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Hi I thought this might be a good way to welcome new members on the boardand help out other members by putting all the information together and hopefully have everything at the finger tips for the parents, caregivers, family members etc of a loved one newly diagnosed or anyone just searching for information that need some answers. Feel free to add other information you may have.. I know I haven't even begun to cover everything! But my hope is for it to help all who are searching for answers!

CLICK HERE TO START http://www.autismtoday.com/commercial.htm WATCH the commercial.... (Thanks Cyndie)

Have a fear or wondering about autism? Here are some informative links....

http://www.autism-pdd.net/autism-symptoms.html

http://groups.msn.com/TheAutismHomePage/startpage.msnw

http://www.autism-biomed.org/poster.htm

http://www.msnbc.msn.com/id/6895311/

http://www.cdc.gov/ncbddd/autism/actearly/milestones_3months .html

http://www.neurologychannel.com/autism/diagnosis.shtml

http://www.raisingdeafkids.org/special/autism/index.jsp

http://autism.about.com/cs/whatisautism/l/blcharac.htm

http://www.cincinnatichildrens.org/health/info/mental/diagno se/autism.htm

http://www.autism.about.com/

http://www.cdc.gov/ncbddd/autism/

http://www.childbrain.com/pddq5.shtml

http://psychology.plebius.org/disorders/autism/4/diagnosis/

http://www.jeena.org/autism/tests.htm

http://www.nationalautismassociation.org/treatments.php

http://www.firstsigns.org/treatment/dx.htm

What to expect from an Evaluation     http://www.fetaweb.com/help/eval.expect.meyer.htm

AND   http://www.pedneuro.com/services.shtml  (thanks Gabu)

Wondering if it could be autism? Here are links to information about some onlne tests.... The tests are not ment to diagnose but to act as a guide and to give you information to discuss with your child's Dr.

http://www.childbrain.com/pddq6.shtml

http://depts.washington.edu/dataproj/chat.html  CHAT checklist

http://pediatrics.about.com/od/autism/l/bl_autism.htm

http://autism.about.com/cs/medicaltreatments/a/txchecklist.h tm

http://home.isoa.net/%7Enitetrax/cars.htm

http://www.asaoakland.org/chat.htm

http://www.neurotransmitter.net/pddst2.pdf

http://www-personal.umich.edu/%7Epdpatel/DSM%20files/ABC_che cklist.pdf

http://www.neurotransmitter.net/autismscales.html

http://www.patientcenters.com/autism/news/diag_tools.html

http://www.aspires-relationships.com/articles_dx_assessment. ...htm

http://www.autism-pdd.net/forum/forum_posts.asp?TID=59&P N=4

Adults with Aspergers - What about you?

http://www.iidc.indiana.edu/irca/generalinfo/standardtests.h tml

http://www.forepath.org/

DSM IV CRITERIA FOR Childhood autism,  Asperger's syndrome, Rett's disorder, Childhood disintegrative disorder, PDD NOS  http://www.childbrain.com/pddq3.shtml

AFTER THE DIAGNOSIS TESTING http://www.greatplainslaboratory.com/autismrec.html#top

The Do's and Don'ts after a diagnosis A print out for your family�s and friends  (Thanks Karrie)

Looking for information and ideas? Here are some links to help you....

http://www.support4hope.com/autism/autism_adults.htm

------------------------------------------------------------ -----------------------

Yellow Pages for Kids with Disibilities
Separate listings for each state and territory, Disability information groups, Evaluators, Tutors, Support groups, Advocacy groups, and State agencies...  

Advice for Parents of Young Autistic Children
This paper is geared toward parents of newly diagnosed autistic children and parents of young autistic children who are not acquainted with many of the basic issues of autism...
------------------------------------------------------------ ---------------------------
 
Interview with Mitzi Waltz: Autistic Spectrum Disorders. Author-advocate Waltz, now studying at the Autism Research Unit, answers questions about the increasing number of diagnoses, potential link with immunizations, autism and genetics, current treatment research, and the impact on families.
 
  • Autistic spectrum disorders
  • Books by adults with ASDs
  • Children's books
  • Websites about ASDs
  • General disability
  • Health care and insurance
  • Parenting and siblings
  • Special education
  • Childproofing
  • Special-needs clothing
  • Specific therapeutic interventions
  • Transition planning and adult issues

Support and Advocacy

  • National autism/ASD organizations
  • Online support groups
  • Related conditions
  • General special needs
  • Legal advocacy

PDD Connections WebRing
This is the home page for a WebRing (web sites linked one to another, as in a circle) designed to help people find useful information about pervasive developmental disorders. Topics include a definition of autism, pervasive development disorders, and related resources. This WebRing is helpful for anyone living with, or trying to understand a child with ASD.

  • Diagnostic Tools
    • The Autism Research Institute's Form E-2 Check List
    • The Childhood Autism Rating Scale (CARS).

    Research and Testing Facilities

    Medication Reference
    Describes the medications that may be prescribed for ASDs.

    Supplement Reference
    Great resource for nutritional supplements and herbal remedies pertinent to ASDs

    Autistic Spectrum Disorders is a new book by Mitzi Waltz, a revised and updated edition of Pervasive Developmental Disorders

    The Diagnostic Merry-Go-Round. The diagnosis of ASD is usually a frustrating process of diagnosis by elimination, after a range of specified conditions in the autistic spectrum and related conditions are ruled out.

    Getting a Diagnosis: Starting with a Pediatrician. The journey to a diagnosis of ASD can begin in different ways, but for most it starts in a pediatrician's office.

    Tips for Daily  Family Life. There are a lot of things about raising a child with ASD that teachers, therapists, and doctors don't know much about. Hints from parents about daily life, including tips on haircuts, bathing, clothing, selecting furniture, and safety precautions.

    Record Keeping. Some advice on what records to keep, and how.

    Stresses on Families. This article shares some problems of families under stress and methods for coping. Problems addressed include withdrawal or overinvolvement by a parent, effect on siblings, isolation, finding the right therapist, separation and divorce, single parents, non-custodial parents, and adoption and foster care.

    Parenting: Disciplining a Child with PDD. Whole families are affected by PDDs. This article focuses on discipline issues: how do you respond when "normal" parenting advice may not apply?

    Direct and Indirect Financial Support for Families. Some programs are available that may provide you or your family with financial support. Even though the amounts may be small, they may allow you to stretch already strapped resources.

    After an IEP is in Place: Educational Issues. Your job in helping your child become educated in school doesn't end once you have an educational plan in place. This article addresses issues such as: monitoring progress, extended school year services, dealing with behavioral dilemmas, suspension and expulsion, 504 plans, taking on the school system, private schools, homeschooling, and transition planning

    ------------------------------------------------------------ -----------------------------

    Wondering about the differance in ASD's? Here are links to help guide you....

    Low / High Functioning Autism Please Read

    http://www.msnbc.msn.com/id/6895447/

    http://info.med.yale.edu/chldstdy/autism/aspergers.html

    http://www.answers.com/autism+spectrum+disorder&r=67

    http://www.wrightslaw.com/info/autism.index.htm

    http://www.answers.com/topic/pdd-not-otherwise-specified?hl= pdd

    http://www.answers.com/topic/pdd

    http://www.answers.com/topic/pervasive-developmental-disorde r?hl=pdd

    http://www.drspock.com/article/0,1510,5473,00.html?r=related

    http://www.autism.org.au/UNDERSTANDING%20DIAGNOSIS.htm

    http://www.brighttots.com/Childhood_Disintegrative_Disorder. html

    http://www.udel.edu/bkirby/asperger/aspergerscaleAttwood.htm l

    MEDICATION & SUPPLEMENTS

    Common Medications Used To Treat Autism

    Medications Information

    http://pediatrics.about.com/od/autism/a/05_autism_rx.htm  - different treatments & Meds

    Risperdal and the Aggression of Autism

    Risperdal

    Clonidine

    Supplements

    Want the facts or some general info? Here are links for that...

    Autism In The News LINKS Galore!

    http://www.medicinenet.com/script/main/forum.asp?articlekey= 13881

    http://www.parents.com/articles/health/5716.jsp?page=1

    http://www.communityinclusion.org/publications/pddbook.html

    http://maapservices.org/MAAP_Sub_Find_It_-_PDD_Articles.htm

    http://groups.msn.com/TheAutismHomePage/echolaliafacts.msnw

    http://autism.about.com/cs/whatisautism/a/autismfaqtwo.htm

    http://www.insidethebubble.co.uk/articles.php

    http://www.autismweb.com/

    http://www.irsc.org:8080/irsc/irscmain.nsf/cat?readform& cat=Autistic+Spectrum+Disorders&type=Web+Pages

    http://www.msnbc.msn.com/id/6895311/

    http://www.msnbc.msn.com/id/6895447/

    http://www.ausm.org/Information/General/testinfo.htm

    http://www.autism.org/adviceforparents.html (Thanks Jean)

    http://www.hhrehab.org/childservices/autismservices/Default. htm

    http://www.rainbowpediatrics.net/faq/7.21.html

    How Can A Parent Help?

    Extraordinary Parenting - Autism 

    Cartoons shed light on autism

    Pathways to Progress .....

    Explaining A Diagnosis AND  how to tell others about the diagnosis

    Sibling Help -- http://www.autism.org/sibling/sibneeds.html

    The Discovery Of "Aspie" Criteria

    Savant Abilities. (Thanks Sarah)

    Head Circumference / Autism

    http://www.cheapceus.com/Autism_05.html   (Thanks Jean)

    Autism / Mercury / Metals / Chelation

    http://www.askdrsears.com/faq/mc3.asp Can MMR be given separately?

    http://www.autismmedia.org/media1.html where to find the MMR separate

    Banning Mercury In Vaccines  

    support removal of thimerosal from shots

    http://www.thehealthcrusader.com/pgs/excalibur/article_2005_ 03_17_1401.shtml  Scroll 2/3 way down Thimerosal Is Still In Vaccines

    And Just a reminder........ School Vaccines NOT Mandatory

    Reduce Your Stress Level

    Potty Training

    Play

    http://autism.about.com/cs/adadsjournal/a/movingjournal.htm  moving tips

    Speech Delays  and Communication

    COMMON CO-OCCURRING CONDITIONS IN AUTISM Pages 1 2

    Changes in Routine Equals Changes in Behavior

    Behaviors

    Behavior modification controlling tantrum

    Autism Service Dogs of America

    Autism Business Cards 4 Public Awareness

    Calming Activities

    SIBLINGS OF INDIVIDUALS WITH AUTISM/PDD

    Find HARD TO FIND T shirts here...  http://store.yahoo.com/stylinonline/

    SAFTEY ITEMS

    Safety Stickers - http://www.unlockingautism.org/detail.asp?PRODUCT_ID=safetys ticker

