years old, and her only problem is being a "chatterbox".
Lisa C. Hello, I'm Deborah, mom to six. My youngest son has autism.I'm hoping someone can assist me with the search feature here. Are topics only searchable by subject. All my post body searches time out. Thanks.Sounds like your terms are too general ... you might jsut post a thread asking for info! [QUOTE=foxl] Sounds like your terms are too general ... you might jsut post a thread asking for info![/QUOTE] No, they are not. The search gives you the option to search message body, topic subject or user name. All of my message body searches are timed out. I was curious as to whether this was a forum issue, or something I'm doing incorrectly. Thanks again.If there are too many matches, then the search will time out. You could try searching topic heading or post a thread and someone will give you the info your after. Welcome! [QUOTE=kllylynn] If there are too many matches, then the search will time out. You could try searching topic heading or post a thread and someone will give you the info your after.Welcome! [/QUOTE] Nope, not a question of too many matches either. No search works (for me) when searching in message body. I was just curious if it worked for everyone else. Search terms I have used for message body are "mosaic" "gersh" " Long Island" and "lindner". Every one has timed out in a message body search.<solicitation solicitation solicitation  Thank you so much for all that information. Wow! My son, Harry, was diagnosed last year with PDD and has started kindergarten here in Indiana. I sent an email to his teacher explaining his diagnosis and his likes and dislikes. He's been in school about a month and a half and last week she got to see one of his "tantrums". I think she is just realizing how much a challenge it is going to be with Harry. We have a behavioral counseling session scheduled for December 11th. They have such a LONGGGG waiting list. Any suggestions for a newbie. I don't want him to be put into a category and treated differently. Mostly, my son is a sweetheart, but he has certain rigidities that can trigger a major meltdown. I started using the 1-2-3 Magic behavior modification. It seemed to work for a while. Any help would be appreciated.
Hello all, Just wanted to give a quick intoduction. I am Lisa, disabled (Lupus & many other conditions) Mom with 5 beautiful children. My youngest, Isaak (5 years old) has just been diagnosed with an Autism Spectrum disorder and ADHD. Testing is ongoing and we are not sure what type of Autim he has yet. The diagnosis has devastated us all but, we are starting the process of acceptance now. We always knew something was wrong but, chalked it up to ADHD since two of my other children have been diagnosed with it. My insistance for further testing unfortuneatly were ignored until he started kindergarten. We have since learned that many his behaviors are classic signs of Autism. Hindsight is always 20/20. He happens to attend the only school in the entire dictrict that has the ability to deal with special needs children. They caught it right off and fast tracked him into special classes to help him learn and excell. The progress he has already made in just a few short weeks is amazing. It's a 9 month wait to see a specialist for the "official" diagniosis but we are 100% sure that the school is right on the money with their observations. He certainly fits the profile to a tee. We cannot afford to wait until then (9 months) and we are very happy his school has their act together. I think my husband and I are having a harder time than Isaak is at this point. The worst part for us in the tantrums, self mutulation & attempts to hurt other people that he engages in. We have tried ignoring these episodes but, that only escalates it. We have tried talking with him but, he can't concentrate and just doesn't understand & continues to act out violently. I have resorted to gently restaining him, by hugging and/or rocking him. Rubbing his head & singing while doing this also seems to help until it passes. He has already seriously injured himself & even knocked out one of his teeth during a severe episode. It's just too hard to sit there and do nothing while your child is hurting themselves. Despite all we have been through, we love him with all our hearts and are willing to do what it takes to make him better. I have done a lot of reading at the site and the information provided is excellent. It's really nice to have a place to go where we are understood and supported. Thanks, Lisa Wow! THank you for all of that info! It will take me forever to go through all I want to see.Really quickly though, can anyone give me info on financial aid. I saw the SSI link and we have gone that route and are in the process of getting approved for a small amount of money. But that will just cover extra therapies, gymnastics class, swimming therapy, etc. Does anyone know of anything else? We struggle since I can only work very part time from home because of our 3 year old's needs. Is there any program or aid that accounts for one parent having to stay home? WOW! what an incredible wealth of information. Every possible query is there! Thankyou so much Michelle. Suzi the abbreviations you were after: NT = Neurotypical DS = dear son DX = diagnosis Health guidelines for children and adults: http://www.health.gov/dietaryguidelines/dga2005/document/htm l/chapter2.htm High dosages of magnesium, the side effects, how much you would have to really give over a day: http://www.patentstorm.us/class/424/681-Magnesium_chloride.h tml Definitions for abbreviations: http://www.autism-pdd.net/forum/forum_posts.asp?TID=731& PN=1 Do's and Don'ts Online Thread: http://www.autism-pdd.net/forum/forum_posts.asp?TID=981& KW=do%27s+and+don%27ts+online A disclaimer from the Autism Society of Minnesota webpage, read it very carefully!!!!!!!!! NOTE: AuSM's World Wide Web page provides links to the Autism Society of America and other advocacy organizations on the world web. Links should not be construed as an endorsement, explicit or implied, by this chapter. Nor should the information stated on the parent page, etc. be used solely on the basis of what is written here. You should always consult the proper medical advice. Parents and professionals are encouraged to investigate thoroughly the various options available within the autism community in order to determine which are appropriate for the person with autism, based on his or her individual needs.
