For Newbies to our Forums | Autism PDD

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Hi I thought this might be a good way to welcome new members on the boardand help out other members by putting all the information together and hopefully have everything at the finger tips for the parents, caregivers, family members etc of a loved one newly diagnosed or anyone just searching for information that need some answers. Feel free to add other information you may have.. I know I haven't even begun to cover everything! But my hope is for it to help all who are searching for answers!

CLICK HERE TO START http://www.autismtoday.com/commercial.htm WATCH the commercial.... (Thanks Cyndie)

Have a fear or wondering about autism? Here are some informative links....

http://www.autism-pdd.net/autism-symptoms.html

http://groups.msn.com/TheAutismHomePage/startpage.msnw

http://www.autism-biomed.org/poster.htm

http://www.msnbc.msn.com/id/6895311/

http://www.cdc.gov/ncbddd/autism/actearly/milestones_3months .html

http://www.neurologychannel.com/autism/diagnosis.shtml

http://www.raisingdeafkids.org/special/autism/index.jsp

http://autism.about.com/cs/whatisautism/l/blcharac.htm

http://www.cincinnatichildrens.org/health/info/mental/diagno se/autism.htm

http://www.autism.about.com/

http://www.cdc.gov/ncbddd/autism/

http://www.childbrain.com/pddq5.shtml

http://psychology.plebius.org/disorders/autism/4/diagnosis/

http://www.jeena.org/autism/tests.htm

http://www.nationalautismassociation.org/treatments.php

http://www.firstsigns.org/treatment/dx.htm

What to expect from an Evaluation     http://www.fetaweb.com/help/eval.expect.meyer.htm

AND   http://www.pedneuro.com/services.shtml  (thanks Gabu)

Wondering if it could be autism? Here are links to information about some onlne tests.... The tests are not ment to diagnose but to act as a guide and to give you information to discuss with your child's Dr.

http://www.childbrain.com/pddq6.shtml

http://depts.washington.edu/dataproj/chat.html  CHAT checklist

http://pediatrics.about.com/od/autism/l/bl_autism.htm

http://autism.about.com/cs/medicaltreatments/a/txchecklist.h tm

http://home.isoa.net/%7Enitetrax/cars.htm

http://www.asaoakland.org/chat.htm

http://www.neurotransmitter.net/pddst2.pdf

http://www-personal.umich.edu/%7Epdpatel/DSM%20files/ABC_che cklist.pdf

http://www.neurotransmitter.net/autismscales.html

http://www.patientcenters.com/autism/news/diag_tools.html

http://www.aspires-relationships.com/articles_dx_assessment. ...htm

http://www.autism-pdd.net/forum/forum_posts.asp?TID=59&P N=4

Adults with Aspergers - What about you?

http://www.iidc.indiana.edu/irca/generalinfo/standardtests.h tml

http://www.forepath.org/

DSM IV CRITERIA FOR Childhood autism,  Asperger's syndrome, Rett's disorder, Childhood disintegrative disorder, PDD NOS  http://www.childbrain.com/pddq3.shtml

AFTER THE DIAGNOSIS TESTING http://www.greatplainslaboratory.com/autismrec.html#top

The Do's and Don'ts after a diagnosis A print out for your family�s and friends  (Thanks Karrie)

Looking for information and ideas? Here are some links to help you....

http://www.support4hope.com/autism/autism_adults.htm

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Yellow Pages for Kids with Disibilities
Separate listings for each state and territory, Disability information groups, Evaluators, Tutors, Support groups, Advocacy groups, and State agencies...  

This paper is geared toward parents of newly diagnosed autistic children and parents of young autistic children who are not acquainted with many of the basic issues of autism... Author-advocate Waltz, now studying at the Autism Research Unit, answers questions about the increasing number of diagnoses, potential link with immunizations, autism and genetics, current treatment research, and the impact on families.

Support and Advocacy

PDD Connections WebRing
This is the home page for a WebRing (web sites linked one to another, as in a circle) designed to help people find useful information about pervasive developmental disorders. Topics include a definition of autism, pervasive development disorders, and related resources. This WebRing is helpful for anyone living with, or trying to understand a child with ASD.

Research and Testing Facilities

Medication Reference
Describes the medications that may be prescribed for ASDs.

Supplement Reference
Great resource for nutritional supplements and herbal remedies pertinent to ASDs

Autistic Spectrum Disorders is a new book by Mitzi Waltz, a revised and updated edition of Pervasive Developmental Disorders

The Diagnostic Merry-Go-Round. The diagnosis of ASD is usually a frustrating process of diagnosis by elimination, after a range of specified conditions in the autistic spectrum and related conditions are ruled out.