    Home Door / Window Alarms

    http://www.homesecuritystore.com/ezStore123/DTProductList.as p?p=2_1_1_1_0_0_118&engine=adwords!276&keyword=%28 do or+alarms%29&match_type =

    http://store.yahoo.com/nextpowerusa/fial8wiwidoa.html

    http://www.janet1.freeuk.com/

    http://www.spymaster.com/home.door.protection.html

    http://www.globalsources.com/manufacturers/Door-Alarm.html

    Kid Alarms

    http://www.ion-kids.com/ 

     http://www.brickhousesecurity.com/childsafety.html

    http://shopping.yahoo.com/search;_ylc=X3oDMTFjdDZpbGpvBF9TAz k2MDc5MjYwBGsDY2hpbGQgbG9jYXRvcgRzZWMDa2IEc2xrA3RpdGxl?p=c hi ld+locator

    http://www.safetydefenseproducts.com/childguard.htm

    http://www.itave.com/smart_guard.html

    911 GPS Child Watch

    http://www.hardwares.globalsources.com/si/6007000636832/yste ch.co

    Medical Alert

    http://www.mypreciouskid.com/medical-id-bracelet.html

    http://www.lifejewelry.com/

    http://www.hahoriginals.com/catalog/default.php?cPath=66_63& amp; amp; amp; amp; amp;osCsid=7b511578ed6fdb5be67184da2d0a4bed

    http://www.laurenshope.com/

    http://www.n-styleid.com/

    http://www.medicassist.com/

    http://www.medicid.com/

    http://www.medicalert.org/home/Homegradient.aspx

    http://www.bindependent.com/hompg/bi/bindep/store/aisles/gai ncontrol/medmanageprod/idjewelry.htm

    http://www.jewelbasket.com/medical-alert-id-bracelets.html

    http://www.americanmedical-id.com/home/?usersession=931a85b3 5c9beea0b42f659b165dcda6

    http://www.medicalert.org/home/Homegradient.aspx

    School related

    Protection and Advocacy

    Special Ed rights for parents and Kids

    http://www.bbbautism.com/vol_2_issue1_iep.htm - ***WONDERFUL LINKS!!!!

    Writing IEP�s For Success

    http://www.dredf.org/

    www.wrightslaw.com

    http://wrightslaw.com/info/esy.index.htm  - Extended School Year

    Building a Better Homework System

    Autism Education Network

    A Guide To Letter Writing

    What Is An IEP?

    MultiFactored Evaluations

    Whose IDEA Is This?

    10 common IEP mistakes

    Specific Disability / Class accommodation

    Instructional Methods / Accomodations

    Programming / Teaching

    Tips for Teachers

    Back 2 School Tips 4 Special Needs Kids

    Advocating

    iAbida Special Needs Education

    Paraprofessionals

    Rapid Prompting Method severely autistic

    http://millermethod.org/

    http://www.autismtreatmentcenter.org/contents/about_son-rise /what_is_the_son-rise_program.php

    Activities to Improve Learning through ..

    Fun Educational Activities &More For Kids

    Teaching / Learning Related

    http://www.elliecards.com/  - elliecards� are a complete set of picture cards intended as an augmentative communication system for young children with special needs. Designed to be used for children with autism, speech disorders, and various learning disabilities, elliecards� are an invaluable learning tool for parents, therapists and educators.

    Created by parents who had little success using other picture card systems on the market, this product uses photos that are realistic to everyday life, come laminated and completely assembled in an easy-to-use binder.

    http://www.autismteachingtools.com/

    http://www.otawatertown.com/toylist.html

    http://www.do2learn.com/

    BEHAVIOR RELATED

    http://rsaffran.tripod.com/aba.html

    http://www.christinaburkaba.com/History.htm

    http://www.brighttots.com/aba_therapy.html

    http://www.redandgreenchoices.com/about.htm

    http://www.bia4autism.org/

    http://www.wrightslaw.com/info/autism.methods.compare.pdf

    http://www.polyxo.com/aba/

    http://www.easychild.com/parentingclick2.htm

    http://www.wrightslaw.com/news/2002/jaynes.tarkan.nytimes.ht m

    Speech Related

    Signing   (Thanks Anne)

    Pecs Info.... (Thanks Gabu)

    http://www.polyxo.com/visualsupport/pecs.html

    http://www.pecs.com/

    http://www.tacanow.com/pecs.htm

    http://www.cesa7.k12.wi.us/sped/autism/assist/asst10.htm

    Echolalia - http://www.autisticsociety.org/modules.php?name=Encyclopedia &op=list_content&eid=36

    Echolalia - http://www.answers.com/topic/echolalia

    Echolalia - http://www.utdallas.edu/~rollins/A_I/echo.pdf

    ADOS Facts - http://www.wpspublish.com/Inetpub4/w090205.htm

    PRT - http://autismone.org/AutismOne2004/presentations/45%20Koegel %20Robert%20and%20Lynn%20Koegel%20-%20sent.doc

    PRT - http://www.autismteachingtools.com/page/bbbbfg/bbbbqc

    PRT - http://www.dbpeds.org/articles/detail.cfm?TextID=229

    Testing Info - http://www.ausm.org/Information/General/testinfo.htm

    Vocabulary Videos for Autistic Toddlers
    The Vocabulary Builder video series has proven to be very effective for toddlers with language delays due to autism. Click here to read what parents have to say about these videos.
    Sponsored by: http://www.babybumblebee.com

    ABA Videos - This service incorporates the strategies of video modeling and Applied Behavior Analysis into an educational tool to be used by children, parents, educators and Paraprofessionals in the form of video. Video modeling provides children with the skills to create, improve and enhance receptive and expressive skills.

    TEETH GRINDING

    http://www.dentalarticles.com/reader/pt12.htm  

    http://www.ncrdoctors.com/ncr_helps_conditions/ncr_articles_ teeth_grinding.html

    http://www.doctorndtv.com/topics/detailtopics.asp?id=506

    This is questionable.... http://www.autism.org/rett.html

    FEEDING ISSUES

    Sensory Integrative related feeding probs

    Functional Feeding Issues in Autism Pages 1 2

    g/f c/f diet Pages 1 2 

    The Gluten/Wheat Free Guide to Eating Out - A new book on the market called "The Gluten/Wheat Free Guide to Eating Out" with over 50 national/regional restaurants' gluten and wheat free menu items.

    SENSORY ISSUES

    Sensory Integration - Must Read

    How to know if its sensory / What to do

    Sensory Defensiveness & Sensory Diet

    Sensory Integration & Teaching Strategies

    WEIGHTED PRODUCTS  

    Vests

    http://www.specialkidszone.com/Product_Level1.asp?CategoryID =38

    http://www.beyondplay.com/CATALOG/SEN3.HTM

    http://www.calmcomforts.com/vest/vests.htm

    http://www.comeplaytoys.com/kids/CPM-070.HTM

    http://members.aol.com/encourmin/autism2.htm

    http://www.otvest.com/

    http://www.theraproducts.com/index

    http://www.pfot.com/ShowProducts.php?interest=Sensory

    http://www.saltoftheearthweightedgear.com/vestpage.html

    http://www.myweightedblankets.com/vests

    http://search.ebay.com/weighted-vest_W0QQfkrZ1QQfromZR8

    http://www.saltoftheearthweightedgear.com/index.html

    Blankets and Other

    http://www.specialkidszone.com/Product_Level3.asp?ProductID= 1368

    http://www.beyondplay.com/CATALOG/SEN3.HTM

    http://www.calmcomforts.com/blanket/blankets.htm

    http://www.theraproducts.com/index/page-catalog/main-8161/su b-8289/

    http://www.saltoftheearthweightedgear.com/fabricspage.html

    http://www.weightedblanket.net/

    http://www.myweightedblankets.com/pricing___orders

    http://www.ikea.com/webapp/wcs/stores/servlet/ProductDisplay ?catalogId=10101&storeId=12&productId=16269&la ng Id=-1&parentCats=10107*10210     (Hanging Seat)

    CATALOGS for Special Needs (and sites to order from)

    http://www.otawatertown.com/resources.html

    http://www.pfot.com/ShowProducts.php?interest=Sensory

    http://www.specialkidszone.com/

    http://www.beyondplay.com/index.htm

    http://www.theraproducts.com/index

    http://www.specialneedstoys.com/

    http://www.stars4kidz.com/

    http://www.superduperinc.com/catalog.htm

    http://www.difflearn.com/

    RESOURCES

    Misc resources listed by state --  http://www.autism-pdd.net/resources-by-state.html

    State Specific Yellow Pages

    Autism Resources In Canada

    Respite Service Locator

    Protection and Advocacy

    National Resources for Special Needs

    Spec Needs Advocate / Attorney Directory

    Special Ed: Putting the Pieces Together

    SSI (Social Security)

    SSI re evaluation  (Thanks Tabitha)

    School Vaccines NOT Mandatory

    Banning Mercury In Vaccines

    SLEEP PROBLEMS

    1 suggestion... since these kids like predictibility and routine and resist change... DONT START SOMETHING YOU DONT WANT TO HAVE CONTINUE.

    SO here are some suggestions to try

    Some say its a chemical imbalance with the seritonin levels in their body... many swear by giving their child supplements like Melatonin   PLEASE CHECK with your childs dr to find a safe amount if you choose this route

    Melatonin for Sleep Disturbances in Children

    For me part of the help was a small dosage of Clonidine.... even now at 9 1/2 without medication he can not fall asleep until well after 1 am!

    ** ALSO NOTE keeping a journal of when your child sleeps and is awake daily behaviors and so forth is a good idea.. sometimes it gives you better knowledge os what is going on when you can look back over the past several days or weeks and start seen a predictable pattern with your child.