Tammy PDD vs. ASD? to learn about Pervasive Developmental Disorders or Autism Spectrum Disorders
Attorneys Who Represent Parents of Children with Disabilities Has a search state by state. WARNING!!!!!!!!!! STATES ARE NOT IN ALPHABETICAL ORDER!!!!!!!!!!!!! Tammy Indicators of Normal Development Recognizing Autistic Tendencies PDD Main Page Stress induced non-epileptic seizures http://www.autism-pdd.net/forum/forum_posts.asp?TID=1053& ;PN=10 Tammy Links for autism organizations specific to Wisconsin. http://www.friendsofautism.org/ http://www.wiautism.com/index.php (This is a autism specific research/therapy center....they will do evals and such for other residents besides Wisconsin ones) http://www.dhfs.state.wi.us/bdds/autism/ (waiver program that pays for therapy) AUTISM Listing of Ohio Summer and Year Round Programs For Children With Disabilities http://www.ocali.org/au_camps.html
FREE or NEARLY FREE PRESCRIPTIONS https://www.pparx.org/brochure.pdf GO HERE FOR MORE INFO AND A DROP DOWN MENU OF ALL 50 STATES AND DC https://www.pparx.org/Intro.php Thank You to all who have participated with info releated to these threads.... FINDING DOGS FOR AUTISTIC CHILDREN Thank you for the information.Hello everyone! I am new to the list, and would like to take the time to introduce myself. My name is Matthew Bowerman, and my wonderful wife is named Kelly. We have two sons; the eldest is Perrin at seven years old, and the youngest Benjamin at three years old. Perrin was diagnosed with PDD at 2 ½, and later diagnosed with Autism around the age of five. Perrin is a high functioning autistic, and a wonderful son, and big brother. Perrin has many social problems within our culture, chief of which is language development. Perrin will only eat specific foods, and goes through a copping hierarchy of actions when uncomfortable. Perrin memorizes whole tracts of movie dialog, as well as songs and repeats these to comfort himself in times of stress. We have a hard time keeping clothes on him at home, as he loves to run free. I believe he does not like the constriction of clothing. Perrin will not eat vegetables, or most meats. Perrin will eat oatmeal, sugared cereal, yogurt, Corn dogs (picks the cornmeal off), plain franks, McDonalds Chicken nuggets, most french-fries, McDonalds Hash browns, cookies, most sodas, Juice, Teas, chocolate milk, Slim Fast, Potato Chips, Soft Serve Ice Cream, most kinds of Candy, Bananas, and Apples. We give him multi-vitamins to help balance his limited diet. We are starting him on a leaching process to remove possible Mercury poisoning, as he did not show signs of any problems until his immunizations. Well that’s all for now.  Choose by first letter: Choose by country:
Hi!! i'm new here..so don't really know how to use this forum yet..hope I do this right!! I'm the mom of a 5 yr old w/Aspergers...was dx at the age of 3 and1/2...just looking for others that have the same issues with their child/children..I have alot of support and am member at different AS sites...but this one looked interesting..and thouhgt maybe i'd join another one...i'm up for making new friends!! I live in the Toledo Ohio area..so if theres anyone from the Toledo area i would love to hear from ya!! HOLY WOW is that a lot of informational links! And to think of how much time I wasted on google....Thank you all...This will take some time to get through :) that is excellent - wish I had all that years ago before internet! Here are a couple South Dakota ones :)
and my fav story was this one when ds was diagnosed... was one calle trip to beirut...but it's not online tonight here's the page just in case http://www.bbbautism.com/beginners_beirut.htm