Getting a Diagnosis: Starting with a Pediatrician. The journey to a diagnosis of ASD can begin in different ways, but for most it starts in a pediatrician's office.

Tips for Daily  Family Life. There are a lot of things about raising a child with ASD that teachers, therapists, and doctors don't know much about. Hints from parents about daily life, including tips on haircuts, bathing, clothing, selecting furniture, and safety precautions.

Record Keeping. Some advice on what records to keep, and how.

Stresses on Families. This article shares some problems of families under stress and methods for coping. Problems addressed include withdrawal or overinvolvement by a parent, effect on siblings, isolation, finding the right therapist, separation and divorce, single parents, non-custodial parents, and adoption and foster care.

Parenting: Disciplining a Child with PDD. Whole families are affected by PDDs. This article focuses on discipline issues: how do you respond when "normal" parenting advice may not apply?

Direct and Indirect Financial Support for Families. Some programs are available that may provide you or your family with financial support. Even though the amounts may be small, they may allow you to stretch already strapped resources.

After an IEP is in Place: Educational Issues. Your job in helping your child become educated in school doesn't end once you have an educational plan in place. This article addresses issues such as: monitoring progress, extended school year services, dealing with behavioral dilemmas, suspension and expulsion, 504 plans, taking on the school system, private schools, homeschooling, and transition planning

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Wondering about the differance in ASD's? Here are links to help guide you....

Low / High Functioning Autism Please Read

http://www.msnbc.msn.com/id/6895447/

http://info.med.yale.edu/chldstdy/autism/aspergers.html

http://www.answers.com/autism+spectrum+disorder&r=67

http://www.wrightslaw.com/info/autism.index.htm

http://www.answers.com/topic/pdd-not-otherwise-specified?hl= pdd

http://www.answers.com/topic/pdd

http://www.answers.com/topic/pervasive-developmental-disorde r?hl=pdd

http://www.drspock.com/article/0,1510,5473,00.html?r=related

http://www.autism.org.au/UNDERSTANDING%20DIAGNOSIS.htm

http://www.brighttots.com/Childhood_Disintegrative_Disorder. html

http://www.udel.edu/bkirby/asperger/aspergerscaleAttwood.htm l

MEDICATION & SUPPLEMENTS

Common Medications Used To Treat Autism

Medications Information

http://pediatrics.about.com/od/autism/a/05_autism_rx.htm  - different treatments & Meds

Risperdal and the Aggression of Autism

Risperdal

Clonidine

Supplements

Want the facts or some general info? Here are links for that...

Autism In The News LINKS Galore!

http://www.medicinenet.com/script/main/forum.asp?articlekey= 13881

http://www.parents.com/articles/health/5716.jsp?page=1

http://www.communityinclusion.org/publications/pddbook.html

http://maapservices.org/MAAP_Sub_Find_It_-_PDD_Articles.htm

http://groups.msn.com/TheAutismHomePage/echolaliafacts.msnw

http://autism.about.com/cs/whatisautism/a/autismfaqtwo.htm

http://www.insidethebubble.co.uk/articles.php

http://www.autismweb.com/

http://www.irsc.org:8080/irsc/irscmain.nsf/cat?readform& cat=Autistic+Spectrum+Disorders&type=Web+Pages

http://www.msnbc.msn.com/id/6895311/

http://www.msnbc.msn.com/id/6895447/

http://www.ausm.org/Information/General/testinfo.htm

http://www.autism.org/adviceforparents.html (Thanks Jean)

http://www.hhrehab.org/childservices/autismservices/Default. htm

http://www.rainbowpediatrics.net/faq/7.21.html

How Can A Parent Help?

Extraordinary Parenting - Autism 

Cartoons shed light on autism

Pathways to Progress .....

Explaining A Diagnosis AND  how to tell others about the diagnosis

Sibling Help -- http://www.autism.org/sibling/sibneeds.html

The Discovery Of "Aspie" Criteria

Savant Abilities. (Thanks Sarah)

Head Circumference / Autism

http://www.cheapceus.com/Autism_05.html   (Thanks Jean)

Autism / Mercury / Metals / Chelation

http://www.askdrsears.com/faq/mc3.asp Can MMR be given separately?

http://www.autismmedia.org/media1.html where to find the MMR separate

Banning Mercury In Vaccines  

support removal of thimerosal from shots

http://www.thehealthcrusader.com/pgs/excalibur/article_2005_ 03_17_1401.shtml  Scroll 2/3 way down Thimerosal Is Still In Vaccines