    Reward chart

    Calming Activities like heavy loading or deep pressure massage

    Many believe this is sensory related.. I will include some links here

    How to know if its sensory / What to do  *NOTE this also includes calming activities*

    Sensory Integration - Must Read

    Sensory Defensiveness & Sensory Diet

    Sensory Integration & Teaching Strategies

    Bed tents - they block out the outside stimuli providing a calming and quiet environment for the child to relax and go to sleep Many special needs catalogs sell them here are some links to various places

    http://www.target.com/gp/browse.html/601-3573889-0737750?%5F encoding=UTF8&node=13419891

    http://froogle.google.com/froogle?q=twin+size+bed+tents& hl=en&lr=&sa=N&tab=ff&oi=froogler

    *** Just type in a search for TWIN SIZE BED TENTS and something should come up***

    WEIGHTED BLANKETS! This has been the final thing to really help my son and many other kids here! It isnt 100% but for my son its been 98% I never would have believed if someone had said he would sleep through the night from day 1 but he did!

    http://www.specialkidszone.com/Product_Level3.asp?ProductID= 1368

    http://www.beyondplay.com/CATALOG/SEN3.HTM

    http://www.calmcomforts.com/blanket/blankets.htm

    http://www.theraproducts.com/index/page-catalog/main-8161/su b-8289/

    http://www.saltoftheearthweightedgear.com/fabricspage.html

    http://www.weightedblanket.net/

    http://www.myweightedblankets.com/pricing___orders

    Here is some general info about Sleep problems in ASD kids....

    http://www.angelfire.com/tn3/task/sleep.html

    http://aut.sagepub.com/cgi/content/abstract/5/2/209

    http://www.nas.org.uk/nas/jsp/polopoly.jsp?d=367&a=3376  *good Info here

     

    Organizations

    First I would say it may help to contact www.unlockingautism.org They have a Parent 2 Parent Network  listed that will help connect you to a parent in your state to help you find resources. I know the VP of the organization lives in Georgia (Atlanta area I believe) They also have a national call center 866-366-3361... both are on the front page  there are also links for so many things... heres the links pages as I know for some it is confusing how to get there... http://www.unlockingautism.org/news.asp?action=2 they have info on

    FIND YOUR LOCAL Autism Society of America Chapter here http://209.200.89.252/search_site/index.cfm

    Other organizations are listed here.... In your Opinion  (Thanks Rose)

    LEGAL RESOURCES

    CHANGES IN SSI   http://www.clsphila.org/abc_for_advocates_files/training_mat erial.htm

    Supplemental Security Income / Social Security Administration  http://autism.about.com/od/ssissa/

    DISABILITY BENEFITS  http://www.bizdir.org/index.phtml?browse=/Home/Personal_Fina nce/Retirement/Social_Security/Disability_Benefits/

    LISTING OF MEDICAID, MR/DD, DEEMING WAIVER, TEFRA & OTHER ASSISTANCE PROGRAMS  http://www.geocities.com/HotSprings/Villa/1029/medicaid.html

    Disability, Advocacy, Knowing Our Rights  http://headaches.about.com/od/disability/

    BOOKS

    Autism Resources

    http://www.nap.edu/books/0309072697/html/

    http://www.amazon.com/gp/reader/0399523863/ref=sib_dp_pt/104 -2414085-4493562#reader-link

    http://www.amazon.com/exec/obidos/ASIN/1891383132/ref%3Dpd%5 Fsxp%5Felt%5Fl1/104-2414085-4493562

    http://www.amazon.com/exec/obidos/tg/detail/-/185302967X/ref =pd_sim_b_6/104-2414085-4493562?%5Fencoding=UTF8&v=glanc e

    http://www.amazon.com/gp/reader/0312326440/ref=sib_dp_pt/104 -2414085-4493562

    http://www.amazon.com/gp/reader/0309072697/ref=sib_dp_pt/104 -2414085-4493562

    http://www.amazon.com/exec/obidos/search-handle-form/104-241 4085-4493562



  • Edited by MsSteelersFan on 04 June 2005 at 12:18pm


    __________________
    ~ Michelle
    For PDD,PDD-NOS,Autism -Tests info & Links go here....
    http://www.autism-pdd.net/forum/forum_posts.asp?TID=690& PN=3

    Thanks for all that info.  We newbies need all the help we can get!

    I have one remaining question.  What do all those abbreviations stand for?  NT, ds, dx, etc.  Some are obvious by context, others not so much.  Can anyone help with that?

    Thanks

     

    This is awesome! Thank you so much I am still so new to this this is great!!!!Thank you so much for the info.

    Island Dolphin Care - swimming with dolphins program for special needs children

    http://www.islanddolphincare.org/nonflash/5-day.htm

    It's located in Key Largo, FL

    ~Brooke~

    Dylan's ECSE class had pet therapy the other day and he just loved it.I have some darling pics of Dylan brushing the dog and hugging him.  Pet Therapy is Great.

    CUTTING THROUGH  THE PSYCHOBABBLE:

    DIAGNOSING AUTISM AND PDD-NOS PER THE DSM-IV IN LAYMAN’S TERMS

     This document was born out of confusion experienced by so many parents about the diagnosis of autism or PDD-NOS.  When comparing notes, we discovered that even our physicians did not agree.  One woman told us her psychologist said that a diagnosis of PDD-NOS was reserved for children on the spectrum who are curable; others have been told that PDD-NOS is not even on the spectrum!  We found that many clinicians seem to take a milder diagnosis and simply label it PDD-NOS.

    This document takes the DSM-IV criteria for autism and PDD-NOS and translates it into English.  It also attempts to clarify how a diagnosis of PDD-NOS is made.  Please note that not all symptoms may not be present every day.  Look at typically developing children of same age (peers) and use them as markers.  This document is certainly not a diagnostic tool; it was created by and for parents.

    To make this easy, (1), (2), (3) are categories, the letters (a), (b); etc that appear under each category will be referred to as symptoms.

    DSM-IV Criteria for Autism

    299.00 Autism

    A.      To be diagnosed with autism, you must have:

    o        At least SIX (6) of the below symptoms from categories (1), (2) and (3). 

    o        You must have TWO (2) symptoms from (1- Social)

    o        And ONE (1) each from (2- Communication) and (3 Behaviors and Interests)

    o        The other one (or more) can be from any of the categories.

    (1) SOCIAL

    Social interaction is impaired, must have TWO from below list of symptoms:

    (a)  Problems with nonverbal behaviors such as eye contact, facial expression, body postures and gestures used in social situations

    Examples:

    o        Eye contact – different from peers, may only meet eye-gaze of certain people or have total lack of eye contact – or anything in between

    o        Facial expression – may seem inappropriate to what the situation warrants, may have blank gaze, may not greet you with a smile, may have same expression on face most of time – or any combination thereof

    o        Body Postures – may hold arms close to sides, may try to avoid certain types of social contact, may appear unapproachable due to posture

    o        Gestures – may not respond to a hand held out to shake hands, arms out for hugs etc.  May not understand social ‘cues’ we take for granted

    (b)  Does not make friends like other children in same age group.

    Examples:

    o        While peers are learning to play together, the child is off by themselves

    o        Children learn to play by imitation, this child is not imitating the other kids

    o        Seems to have no interesting in socializing with peers

    o        May approach peers, but not to play…watch and see if the child is approaching in the same way peers approach each other

     (c)   Does not share objects with others for enjoyment.

    Examples:

    o        Does not bring you something that interests them to share with you

    o        Does not point in the distance (i.e. to an airplane) to share with you something that interests them

    o        Look at peers and how they show things they are proud of (ie. Artwork) and see if child does the same thing

    (d)    Lack of social (Consisting in dealings or communications with others) and emotional (characterized by emotion) ‘give and take’; Does not respond to social or emotional cues

    Examples:

    o      Does not seem to seek out or enjoy the company of others; may be aloof

    o      Does not smile back when you smile at him/her (without prompting)

    o      Does not reply “hello” to your greeting (without prompting)

    o      Does not seem especially happy to see you when you return home after work

    o      Does not seem to pick up on the ‘vibes’ of others

    o      Does not become grateful or excited in anticipation of outing or gift (in the same way a peer would)

    o      Does not attempt to comfort someone who is crying

    (2) COMMUNICATION

    Communication difficulties (Must have at least ONE of the below symptoms):

    (a)  Delay in, or total lack of, speech, but does not use gestures to communicate (Delay = not at same level as peers)

    Example:

    o        Does not point to what s/he wants

    o        Does not ‘mime’ his/her needs (ie. Mime ‘eating’ if hungry)

    o        Does not shake or nod head for ‘no’ or ‘yes’

    o        Does not shrug shoulders to show s/he ‘doesn’t know’

    (b) If child can speak, cannot start or hold up their end of a conversation (appropriately)

    (c) May echo phrases, words, songs, parts of movies etc.

    (d) Does not engage in imaginative play (as peers)

    Examples:

    o        Will not pretend to drink from toy teacup

    o        Will not pretend to brush doll’s hair

    o        Will not use items for make belief (i.e. a stick for a cane or a magic wand)

    o        Will not make dolls ‘talk’ to each other

    o        Will not take a toy airplane and ‘fly’ it around the room while saying ‘zoom’

    (3) BEHAVIORS AND INTERESTS

    Repetitive behaviors, interests, and activities – child may get angry if this ‘pattern’ is interrupted.  Must have at least ONE of the below symptoms:

    (a) Child is so focused on an interest that to remove the interest will result in a meltdown

    (b) Routines or rituals must be followed, they appear to have no function

    Examples:

    o      Lining up cars is not necessarily playing ‘garage’; if you attempt to join in, the child will tantrum, walk away, push you aside, etc.

    o      Family members must always sit in same seats; failure may result in tantrum

    o      Must take same route home; one deviation may cause meltdown

    o      Must wear red shirt on Tuesday or risk a tantrum etc

    o      If you go to the video store, you must rent “The Brave Little Toaster” every time or risk a tantrum

    (c) Repetitive behavior such as hand flapping, rocking, ear flicking, chewing on clothing, vocal ‘stims’, spinning etc. Establish if this is self-stimulatory by doing a functional assessment like the Durand Motivational Assessment Scale: http://www.monacoassociates.com/mas/MAS.html

    (d) Preoccupied with parts of objects

    Examples:

    o      Spins wheels of toy cars

    o      Focus on one part of a toy (i.e. doll’s eyes)

    o      Cover parts of book so that s/he can look at one piece

    B. Child is either delayed (not same ‘age’ as peers) or acts differently from peers in ONE of the following (must be noticeable before age three): (1) social interaction, (2) language as used in social communication, or (3) pretend play.

    C. Child does NOT have Rett’s or Childhood Disintegrative Disorder

    299.80 Pervasive Developmental Disorder, Not Otherwise Specified

    PDD-NOS is a diagnosis by exclusion.  If a child presents with some symptoms from (1), (2), and/or (3), and their pattern of symptoms is not better described by one of the other PDD diagnoses (i.e., Autistic Disorder, Asperger’s Disorder, Rett’s Disorder, or Childhood Disintegrative disorder) then a professional might decide that a diagnoses of PDD-NOS is warranted.

    When comparing PDD-NOS to Autism, PDD-NOS is used when a child has symptoms of autism as above, but not in the configuration needed for an autism diagnosis.  Social component is where the most impairment is seen.  Children who fail to meet criteria for autism and don’t have adequate social impairment typically have a developmental disability, and their symptoms can by accounted for by that.

     Looking at above description:
    “299.00 Autism - To be diagnosed with autism, you must have at least 6 of the below symptoms from (1), (2) and (3).  You must have two symptoms from (1) and one each from (2) and (3) – the other two can be any of the other symptoms.”

    PDD-NOS is most often diagnosed when children have significant social impairments, but don’t have the symptoms in area (3).  A child with PDD-NOS may have the same (or more, or less) number of symptoms as a child with autism, but instead of having 2 from #1 and one each from #2, the child might have 1 symptom from #1 and one from #2, plus two from #3.

    A diagnosis of PDD-NOS is not necessarily a less-severe one than a diagnosis of autism, but can be sometimes.

    Severity of any spectrum disorder can be determined by the amount and severity of symptoms listed above. 

    It is imperative to obtain a thorough psychological assessment performed.  If you do not understand during any part of the assessment, ask questions.  You should feel comfortable to go home and ‘digest’ the information given to you, form any questions or concerns and contact the diagnosing clinician to get your answers.

    Many thanks go out to R.C. for her help with this project!

     

    A notice to our readers...

    This document was put together with input from parents, not physicians.  It is not to be used as a diagnostic tool, nor is it to be considered professional advice.