wow thank you soooo much! i thought i had done my research, you have opened sooo many new window for me. what a help! kate Social Security Online Locator http://s3abaca.ssa.gov/pro/fol/fol-home.htmlHiI am A mom of an autisc child [QUOTE=ernestpr] Hi I thought this might be a good way to welcome new members on the board and help out other members by putting all the information together and hopefully have everything at the finger tips for the parents, caregivers, family members etc of a loved one newly diagnosed or anyone just searching for information that need some answers. Feel free to add other information you may have.. I know I haven't even begun to cover everything! But my hope is for it to help all who are searching for answers! [/QUOTE] This thread was intended for welcoming newbies to the board and having valuable links available... It would be appreciated if we could stick to posting links so newbies and members in general don't have to weed through other things to find resources and links. Thank You! Felt this was important to have her in the newbies thread to remind everyone to weigh all risks and think clearly when deciding on a new treatment... remember the ol rule of thumb... If it sounds too good to be true it generally is.... http://autism.about.com/od/treatments/a/snakeoil.htm WARNING !!! Fake Autism "Cures" on the Marketfrom Floyd Tilton Parents BewareFor years, people with chronic, incurable illnesses have been easy prey for the con man and medical quack. These unscrupulous "snake oil" salesmen have made millions of dollars off of the pain and suffering of loved ones and patients. They know that where there's an absence of hope, there's money to be made, and like vultures, they circle their prey and then swoop down to devour them. Now these individuals are circling the autism community, looking for easy prey. They realize that many parents of children on the autism spectrum are so desperate that they will try anything in an attempt to help their child. On June 29, 2000, the "Las Vegas Sun" reported that a Nevada company was charged with selling adulterated, misbranded and new and unapproved drugs, improperly acting as pharmacists, and false advertising on their Internet website. As autism gets more publicity in the media, you can be assured that those who want to make a killing on "fake cures", will discover the desperation of some parents, and the number of cases such as this will increase. It's time for each of us affected by autism spectrum disorders to take precautions to make certain that we do not become victims in our search for a cure. There are several things that you can do to protect yourself and your child.
Of course, there are legitimate companies that sell pharmaceuticals over the Internet, but these will not be afraid to answer your questions and they will invite your investigation of them. They have nothing to hide. They can supply credentials, references, customer lists and other things to prove their legitimacy. The con man, however, will try to avoid giving specific information that can be checked by the customer, since they would be found out if they were investigated. A little time on your part will pay big dividends as you seek to help your child. Remember, there's no rush to make a decision. It won't make any difference if you wait a few days to start a treatment plan. The treatment that will work on Tuesday will work just as well if it begins on Friday. The extra time to investigate may be what you need to avoid being the victim of fraud and dashed hopes and worst of all, damaged health I found a great website for deep pressure activities for kids. It might give us all some new ideas. Deep Pressure and Heavy Activities for School Age Children http://www.coping.org/intervention/sensory/heavyactiviti.htm ~Brooke~ [QUOTE=2bsybys]i found this great site http://www.roadid.com/id.asp I kept looking for a great id. my son could wear incase he got lost or ran away. which he does. most children with sensory issues like my son would not wear a bracelet. so i found this one and it goes on thier shoe. i put the crutial info needed and the first line says i have autism! [/QUOTE] http://www.untangleautism.org/
Michelle thought this site should be added here. It may help someone, I hope so! I know that if you are new to ASD, it can seem so overwhelming! Dont give up looking!!!! You can do it and this board is a great place to find info and to vent! |
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