And Just a reminder........ School Vaccines NOT Mandatory

Reduce Your Stress Level

Potty Training

Play

http://autism.about.com/cs/adadsjournal/a/movingjournal.htm  moving tips

Speech Delays  and Communication

COMMON CO-OCCURRING CONDITIONS IN AUTISM Pages 1 2

Changes in Routine Equals Changes in Behavior

Behaviors

Behavior modification controlling tantrum

Autism Service Dogs of America

Autism Business Cards 4 Public Awareness

Calming Activities

SIBLINGS OF INDIVIDUALS WITH AUTISM/PDD

Find HARD TO FIND T shirts here...  http://store.yahoo.com/stylinonline/

SAFTEY ITEMS

Safety Stickers - http://www.unlockingautism.org/detail.asp?PRODUCT_ID=safetys ticker

Home Door / Window Alarms

http://www.homesecuritystore.com/ezStore123/DTProductList.as p?p=2_1_1_1_0_0_118&engine=adwords!276&keyword=%28 do or+alarms%29&match_type =

http://store.yahoo.com/nextpowerusa/fial8wiwidoa.html

http://www.janet1.freeuk.com/

http://www.spymaster.com/home.door.protection.html

http://www.globalsources.com/manufacturers/Door-Alarm.html

Kid Alarms

http://www.ion-kids.com/ 

 http://www.brickhousesecurity.com/childsafety.html

http://shopping.yahoo.com/search;_ylc=X3oDMTFjdDZpbGpvBF9TAz k2MDc5MjYwBGsDY2hpbGQgbG9jYXRvcgRzZWMDa2IEc2xrA3RpdGxl?p=c hi ld+locator

http://www.safetydefenseproducts.com/childguard.htm

http://www.itave.com/smart_guard.html

911 GPS Child Watch

http://www.hardwares.globalsources.com/si/6007000636832/yste ch.co

Medical Alert

http://www.mypreciouskid.com/medical-id-bracelet.html

http://www.lifejewelry.com/

http://www.hahoriginals.com/catalog/default.php?cPath=66_63& amp; amp; amp; amp; amp;osCsid=7b511578ed6fdb5be67184da2d0a4bed

http://www.laurenshope.com/

http://www.n-styleid.com/

http://www.medicassist.com/

http://www.medicid.com/

http://www.medicalert.org/home/Homegradient.aspx

http://www.bindependent.com/hompg/bi/bindep/store/aisles/gai ncontrol/medmanageprod/idjewelry.htm

http://www.jewelbasket.com/medical-alert-id-bracelets.html

http://www.americanmedical-id.com/home/?usersession=931a85b3 5c9beea0b42f659b165dcda6

http://www.medicalert.org/home/Homegradient.aspx

School related

Protection and Advocacy

Special Ed rights for parents and Kids

http://www.bbbautism.com/vol_2_issue1_iep.htm - ***WONDERFUL LINKS!!!!

Writing IEP�s For Success

http://www.dredf.org/

www.wrightslaw.com

http://wrightslaw.com/info/esy.index.htm  - Extended School Year

Building a Better Homework System

Autism Education Network

A Guide To Letter Writing

What Is An IEP?

MultiFactored Evaluations

Whose IDEA Is This?

10 common IEP mistakes

Specific Disability / Class accommodation

Instructional Methods / Accomodations

Programming / Teaching

Tips for Teachers

Back 2 School Tips 4 Special Needs Kids

Advocating

iAbida Special Needs Education

Paraprofessionals

Rapid Prompting Method severely autistic

http://millermethod.org/

http://www.autismtreatmentcenter.org/contents/about_son-rise /what_is_the_son-rise_program.php

Activities to Improve Learning through ..

Fun Educational Activities &More For Kids

Teaching / Learning Related

http://www.elliecards.com/  - elliecards� are a complete set of picture cards intended as an augmentative communication system for young children with special needs. Designed to be used for children with autism, speech disorders, and various learning disabilities, elliecards� are an invaluable learning tool for parents, therapists and educators.