    This document references web sites that may be of interest to the reader.  BBB Autism Support Network makes no presentation or warranty with respect to the accuracy or completeness of the information contained on any of these web sites, and specifically disclaims any liability for any information contained on, or omissions from, them.  Reference to these web sites herein shall not be construed to be an endorsement of them or of the information contained thereon, by BBB Autism Support Network.

     

    (c) BBB Autism – July 2002

    This document is the intellectual property of BBB Autism Support Network.

    Permission to reproduce and hand out is granted, provided the document is displayed in its entirety.  Other permissions may be requested by email: liz@deaknet.com.  The purpose of this copyright is to protect your right to make free copies of this paper for your friends and colleagues, to prevent publishers from using it for commercial advantage, and to prevent ill-meaning people from altering the meaning of the document by changing or removing a few paragraphs

    I was looking at the www.coping.org and found it has lots of interesting things on it.  Thanks for posting the site.  Found other issues as well that we are dealing within our household [QUOTE=Jen143]

    There is an awesome resource w/ loads of free videos about autism called 

    www.childnett.tv

    and there is a video from Dan Marino on there talking about how one important thing was that they never treated their son any different than any of their other kids. 

    [/QUOTE]

    http://autismeducation.net/earlyindicators.htm

    Early Indicators of Autism

     

    Over the last 10 years, researchers have identified several red flags to consider in the early diagnosis of autism. Some research is based on retrospective video analysis of social, communication, and play behaviors in the first two years of life for those children later receiving a diagnosis of autism. Other research uses screening methods of children at risk with follow-up over time to determine if the diagnosis is maintained and what might be predictive at 18, 24, and 36 months of age.

    We have learned that there are key factors alerting families and providers to the possibility of autism. These include:

    • absence of or delay in pointing to express interest
    • hand leading or using another's body to communicate, often replacing pointing
    • failure to show interest in or joint attention to games for pleasure or connection with another
    • failure to "show" objects
    • failure to look at others
    • failure to show an interest in other children
    • failure to orient to name or delayed response to name; lack of attention to voice, particularly neutral voice
    • no meaningful words or fewer than five meaningful words at 24 months, or cessation of talking after saying three or more meaningful words
    • no understanding of words out of context
    • failure to demonstrate symbolic play
    • aversions to social touch, poor nonsocial visual orientation/attention, excessive mouthing of objects
    • unusual mannerisms involving the hands and/or fingers

    Recognizing early indicators is just the first step in the assessment process. Currently, there are efforts in both child neurology and pediatrics to more clearly specify practice parameters for screening and diagnosing children suspected of Autism Spectrum Disorder.

    The Quality Standards Subcommittee of the American Academy of Neurology and the Child Neurology Society has issued a report with practice parameters for both the screening and diagnosis of Autism Spectrum Disorder (Filipek et al., 2000). The screening parameters indicate that professionals must include or consider:

    • formal hearing testing
    • further evaluation if there is no babbling or gesturing by 12 months,
    • a loss of language or social skills,
    • no single words at 16 months,
    • no two-word phrases by 24 months
    • monitoring siblings for social, communication, and play skills because of the potential genetic link

    Overview

  • Diagnosing Autism
  • Autism Interventions
  • Special Education System
  • Advocating for your Child
  • Know your Rights
  • Understanding the Law
  • Home

    About Us

    E-Community

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    Resources

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    Take Action

    This is posted in the Education forum on this site as well but I think it is DEFINATELY worth the read ! Your Child’s Legal Rights to Spec Ed

    OMG! I am in tears right now...I have only posted like 3 times since I joined this amazing forum just two days ago. You all have already given me what has been taking me years to gather together.  All the links!!! I guess its time to come clean.  Cam is not the only one with Autism in the family. He had an uncle, a cousin (since passed on to the other side) and one other relative who shares his characteristics...his mama. I was diagnosed with ADD in 4th grade and put on Ritilan.  (It has had negative affect on my adult years). This was back in the early 70's so next to nothing was known about Autism. It wasn't until I began caring for children and adults with Autism at age 14, and then so perfectly was blessed with my own Autistic genius...not to mention the family history and all; well, do the math.

    Cameron has exceptional abilities in music and acting...mimicking..with voice and movement both. My exceptional ability is in music. I learned 8 different instruments by ear as a child and began writing lyrics and poetry at age 7.  Cam and I share many characteristics...concrete and literal thinking; repetative movement when agitated; dyslexic speech; constant, racing & broken thoughts; extremely strong memory, both audio and visual. We both have trouble reading, we cannot get him over that hump...from memorization to comprehension. I too had the same exact delays.

    But I am also living proof, like every other individual who lives with whatever form of Autism, I have been blessed to be able to do some pretty amazing things. I am the founder of a music and arts education program which I am working towards developing into a learning center for Autistic children. In addition to this, I recently got my first song produced in Nashville.  My song titled "Abandoned Houses" was published and is up for a meeting with one of the oldest record labels in Music City.  I leave for Nashville to meet everyone face to face for the first time on the 18th of Feb!!!  So see, dreams really do come true no  matter what your ability!

    Anyway, I have such a passion to make this learning center happen. It has taken me 10 years to set it up. I taught one season at our local Council for Family & Children First...it was a hit!!  Unfortunately due to a bout with Cancer and a lot of surgery, I have not been able to resume the workshops.  That is all about to change. I am healed, cancer free, and getting back on track.  This is for all the children. Everything I do is for this, my life's work...this is our family's legacy. I have learned early in this game that if we are to get anywhere for our children, and ourselves, we have to do it ourselves...collectively.  If you only knew how much y'all have helped us, God bless you!  It can be very difficult for me to sort through all the info...takes me a great deal of time.   If you want to check out our non-profit program...visit The Notez Muzic & Artz Education Workshop 

    Smiles with Blessings!  ~MamaKel~

    Wow! Looks like it's time for me to do my homework. Thanks for gathering
    all this up so all I have to do is read my rear off.

    HOLY COW! This is the BEST list of links and info I've found yet!

     

    THANK YOU!!!!

     

     Please HELP!!

    My son was always a happy baby. Never cried much. Hit all his milestones. Now he is 26 months. Doctors were concerned because he doesn’t respond to his name and doesn't communicate too well. He does have a few words but he only uses them in books.  And even those words are not clear. (Babb for ball).

    His social skill used to a lot better, but lately he has being staring more and becoming less connected.  We had a service from the state out to the house and they were the first to the use the word Autism. We I mentioned it to his daycare provider, she agreed. We still haven't had a formal diagnosis.

    Am I losing him...could this just be a phase? I also have a new two month baby boy. Are his chances higher now to get it? PLEASE HELP. I felt that he was so normal just a few months ago, but now is fading!!! I haven't heard of a case simialr to his.

    Nancy

     

    Hi!

    I am new here and my name is Kristen.  I am not new to autism but these post are great reference for us....some we know, some we don't.  Thank you!

    I found this link of free PECS if anyone should find it useful:

    http://www.members.tripod.com/trainland/pecs.htm

    Scroll to the bottom and there are several lists.

     

     

     

     

    We have a beta site running for communication and collaboration specifically designed for people with Autism, Asperger's, PDD etc. 

    www.autisticvoice.com

     

    Becki@autisticvoice.com

    OK- I LOVE this string!!!!!  I have added it to my favorites.  I was having a hard time with finding information that I needed, but this is an awesome resource.  Especially the information about therapy dogs.  Thanks so much to everyone who added information to this string!

    mommaniki

    Here is a link to the Autism Shop in Hopkins, MN:

    http://www.autismshop.com/

    I just went there and it is AWESOME!  They have the store online too- so you can have it shipped to you.

    MommaNiki39119.9465972222

    Hi, I am new to the boards and I keep seeing "meh" what does that mean?

    Thanks

    Paisley

    Hello everyone. For more support and information whether its to share information and support or give it about Autism, Adhd and other co existing disorders, also come join us at WWW.ADHDAREUS.COM We are all in this together so the more support the better. Hope to see you there  Help.... 5 year old new to my life.... Uncontrolable banging.... walls, glass, tables, tvs, etc.... how to stop it or methods used to redirect behavior.... child just starting to verbalize.... couple of sounds if prompted.... understands when you say stop but goes right back to behavior.... any suggestions.... also trying to find support group in my area.... Heres my site about my son with autism - more about living with him than the clinical aspects or wonder cures  -  http://autism.cashhosters.com/_sgg/f10000.htm

    [QUOTE=justlearning] Help.... 5 year old new to my life.... Uncontrolable banging.... walls, glass, tables, tvs, etc.... how to stop it or methods used to redirect behavior.... child just starting to verbalize.... couple of sounds if prompted.... understands when you say stop but goes right back to behavior.... any suggestions.... also trying to find support group in my area.... [/QUOTE] I can only say what worked for me and that was hospitalization and medication. (She wouldn't cooperate with being medicated until she was hospitalized.)

    She's doing well on risperdal now and I'm doing a research paper on the safe and effective use of risperdal so I'm roaming about all over the net. Oh, she's gained 5 lbs a mo on it for 7 mos. From 93 lbs to 128 lbs at 5'1. I'm hoping she'll plateau, as the doctor says, soon.

    I am new to the boards and new to this very overwhelming world of Autism Spectrum Disorder.

    My son will be 3 in 2 weeks and has been diagnosed with ASD for about 5 months now, but we really knew something was wrong as early as 18 months. Our current peds Dr. knew nothing about the early signs of Autism and so he kept putting things off until DK (my son) turned 2 1/2.

    DK now gets 16 hrs a week on intervention (ABA) and 1 hr of speech, but this all ends in a few weeks when he transitions into the school dist program.

    Both my wife and I are doing everything we can and trying to learn as much as possible, but we really woudl like to find a support group that we could join or turn to for information, such as finding a new peds. dr. in uor area or diet suggestions. We live in a town called Rancho Santa Margarita, Ca. halfway between Los angeles and San Diego. Does anyone know of any support groups in that area?

     

    Look Up TACA-Now . They run quite a few meetings in Southern California.
    Costa Mesa is not that far. They have quite a few resources listed as well,
    many in Newport Beach, Irvine area. Their web page has got a lot of
    information. Good Luck
    Hi I am a mother of a son name Gabriel that just turned 8 he was recently diagnosed with combined type ADHD with PDD-NOS and I have been really looking for a way to comunicate with him on a level that he will understand. I stumbled onto this site and I found it to be very useful in understand what my son is going through I had no idea thanks for the info.Wow - awesome info. - thanks for all the links! thanks for the info!

    This has been a popular and helpful thread to many

    "Meltdowns" -- the inside scoop (or rant)  posted by stickboy26

    What a wealth information! Thanks so much for putting this together!

    Hi.

    I am new here.

    I can't tell you how glad i am to have found this forum.

    And how much I have learned from reading the posts.

    Thank you thank you for sharing.

     

     

     

    Welcome aboard!

    All I can say is a million thank yous for all this info!!!!!!! I am so lucky to have found you all!!!!!!!!!

     

      Michelle Shaver

    I have an 11 year old son who was diagnosed with Autism when he was 2 years old.  Cameron received ABA  for 7 days a week, 7hrs a day for the first three years of his diagnosis.  Our lead therapist attended school with him full time for JK and SK and p/t for grade 1.  When people meet him they do not know that he has Autism, the always compliment on his great personality, sense of humour and manners.

    Cameron has asked me on a few occasions if he's different, he also asks why he had therapists years ago, he thinks its because he was a bad kid.

    I want to reveal Cameron's diagnosis to him, but don't know how.  He will not take is well, as a matter of fact his 13 year old sister is begging me not to tell him because she's worried he'll never be the same.  His big brother (23) is the one that found this forum, please advise.

    Thanks

    Danielle

    [QUOTE=caminator]ICameron has asked me on a few occasions if he's different, he also asks why he had therapists years ago, he thinks its because he was a bad kid.

    I want to reveal Cameron's diagnosis to him, but don't know how.  He will not take is well, as a matter of fact his 13 year old sister is begging me not to tell him because she's worried he'll never be the same.  His big brother (23) is the one that found this forum, please advise.

    Thanks

    Danielle

    [/QUOTE]

    http://www.autism-pdd.net/forum/forum_posts.asp?TID=16063&am p;KW=b9st8&TPN=1

    I am new here also, and just found this thread.  I posted a thread about a school question yesterday. 

    I have a 10-year-old son that shows a lot of tendencies towards being autistic.  He has been diagnosed with adhd, and sensory integration disorder. 

    I am in the process of trying to have him diagnosed / screened for autism,  but seem to be in a run around between dr's offices and the insurance company. I want to scream at times because the insurance company said they don't cover any Neuropsychological testing , and I don't know is that the only kind of testing or is there something else I need to ask for?

     

    Thanks!

    As a "newbie" member, I just wanted to say Thank You for all of your efforts
    in compiling the informational websites.
    As an Auntie, I am trying to assist my sister in getting the latest and best
    information to help get my nephew everything he DESERVES!

    Hi my name is Paul and I am autistic and I have been diagnosed autistic at the Norwood Clinic in 1961 and this is my first post.

    Cheers

    Paul  

    Paul Sullivan39421.2369560185Welcome all... hiya i am not that new but wondering if anyone can help figure out why i can't use private messenger anymore???? There is so much valuable information here, thank you sooo much!this website has been a blessing to me over the last year, I dont post and am not big into chatting, but this place has helped me so much with the whole journey so far with my child, thank ou so muchthe ling that goes to The Do's and Don'ts after a diagnosis A print out for your family�s and friends  (Thanks Karrie) does not go anywere, so where can th The Do's and Don'ts after a diagnosis be found now?

    [QUOTE=PersonChris]the ling that goes to The Do's and Don'ts after a diagnosis A print out for your family�s and friends  (Thanks Karrie) does not go anywere, so where can th The Do's and Don'ts after a diagnosis be found now?[/QUOTE]

    Welcome! I have no idea where the thread went to on that particular subject but did find this article you may find helpful...

    http://www.expresshealthcaremgmt.com/20050715/diseasemanagem ent01.shtml

    (check out all the valuable info on this site through the link provided above)

     

    Dos and don’ts for parents with children diagnosed with ASD

    Dos

    • Accept the diagnosis and issues surrounding it at the earliest.
    • Search for professional service providers in your vicinity, seek the help of an NGO wherever possible.
    • Search the web if possible for gathering knowledge about the disorder and for clarifying myths and misunderstandings.
    • Share responsibility and devote time for management of your child between you and your spouse.
    • Maintain a healthy relationship between you and your spouse. Your physical and psychological well being is very important for the health of your child.
    • Explore newer treatment techniques after careful assessment and evaluation.
    • Provide a reasonable time for the child to adapt to a new training method before calling it a success or failure.
    • Join parent groups, if available. They are the ultimate source of help and support.
    • Believe in your strength and the ability to train your child positively.
    • Maintain a diary about your child’s day-to-day activities, progress or deterioration. If possible, video graph child’s activities.
    • Delay the next child.
    • Plan economy judiciously, the training or treatment is long drawn.

    Don’t

    • Indulge in self-blame or blaming your spouse for the situation.
    • Bother too much about what others might think.
    • Blame others if you do not get assistance, learn to help yourself as it is good in the long run.
    • Get carried away by biased opinions on the web and new research drugs and therapies. Take expert opinion when in doubt.
    • Jump into newer treatment avenues, drugs or magic remedies just because they are very well campaigned for.
    • Run away from a new problem, face it courageously and overcome.
    • Consider your child as a liability. If you identify and cultivate his special interest, he can be an asset.
    • Believe in miracle cures and cures coming with a price tag

     

    I'm glad I finally made the step and found my way here. I'm completely exhausted and will tell more about myself soon. ; )Oh heck, I'm not in Albania like my profile says; have to fix that!

    Hello I am a mother of three girls and my oldest daughter 11 1/2 was diagnosed PDD-NOS in 2007. The major problem we are running into with her right now is school and aggressive behavior. I had to make a tough decision and place her in Camelot full time. When I have more time I will tell you more about my daughter.

    Thanks

    mom2grlz

    Hi - actually I introduced myself the other day, but wanted to add that I am worried that my 16 1/2 month old daughter might have Rett Syndrome. It sounds really scary. My son has not been diagnosed as autistic but seems very borderline to me - he is in PT and OT now. from reading this board, it seems pretty common to have more than one kid w/issues. I really thought that having a girl as our second, we wouldn't have to deal w/any of this delay stuff. Anyone else have both a boy and a girl with similar delays? Thanks

    Hi - I am new to the spectrum, and finally found answers to my husband's quirky behaviors over 18 yrs, and my son's severe depression resulting from as.  (Had I known earlier, maybe we could have prevented the hospitalizations etc)

    My son's dx came from a children's psychiatric hospital after 5 mos. of spiraling depression and my refuting other dr.'s mis-dx of schizophrenia, bipolar, conduct disorder, etc.  (He'll be in residential treatment for 3-6 more mos.)

    My way of explaining this dx is, "It's like puzzle pieces sitting in front of me the whole time; the Dr. finally revealed the picture of the finished product so I can put the pieces together."

    Overall, my son 'seems' quite normal, but is not.   Same goes with my husband. As a result, I have quite a few people who even refute this dx (including a young nurse).  I know better. I live with them. I now have answers.

    I don't know where to start.  I am a newly married, 31 year old SAHM of three.  I have a 6 month old son, Anthony....a four year old daughter, Mariah...and a five year old step-son, Xjavier.  So far my 6 month old and four year old seem to be developing right on track.  My step-son has developmental/speech delays and we are trying to get him help.  Last year he was diagnosed with ADHD by a developmental pediatrician and prescribed Focalin.  He is EXTREMELY hyperactive.  Looking back, I know see that this diagnosis was too rushed.  Of course ADHD would explain the hyperactivity and inability to focus but what about the other speech/developmental delays?  My husband and I started researching and feel strongly that Xjavier has Autism.  There are too many symptoms to ignore: poor eye contact, hand flapping, walking on his toes, strict routines (lining up shoes/toys a certain way), screaming fits, playing with feces, crying without tears, injuring himself (he will tie belts/strings around his neck until he can't breathe), cannot carry on a conversation, though he is verbal, echolalia, and much much more.  I am so frustrated because I am at home all day with the baby and my 4 year old daughter. I need help with Xjavier.  I cannot take my eyes off of him for one moment.  His behavior is getting worse.  He is not sleeping much and that means no one gets any rest because he has to be supervised constantly.  We are on a waiting list with a developmental pediatrician to get a formal diagnosis, but what do you do in the meantime???  We still give him Focalin on occassion to calm him down.  The only time there is peace in my home is when Xjavier is asleep or out with his father.  My daughter is trying to mimic his behavior and it is driving me absolutely nuts.  All of this has driven me into a state of depression and frustration.  I will need to seek counseling and possibly be medicated myself.  I have a history of depression as well, and currently am suffering from post partum depression.  I know they say God won't put more on you than you can bear, but I'm starting to question it.  I am looking for a few people for some support and insight.  Those who will not judge me for being angry, or for not wanting my world turned completely upside down because of my circumstances.  How do you deal with a child that you cannot discipline whatsoever?  He acts as if he is DEAF.  Do you just let them do what they please?  My patience is wearing thin.  Please, I need help....My family is at stake here.

    Sincerely,

    Rainy

    Hello everyone.

    I just found this board when I was looking for answers after a particularly bad night with very little sleep.  So here I go:

    My name is Claire, I am a stay-at-home mother of four children, the oldest (age 21) and youngest (age 12) having been diagnosed as autism spectrum disorder.  Our other two children are 16 and 14.

    I homeschool all 4 children as this is much easier (I used to be a paid French teacher in our school system and our oldest son was so frustrated by the fact that he was not being understood, that his behaviour escalated to the point of pulling him out of school and teaching him at home instead.  The others were always home educated.

    Our two sons are very limited in their verbal skills, the 12-year-old still needs help with toileting skills, and he still needs a nappy at night.

    Our oldest son has recently become very agitated and frustrated over the smallest changes in his "bedtime rituals" and he is keeping me up for hours until he gets things "just right".  He has always shown an extreme rigidness and need for sameness but this has now changed to include tantrums with exagerated hand movement, jumping up and down and some high-pitched noises.

    Because my husband works outside the home and we have 3 other children sleeping on the same floor, I stay up with him and rub his back, trying to calm him down so he lets the others sleep.  I am getting exhausted by this (did I mention I am also in the middle of menopause and I have recently had a bout of labyrinthitis (inner ear infection which affects energy levels as well as motor balance) ?  Needless to say, I am looking for anything which might help me get some much needed zzzzzzzz.  We have a doctor's appointment scheduled for him next month but being a brand new doctor, he will likely not cooperate at all (he takes forever to get comfortable with new people)

     

    Any advice would be so greatly appreciated. So very glad to have found you all.

     

    Many thanks.

    Claire in Canada

    Hi My name is Jen, I posted here once before. My almost 10 year old daughter Kate, was just diagnosed with : Asperger's, ODD, ADHD (combined type), and an unspecified mood disorder. So we are doing weekly therapy and DaytranaWelcome to the board everyone. Hi all!! don't forget if you have specific questions to post them in the other forums.. they'll get a response much faster that way!!!  Hi everyone!

    I am new to posting but have been a lurker for quite some time. I am an SLP working in the public schools and come here to gain better insight on parent perspective. Just wanted to introduce myself!

    -Aisling

    Hello,

    My name is Brandie.  I am married with 3 wonderful boys ages 9, 6, and 2 1/2.  Two weeks ago we found out that our 6 year old has Tourette's Syndrome and my 2 year old was just diagnosed with AS,PPD.  My 2 year old was born 5 weeks early and has been delayed since birth.  Drew has had feeding/speech problems since birth.  Drew never cooed or did anything at the time when other children develop.  Drew has developmental aphasia, hypotonia of his mouth and body, and now AS & PPD.  Our neurologist also suspects that our 9 year old might have Asperger's Disorder. 