Created by parents who had little success using other picture card systems on the market, this product uses photos that are realistic to everyday life, come laminated and completely assembled in an easy-to-use binder.

http://www.autismteachingtools.com/

http://www.otawatertown.com/toylist.html

http://www.do2learn.com/

BEHAVIOR RELATED

http://rsaffran.tripod.com/aba.html

http://www.christinaburkaba.com/History.htm

http://www.brighttots.com/aba_therapy.html

http://www.redandgreenchoices.com/about.htm

http://www.bia4autism.org/

http://www.wrightslaw.com/info/autism.methods.compare.pdf

http://www.polyxo.com/aba/

http://www.easychild.com/parentingclick2.htm

http://www.wrightslaw.com/news/2002/jaynes.tarkan.nytimes.ht m

Speech Related

Signing   (Thanks Anne)

Pecs Info.... (Thanks Gabu)

http://www.polyxo.com/visualsupport/pecs.html

http://www.pecs.com/

http://www.tacanow.com/pecs.htm

http://www.cesa7.k12.wi.us/sped/autism/assist/asst10.htm

Echolalia - http://www.autisticsociety.org/modules.php?name=Encyclopedia &op=list_content&eid=36

Echolalia - http://www.answers.com/topic/echolalia

Echolalia - http://www.utdallas.edu/~rollins/A_I/echo.pdf

ADOS Facts - http://www.wpspublish.com/Inetpub4/w090205.htm

PRT - http://autismone.org/AutismOne2004/presentations/45%20Koegel %20Robert%20and%20Lynn%20Koegel%20-%20sent.doc

PRT - http://www.autismteachingtools.com/page/bbbbfg/bbbbqc

PRT - http://www.dbpeds.org/articles/detail.cfm?TextID=229

Testing Info - http://www.ausm.org/Information/General/testinfo.htm

Vocabulary Videos for Autistic Toddlers
The Vocabulary Builder video series has proven to be very effective for toddlers with language delays due to autism. Click here to read what parents have to say about these videos.
Sponsored by: http://www.babybumblebee.com

ABA Videos - This service incorporates the strategies of video modeling and Applied Behavior Analysis into an educational tool to be used by children, parents, educators and Paraprofessionals in the form of video. Video modeling provides children with the skills to create, improve and enhance receptive and expressive skills.

TEETH GRINDING

http://www.dentalarticles.com/reader/pt12.htm  

http://www.ncrdoctors.com/ncr_helps_conditions/ncr_articles_ teeth_grinding.html

http://www.doctorndtv.com/topics/detailtopics.asp?id=506

This is questionable.... http://www.autism.org/rett.html

FEEDING ISSUES

Sensory Integrative related feeding probs

Functional Feeding Issues in Autism Pages 1 2

g/f c/f diet Pages 1 2 

The Gluten/Wheat Free Guide to Eating Out - A new book on the market called "The Gluten/Wheat Free Guide to Eating Out" with over 50 national/regional restaurants' gluten and wheat free menu items.

SENSORY ISSUES

Sensory Integration - Must Read

How to know if its sensory / What to do

Sensory Defensiveness & Sensory Diet

Sensory Integration & Teaching Strategies

WEIGHTED PRODUCTS  

Vests

http://www.specialkidszone.com/Product_Level1.asp?CategoryID =38

http://www.beyondplay.com/CATALOG/SEN3.HTM

http://www.calmcomforts.com/vest/vests.htm

http://www.comeplaytoys.com/kids/CPM-070.HTM

http://members.aol.com/encourmin/autism2.htm

http://www.otvest.com/

http://www.theraproducts.com/index

http://www.pfot.com/ShowProducts.php?interest=Sensory

http://www.saltoftheearthweightedgear.com/vestpage.html

http://www.myweightedblankets.com/vests

http://search.ebay.com/weighted-vest_W0QQfkrZ1QQfromZR8

http://www.saltoftheearthweightedgear.com/index.html

Blankets and Other

http://www.specialkidszone.com/Product_Level3.asp?ProductID= 1368

http://www.beyondplay.com/CATALOG/SEN3.HTM

http://www.calmcomforts.com/blanket/blankets.htm

http://www.theraproducts.com/index/page-catalog/main-8161/su b-8289/

http://www.saltoftheearthweightedgear.com/fabricspage.html

http://www.weightedblanket.net/

http://www.myweightedblankets.com/pricing___orders

http://www.ikea.com/webapp/wcs/stores/servlet/ProductDisplay ?catalogId=10101&storeId=12&productId=16269&la ng Id=-1&parentCats=10107*10210     (Hanging Seat)

CATALOGS for Special Needs (and sites to order from)

http://www.otawatertown.com/resources.html

http://www.pfot.com/ShowProducts.php?interest=Sensory

http://www.specialkidszone.com/

http://www.beyondplay.com/index.htm

http://www.theraproducts.com/index

http://www.specialneedstoys.com/

http://www.stars4kidz.com/

http://www.superduperinc.com/catalog.htm

http://www.difflearn.com/

RESOURCES

Misc resources listed by state --  http://www.autism-pdd.net/resources-by-state.html

State Specific Yellow Pages

Autism Resources In Canada

Respite Service Locator

Protection and Advocacy

National