    Right now we are waiting for the hospital to call us to schedule the MRI and genetic testing for my 2 year old.  The neurologist has also referred Drew to see a Gastroenterologist for his feeding problems.  He wants him to have a swallow study done, just to make sure that there isn't anything else going on other than the low tone in his mouth.  For the last 6 months Drew has been in our EI program and receiving Speech/Feeding Therapy.  He has not made any progress with his words....but has made tremendous progress memorizing ASL (American Sign Language).  He is slowly learning to communicate with signs.

    I am glad that I found this forum.  I am still in shock over this dx.  My dh and I are just taking it all in.  I just wanted to say hi and thank you for this sort of forum.

    [QUOTE=roneydapony]Hi all!! don't forget if you have specific questions to post them in the other forums.. they'll get a response much faster that way!!!  [/QUOTE]

    Dear Roney

    Hi I am the father of Nicole a daughter of 14 with aspergers and adhd , we were keen on chellation and other cures for ASPERGERS AND ADHD

    can you advice me ??

    Mehernosh Shroff

    [edited for privacy]

     

    camusa39577.3090625

    My daughter, Emily, is 12 years old and has not been formally diagnosed. Her therapist suspects PDDNOS. She has always been very rigid and prone to temper tantrums, but speaks and interacts just fine here at home. She has been to the therapist 9 times and won't even look at him. No words. Teachers report that she isloates herself from other students and is extemely quiet and withdrawn. It seems as if her social behavior has worsened with adolescence. Does this ring a bell with anyone here? Thanks.

     

     

    [/QUOTE]Hi I am the father of Nicole a daughter of 14 with aspergers and adhd , we were keen on chellation and other cures for ASPERGERS AND ADHD

    can you advice me ?? Mehernosh Shroff[/QUOTE]

    I have aspergers and other associated conditions one being ADHD so does my older son. I felt very sad reading your post to think that people want to change us instead of understanding... our biggest problem really is society not, or not wanting to understand and all the pointless fad treatments because of this.

    As for Chelation complete rubbish, like most money wasting fad treatments:
    There's no scientific evidence that chelation therapy is an effective autism treatment.

    In recent years, some doctors and parents have recommended chelation therapy as a potential treatment for autism. Proponents believe that autism is caused by mercury exposure, such as from childhood vaccines. Chelation therapy supposedly removes mercury from the body, which cures autism.

    But extensive studies have revealed no evidence of a link between mercury exposure and autism. In addition, chelation therapy is not approved as an autism treatment and can be associated with serious side effects, including liver and kidney damage that can result in death.

    There is no cure for autism. As a result, unproven alternative therapies are often suggested to parents who — frustrated by the lack of effective medical treatment for autism — are desperate to find something that will help their children. However, in clinical studies, these alternative therapies are usually found to be ineffective and sometimes harmful. Talk to your son's doctor before starting any alternative autism treatment.

    Although no cure for autism exists, early behavioral and educational interventions can help children with autism improve their communication and social skills.

    Sometimes we do withdraw into our own world because others do not try to understand us and alienate us. Yes we do become frustrated and angry, but who would not when people keep trying to change what they do not understand, our symptoms are in fact a part of who we are.

    I was never happy, never fitted in this world  until I was diagnosed myself last year - complete revelation, every think now makes sense and at last I can understand and be myself, now society in general is my biggest problem.

    If you really want to help someone on the autism spectrum read as much as you can by people on the autism spectrum, and embrace your unique child, we just see and think a little differently and can only be happy if allowed to be ourselves, would you like me to try and change you into some think you are not!






    [QUOTE=bether6074]My daughter, Emily, is 12 years old and has not been formally diagnosed. Her therapist suspects PDDNOS. She has always been very rigid and prone to temper tantrums, but speaks and interacts just fine here at home. She has been to the therapist 9 times and won't even look at him. No words. Teachers report that she isloates herself from other students and is extemely quiet and withdrawn. It seems as if her social behavior has worsened with adolescence. Does this ring a bell with anyone here? Thanks.[/QUOTE]
    Adolescence can become a very difficult time for these young adults, as peers may no longer be willing to tolerate someone who seems different. Moodiness, depression and anxiety can also develop in adolescence due to hormonal in balances, and the increased separation of the young adult and their peers.
    The age when they are trying to establish themselves in this world can be so different when no one seems to understand, which often leads to the child backing away from society in general. These children are often happier in their own space and this is ok to a point if have someone to understand them, nothing worse than someone trying to talk to them who does not understand themselves, child will withdraw more.
    Unfortunately there really are not enough professionals who really understand what it like being on the autism spectrum... to be able to help your child you need ton  read and understand as much as you can yourself. Articles from people also on the autism spectrum..
    This link may help a little, browse down to nothing wrong with our child, young adult etc...:
    http://asplanet.info/index.php?option=com_content&task=v iew&id=36&Itemid=73
    Hi. I'm new here. My name is JHS, short for John H. Stubbs. I was born on September 5, 1988. I am currently 19 years old and I was diagnosed with Asperger Syndrome, which is a dash of Autism, at the age of 13. Anyways, that's it for me. Have a nice day!

    Hi everyone! My name is Diana and I'm a new teacher getting started studying the particular challenges surrounding children with autism/asperger's/pdd/nos and deafness.  I'm very interested in working with music therapy with these children and also supporting their language through the use of American Sign Language, my one true love.  :D  Besides my hubby of course.  :p  Just thought I'd introduce myself.  See you on the boards.

    P.s. The link for Autism and Deafness on the front page of the introduction post doesn't work.  Does anyone have other links?  (Maybe I'll post this question in another place too, since it doesn't seem appropriate for the intro thread.)

    ~Diana~

    Hi everyone!  I like to introduce myself.  My name is Lee and we have a son who was diagnosed with PDD NOS when he was 18 months.  He began his ABA Therapy Treatment 13 months ago.  Today he is now 4 years old and started talking in 2 or 3 words and sometimes talks in complete sentence.  As proud parent, it's tough sometimes to admit that your kid could be facing so many hurdles in life at such a young age.  Fortunately we have received tremendous support from Pediatric doctors, state, and school district.  With his therapy treatment one-on-one approach, it we do not pay a penny, its both subsidized by the state (CA) and our shool district.  A program that would normally cost us $5000 a month which we do not have.  Ever since he started ABA treatment his mannerism, behaviorism, and speaking ability has dramatic improved.  But we know we still have a long way to go.  But we are confident and have faith in this program that one day he will sit with the regulars.  This fall he scheduled to attend 2 days a week (3 hours per day) in a regular pres-school setting.  The rest of the day is spend on more treatment.  One thing about our son, he is very happy, engaging, he looks when you call out his name, and very talkative.  We don't really know what he is saying at times, but at least he tries a lot.  I almost forgot to mention.  We also have a daughter who is two half years old who doesn't have any sign of austism. 

    Hello. I've just joined the board and wanted to introduce myself and tell a
    little about my children. I'm Sheryl and I have two sons. They are
    identical twins and will be 5 years old this October. Both my sons were
    diagnosed with ASD when they were 3 years old, though at less than 2
    years old I suspected it and couldn't get any validation from medical
    professionals. Little by little they showed more and more warning signs
    until by age three it was undeniable that they had Autism.    

    We have been working hard since then and my sons have overcome so
    many things. Once my husband and I understood their learning style and
    how they ticked, we have been able to work with their PRE-K ESE
    teachers, various therapist in and out of school, behavior therapists and
    lots of trial and error to teach many skills that they didn't learn on their
    own. We encouraged them to speak with PECs pictures at age 3 and still
    use them now to help them say what is so difficult for them to say. They
    have acquired so much spontaneous, communicated and useful speech.
    When they started talking around two years old it was only verbal
    stimming, strands of cartoons they watched. They continued to verbal
    stim less and less and now its only about 10% stimming and the rest is
    appropriate speech.

    It wasn't until my sons were about 4 that they called me Mommy like
    other kids do. I feel fortunate and proud of them for the way they've
    come out of their shells little by little and into my world. It took a lot of
    me going into their world too and we have met somewhere in the middle.

    We still have much to do and many challenges to face in this world. I just
    try to keep a balance between loving my kids for who they are and trying
    to help them overcome (or embrace) their differences.

    I am here to share experiences and information and I'm always on a quest
    for more helpful information for my boys and other children like them.

     

    Thanks for putting this list together for us. God Bless You !

    Hi, my name is Barbara.  I am 53 years old and grandmother to 7.  The one that concerns me is my grandson Ian.  He will be 4 years old on Aug 20.  I have felt for a long time that he may be autistic.  He didn't want to be held much.  When he got a little older, he would push away.  When he learned to crawl, he had a tendency to go to a wall and bang his head repeatedly.  When he learned to walk steadily, he would run in circles, something he still does.  He knows a few words, repeats what you say to him.  He never smiled much as a baby and a toddler.  He doesn't like to look people in the eye.  He doesn't play very well with other kids.  When he received  giant Lego blocks, all he does is stack same size, same color, knocks them down, and start over again.   Most of our family members have tried to talk to the parents, but my son thinks things like this are over-diagnosed.  Ian is now starting to get violent with my son, punching him when he doesn't get his way.  I am becoming concerned for the safety of his 5 month old brother.  Is there any way I can work with Ian when he comes to visit that may help?  Does anyone have any suggestions on how I might be able to convince my son that Ian needs help?  My daughter-in-law is finally starting to see things, but still doesn't really consider autism.  Thank you!Young children and very young children who exhibit many of the signs or characteristics of an Autism Spectrum Disorder can learn very good coping skills quickly. We have provided some practical, fun, and sometimes silly ways for you and your child to interact.
    --------------
    micheel

    EDITED DUE TO INAPPROPRIATE CONTENT
    Firefly39757.7432291667I run a website that offers printables that parents of autistic children can use at home to teach them basic language and social skills.  Most of these things were created for my own son then hosted online so that other parents could have access to them.

    Right now I have games to teach emotion, categorization, prepositions, and books to teach "wh" questions plus some other stuff.  It's all free.  I take requests too.  I'm always looking for new ideas of things to create.

    http://freeprintablefun.org/search/label/Free%20Printable%20 Learning%20Activities%20for%20Autistic%20Children

     

     

    Just want o geet everyone hello.

    i am dspeately in need of friends who share smilar concerns

    about autism as i do.

    Thank you for all of that great information!Hi,

    Just want to introduce myself as a newbie and say hello. I'm 34 and though I
    live a relatively "normal" life, I believe that I might be borderline autistic. I
    wrote a longer post on this in the adults forum, if anyone cares to take a
    look and answer me.

    Thanks.wow perfect, thanks for this!

    Just want to say "Hi" to all the members.  It is a "WOW" feeling when I see some many active members sharing information on Autism online.  Great place to be in!

    hi,

    forgive my lack of eloquence because i was stunned today. 5yr son sent him off to kindergarten, smart kid academically sound.  always been a lil shy like me, he normally warms up and grows.

    has a hard time with  change.  2 weeks today kindergarten teacher calls my wife on the phone says concerned he's high functioning autistic.  He doesn't know hat to do in the class.  e.g. doesn't know where to put homework, he hopped back to school from their walking field trip 2 day.  didn't put his library book back in the right place, doesn't get the day-day steps that other kids are getting.

     

    Said he seems comfortable but socially immature-btw is a summer birthday

    He is interacting making friends, again academically ok, top reading group.  Just socially behind

    Wants us give another 2 weeks then assess. TA's who are college stuents saying the same since and ok because work at their school's autistic lab.

    I'm shocked, scared, mad everything.  Just want to talk 2 someone advice needed

     

    hello-

    I can understand why you would be feeling like you are.  It is a natural reaction to be defensive  when someone suggests something may be wrong with our children.  The kindergarten teacher nor her teaching assts. are qualified to make any diagnosis regarding your son.  That being said, they are doing the right thing if from their experience they feel there might be something that seems a little off.  Take a breath.  If you haven't seen any signs or red flags in five years and neither has your pedetrician,  than in all likelyhood this will amount to nothing.  Maybe your son is just a late bloomer.  Maybe he is not paying enough attention to the directions of where things should go.  Regardless, if in another two weeks he is still acting in a way that the teacher feels warrants an eval than I would let them do it.  Should the eval show there is no problem just a (late bloomer) so to speak, that will put your and the teacher's mind to rest.  If they deterime there is more going on you will be glad to know it and will be able to get the information you need to continue to support your son the best you can.  Should you disagree with the results of the eval you can always have your son evaluated by someone else of your choosing. 

    I am sorry that this teacher suggested autism right off the bat but I am sure it was not her intention to upset you unjustly.  I'm sure she has your son's best interests at heart as I know you do. 

    If you post this under the general forum you wil probably get alot of responses.  Good luck and welcome to the site.

    ttfn

    [QUOTE=ernestpr]

    Hi I thought this might be a good way to welcome new members on the boardand help out other members by putting all the information together and hopefully have everything at the finger tips for the parents, caregivers, family members etc of a loved one newly diagnosed or anyone just searching for information that need some answers. Feel free to add other information you may have.. I know I haven't even begun to cover everything! But my hope is for it to help all who are searching for answers!

    CLICK HERE TO START http://www.autismtoday.com/commercial.htm WATCH the commercial.... (Thanks Cyndie)

    Have a fear or wondering about autism? Here are some informative links....

    http://www.autism-pdd.net/autism-symptoms.html

    http://groups.msn.com/TheAutismHomePage/startpage.msnw

    http://www.autism-biomed.org/poster.htm

    http://www.msnbc.msn.com/id/6895311/

    http://www.cdc.gov/ncbddd/autism/actearly/milestones_3months .html

    http://www.neurologychannel.com/autism/diagnosis.shtml

    http://www.raisingdeafkids.org/special/autism/index.jsp

    http://autism.about.com/cs/whatisautism/l/blcharac.htm

    http://www.cincinnatichildrens.org/health/info/mental/diagno se/autism.htm

    http://www.autism.about.com/

    http://www.cdc.gov/ncbddd/autism/

    http://www.childbrain.com/pddq5.shtml

    http://psychology.plebius.org/disorders/autism/4/diagnosis/

    http://www.jeena.org/autism/tests.htm

    http://www.nationalautismassociation.org/treatments.php

    http://www.firstsigns.org/treatment/dx.htm

    What to expect from an Evaluation     http://www.fetaweb.com/help/eval.expect.meyer.htm

    AND   http://www.pedneuro.com/services.shtml  (thanks Gabu)

    Wondering if it could be autism? Here are links to information about some onlne tests.... The tests are not ment to diagnose but to act as a guide and to give you information to discuss with your child's Dr.

    http://www.childbrain.com/pddq6.shtml

    http://depts.washington.edu/dataproj/chat.html  CHAT checklist

    http://pediatrics.about.com/od/autism/l/bl_autism.htm

    http://autism.about.com/cs/medicaltreatments/a/txchecklist.h tm

    http://home.isoa.net/%7Enitetrax/cars.htm

    http://www.asaoakland.org/chat.htm

    http://www.neurotransmitter.net/pddst2.pdf

    http://www-personal.umich.edu/%7Epdpatel/DSM%20files/ABC_che cklist.pdf

    http://www.neurotransmitter.net/autismscales.html

    http://www.patientcenters.com/autism/news/diag_tools.html

    http://www.aspires-relationships.com/articles_dx_assessment. ...htm

    http://www.autism-pdd.net/forum/forum_posts.asp?TID=59&P N=4

    Adults with Aspergers - What about you?

    http://www.iidc.indiana.edu/irca/generalinfo/standardtests.h tml

    http://www.forepath.org/

    DSM IV CRITERIA FOR Childhood autism,  Asperger's syndrome, Rett's disorder, Childhood disintegrative disorder, PDD NOS  http://www.childbrain.com/pddq3.shtml

    AFTER THE DIAGNOSIS TESTING http://www.greatplainslaboratory.com/autismrec.html#top

    The Do's and Don'ts after a diagnosis A print out for your family�s and friends  (Thanks Karrie)

    Looking for information and ideas? Here are some links to help you....

    http://www.support4hope.com/autism/autism_adults.htm

    ------------------------------------------------------------ -----------------------

    Yellow Pages for Kids with Disibilities
    Separate listings for each state and territory, Disability information groups, Evaluators, Tutors, Support groups, Advocacy groups, and State agencies...  

    Advice for Parents of Young Autistic Children
    This paper is geared toward parents of newly diagnosed autistic children and parents of young autistic children who are not acquainted with many of the basic issues of autism...
    ------------------------------------------------------------ ---------------------------
     
    Interview with Mitzi Waltz: Autistic Spectrum Disorders. Author-advocate Waltz, now studying at the Autism Research Unit, answers questions about the increasing number of diagnoses, potential link with immunizations, autism and genetics, current treatment research, and the impact on families.
     
    • Autistic spectrum disorders
    • Books by adults with ASDs
    • Children's books
    • Websites about ASDs
    • General disability
    • Health care and insurance
    • Parenting and siblings
    • Special education
    • Childproofing
    • Special-needs clothing
    • Specific therapeutic interventions
    • Transition planning and adult issues

    Support and Advocacy

    • National autism/ASD organizations
    • Online support groups
    • Related conditions
    • General special needs
    • Legal advocacy

    PDD Connections WebRing
    This is the home page for a WebRing (web sites linked one to another, as in a circle) designed to help people find useful information about pervasive developmental disorders. Topics include a definition of autism, pervasive development disorders, and related resources. This WebRing is helpful for anyone living with, or trying to understand a child with ASD.

  • Diagnostic Tools
    • The Autism Research Institute's Form E-2 Check List
    • The Childhood Autism Rating Scale (CARS).

    Research and Testing Facilities

    Medication Reference
    Describes the medications that may be prescribed for ASDs.

    Supplement Reference
    Great resource for nutritional supplements and herbal remedies pertinent to ASDs

    Autistic Spectrum Disorders is a new book by Mitzi Waltz, a revised and updated edition of Pervasive Developmental Disorders

    The Diagnostic Merry-Go-Round. The diagnosis of ASD is usually a frustrating process of diagnosis by elimination, after a range of specified conditions in the autistic spectrum and related conditions are ruled out.

    Getting a Diagnosis: Starting with a Pediatrician. The journey to a diagnosis of ASD can begin in different ways, but for most it starts in a pediatrician's office.

    Tips for Daily  Family Life. There are a lot of things about raising a child with ASD that teachers, therapists, and doctors don't know much about. Hints from parents about daily life, including tips on haircuts, bathing, clothing, selecting furniture, and safety precautions.

    Record Keeping. Some advice on what records to keep, and how.

    Stresses on Families. This article shares some problems of families under stress and methods for coping. Problems addressed include withdrawal or overinvolvement by a parent, effect on siblings, isolation, finding the right therapist, separation and divorce, single parents, non-custodial parents, and adoption and foster care.

    Parenting: Disciplining a Child with PDD. Whole families are affected by PDDs. This article focuses on discipline issues: how do you respond when "normal" parenting advice may not apply?

    Direct and Indirect Financial Support for Families. Some programs are available that may provide you or your family with financial support. Even though the amounts may be small, they may allow you to stretch already strapped resources.

    After an IEP is in Place: Educational Issues. Your job in helping your child become educated in school doesn't end once you have an educational plan in place. This article addresses issues such as: monitoring progress, extended school year services, dealing with behavioral dilemmas, suspension and expulsion, 504 plans, taking on the school system, private schools, homeschooling, and transition planning

    ------------------------------------------------------------ -----------------------------

    Wondering about the differance in ASD's? Here are links to help guide you....

    Low / High Functioning Autism Please Read

    http://www.msnbc.msn.com/id/6895447/

    http://info.med.yale.edu/chldstdy/autism/aspergers.html

    http://www.answers.com/autism+spectrum+disorder&r=67

    http://www.wrightslaw.com/info/autism.index.htm

    http://www.answers.com/topic/pdd-not-otherwise-specified?hl= pdd

    http://www.answers.com/topic/pdd

    http://www.answers.com/topic/pervasive-developmental-disorde r?hl=pdd

    http://www.drspock.com/article/0,1510,5473,00.html?r=related

    http://www.autism.org.au/UNDERSTANDING%20DIAGNOSIS.htm

    http://www.brighttots.com/Childhood_Disintegrative_Disorder. html

    http://www.udel.edu/bkirby/asperger/aspergerscaleAttwood.htm l

    MEDICATION & SUPPLEMENTS

    Common Medications Used To Treat Autism

    Medications Information

    http://pediatrics.about.com/od/autism/a/05_autism_rx.htm  - different treatments & Meds

    Risperdal and the Aggression of Autism

    Risperdal

    Clonidine

    Supplements

    Want the facts or some general info? Here are links for that...

    Autism In The News LINKS Galore!

    http://www.medicinenet.com/script/main/forum.asp?articlekey= 13881

    http://www.parents.com/articles/health/5716.jsp?page=1

    http://www.communityinclusion.org/publications/pddbook.html

    http://maapservices.org/MAAP_Sub_Find_It_-_PDD_Articles.htm

    http://groups.msn.com/TheAutismHomePage/echolaliafacts.msnw

    http://autism.about.com/cs/whatisautism/a/autismfaqtwo.htm

    http://www.insidethebubble.co.uk/articles.php

    http://www.autismweb.com/

    http://www.irsc.org:8080/irsc/irscmain.nsf/cat?readform& cat=Autistic+Spectrum+Disorders&type=Web+Pages

    http://www.msnbc.msn.com/id/6895311/

    http://www.msnbc.msn.com/id/6895447/

    http://www.ausm.org/Information/General/testinfo.htm

    http://www.autism.org/adviceforparents.html (Thanks Jean)

    http://www.hhrehab.org/childservices/autismservices/Default. htm

    http://www.rainbowpediatrics.net/faq/7.21.html

    How Can A Parent Help?

    Extraordinary Parenting - Autism 

    Cartoons shed light on autism

    Pathways to Progress .....

    Explaining A Diagnosis AND  how to tell others about the diagnosis

    Sibling Help -- http://www.autism.org/sibling/sibneeds.html

    The Discovery Of "Aspie" Criteria

    Savant Abilities. (Thanks Sarah)

    Head Circumference / Autism

    http://www.cheapceus.com/Autism_05.html   (Thanks Jean)

    Autism / Mercury / Metals / Chelation

    http://www.askdrsears.com/faq/mc3.asp Can MMR be given separately?

    http://www.autismmedia.org/media1.html where to find the MMR separate

    Banning Mercury In Vaccines  

    support removal of thimerosal from shots

    http://www.thehealthcrusader.com/pgs/excalibur/article_2005_ 03_17_1401.shtml  Scroll 2/3 way down Thimerosal Is Still In Vaccines

    And Just a reminder........ School Vaccines NOT Mandatory

    Reduce Your Stress Level

    Potty Training

    Play

    http://autism.about.com/cs/adadsjournal/a/movingjournal.htm  moving tips

    Speech Delays  and Communication

    COMMON CO-OCCURRING CONDITIONS IN AUTISM Pages 1 2

    Changes in Routine Equals Changes in Behavior

    Behaviors

    Behavior modification controlling tantrum

    Autism Service Dogs of America

    Autism Business Cards 4 Public Awareness

    Calming Activities

    SIBLINGS OF INDIVIDUALS WITH AUTISM/PDD

    Find HARD TO FIND T shirts here...  http://store.yahoo.com/stylinonline/

    SAFTEY ITEMS

    Safety Stickers - http://www.unlockingautism.org/detail.asp?PRODUCT_ID=safetys ticker

    Home Door / Window Alarms

    http://www.homesecuritystore.com/ezStore123/DTProductList.as p?p=2_1_1_1_0_0_118&engine=adwords!276&keyword=%28 do or+alarms%29&match_type =

    http://store.yahoo.com/nextpowerusa/fial8wiwidoa.html

    http://www.janet1.freeuk.com/

    http://www.spymaster.com/home.door.protection.html

    http://www.globalsources.com/manufacturers/Door-Alarm.html

    Kid Alarms

    http://www.ion-kids.com/ 

     http://www.brickhousesecurity.com/childsafety.html

    http://shopping.yahoo.com/search;_ylc=X3oDMTFjdDZpbGpvBF9TAz k2MDc5MjYwBGsDY2hpbGQgbG9jYXRvcgRzZWMDa2IEc2xrA3RpdGxl?p=c hi ld+locator

    http://www.safetydefenseproducts.com/childguard.htm

    http://www.itave.com/smart_guard.html

    911 GPS Child Watch

    http://www.hardwares.globalsources.com/si/6007000636832/yste ch.co

    Medical Alert

    http://www.mypreciouskid.com/medical-id-bracelet.html

    http://www.lifejewelry.com/

    http://www.hahoriginals.com/catalog/default.php?cPath=66_63& amp; amp; amp; amp; amp; amp;osCsid=7b511578ed6fdb5be67184da2d0a4bed

    http://www.laurenshope.com/

    http://www.n-styleid.com/

    http://www.medicassist.com/

    http://www.medicid.com/

    http://www.medicalert.org/home/Homegradient.aspx

    http://www.bindependent.com/hompg/bi/bindep/store/aisles/gai ncontrol/medmanageprod/idjewelry.htm

    http://www.jewelbasket.com/medical-alert-id-bracelets.html

    http://www.americanmedical-id.com/home/?usersession=931a85b3 5c9beea0b42f659b165dcda6

    http://www.medicalert.org/home/Homegradient.aspx

    School related

    Protection and Advocacy

    Special Ed rights for parents and Kids

    http://www.bbbautism.com/vol_2_issue1_iep.htm - ***WONDERFUL LINKS!!!!

    Writing IEP�s For Success

    http://www.dredf.org/

    www.wrightslaw.com

    http://wrightslaw.com/info/esy.index.htm  - Extended School Year

    Building a Better Homework System

    Autism Education Network

    A Guide To Letter Writing

    What Is An IEP?

    MultiFactored Evaluations

    Whose IDEA Is This?

    10 common IEP mistakes

    Specific Disability / Class accommodation

    Instructional Methods / Accomodations

    Programming / Teaching

    Tips for Teachers

    Back 2 School Tips 4 Special Needs Kids

    Advocating

    iAbida Special Needs Education

    Paraprofessionals

    Rapid Prompting Method severely autistic

    http://millermethod.org/

    http://www.autismtreatmentcenter.org/contents/about_son-rise /what_is_the_son-rise_program.php

    Activities to Improve Learning through ..

    Fun Educational Activities &More For Kids

    Teaching / Learning Related

    http://www.elliecards.com/  - elliecards� are a complete set of picture cards intended as an augmentative communication system for young children with special needs. Designed to be used for children with autism, speech disorders, and various learning disabilities, elliecards� are an invaluable learning tool for parents, therapists and educators.

    Created by parents who had little success using other picture card systems on the market, this product uses photos that are realistic to everyday life, come laminated and completely assembled in an easy-to-use binder.

    http://www.autismteachingtools.com/

    http://www.otawatertown.com/toylist.html

    http://www.do2learn.com/

    BEHAVIOR RELATED

    http://rsaffran.tripod.com/aba.html

    http://www.christinaburkaba.com/History.htm

    http://www.brighttots.com/aba_therapy.html

    http://www.redandgreenchoices.com/about.htm

    http://www.bia4autism.org/

    http://www.wrightslaw.com/info/autism.methods.compare.pdf

    http://www.polyxo.com/aba/

    http://www.easychild.com/parentingclick2.htm

    http://www.wrightslaw.com/news/2002/jaynes.tarkan.nytimes.ht m

    Speech Related

    Signing   (Thanks Anne)

    Pecs Info.... (Thanks Gabu)

    http://www.polyxo.com/visualsupport/pecs.html

    http://www.pecs.com/

    http://www.tacanow.com/pecs.htm

    http://www.cesa7.k12.wi.us/sped/autism/assist/asst10.htm

    Echolalia - http://www.autisticsociety.org/modules.php?name=Encyclopedia &op=list_content&eid=36

    Echolalia - http://www.answers.com/topic/echolalia

    Echolalia - http://www.utdallas.edu/~rollins/A_I/echo.pdf

    ADOS Facts - http://www.wpspublish.com/Inetpub4/w090205.htm

    PRT - http://autismone.org/AutismOne2004/presentations/45%20Koegel %20Robert%20and%20Lynn%20Koegel%20-%20sent.doc

    PRT - http://www.autismteachingtools.com/page/bbbbfg/bbbbqc

    PRT - http://www.dbpeds.org/articles/detail.cfm?TextID=229

    Testing Info - http://www.ausm.org/Information/General/testinfo.htm

    Vocabulary Videos for Autistic Toddlers
    The Vocabulary Builder video series has proven to be very effective for toddlers with language delays due to autism. Click here to read what parents have to say about these videos.
    Sponsored by: http://www.babybumblebee.com

    ABA Videos - This service incorporates the strategies of video modeling and Applied Behavior Analysis into an educational tool to be used by children, parents, educators and Paraprofessionals in the form of video. Video modeling provides children with the skills to create, improve and enhance receptive and expressive skills.

    TEETH GRINDING

    http://www.dentalarticles.com/reader/pt12.htm  

    http://www.ncrdoctors.com/ncr_helps_conditions/ncr_articles_ teeth_grinding.html

    http://www.doctorndtv.com/topics/detailtopics.asp?id=506

    This is questionable.... http://www.autism.org/rett.html

    FEEDING ISSUES

    Sensory Integrative related feeding probs

    Functional Feeding Issues in Autism Pages 1 2

    g/f c/f diet Pages 1 2 

    The Gluten/Wheat Free Guide to Eating Out - A new book on the market called "The Gluten/Wheat Free Guide to Eating Out" with over 50 national/regional restaurants' gluten and wheat free menu items.

    SENSORY ISSUES

    Sensory Integration - Must Read

    How to know if its sensory / What to do

    Sensory Defensiveness & Sensory Diet

    Sensory Integration & Teaching Strategies

    WEIGHTED PRODUCTS  

    Vests

    http://www.specialkidszone.com/Product_Level1.asp?CategoryID =38

    http://www.beyondplay.com/CATALOG/SEN3.HTM

    http://www.calmcomforts.com/vest/vests.htm

    http://www.comeplaytoys.com/kids/CPM-070.HTM

    http://members.aol.com/encourmin/autism2.htm

    http://www.otvest.com/

    http://www.theraproducts.com/index

    http://www.pfot.com/ShowProducts.php?interest=Sensory

    http://www.saltoftheearthweightedgear.com/vestpage.html

    http://www.myweightedblankets.com/vests

    http://search.ebay.com/weighted-vest_W0QQfkrZ1QQfromZR8

    http://www.saltoftheearthweightedgear.com/index.html

    Blankets and Other

    http://www.specialkidszone.com/Product_Level3.asp?ProductID= 1368

    http://www.beyondplay.com/CATALOG/SEN3.HTM

    http://www.calmcomforts.com/blanket/blankets.htm

    http://www.theraproducts.com/index/page-catalog/main-8161/su b-8289/

    http://www.saltoftheearthweightedgear.com/fabricspage.html

    http://www.weightedblanket.net/

    http://www.myweightedblankets.com/pricing___orders

    http://www.ikea.com/webapp/wcs/stores/servlet/ProductDisplay ?catalogId=10101&storeId=12&productId=16269&la ng Id=-1&parentCats=10107*10210     (Hanging Seat)

    CATALOGS for Special Needs (and sites to order from)

    http://www.otawatertown.com/resources.html

    http://www.pfot.com/ShowProducts.php?interest=Sensory

    http://www.specialkidszone.com/

    http://www.beyondplay.com/index.htm

    http://www.theraproducts.com/index

    http://www.specialneedstoys.com/

    http://www.stars4kidz.com/

    http://www.superduperinc.com/catalog.htm

    http://www.difflearn.com/

    RESOURCES

    Misc resources listed by state --  http://www.autism-pdd.net/resources-by-state.html

    State Specific Yellow Pages

    Autism Resources In Canada

    Respite Service Locator

    Protection and Advocacy

    National Resources for Special Needs

    Spec Needs Advocate / Attorney Directory

    Special Ed: Putting the Pieces Together

    SSI (Social Security)

    SSI re evaluation  (Thanks Tabitha)

    School Vaccines NOT Mandatory

    Banning Mercury In Vaccines

    SLEEP PROBLEMS

    1 suggestion... since these kids like predictibility and routine and resist change... DONT START SOMETHING YOU DONT WANT TO HAVE CONTINUE.

    SO here are some suggestions to try

    Some say its a chemical imbalance with the seritonin levels in their body... many swear by giving their child supplements like Melatonin   PLEASE CHECK with your childs dr to find a safe amount if you choose this route

    Melatonin for Sleep Disturbances in Children

    For me part of the help was a small dosage of Clonidine.... even now at 9 1/2 without medication he can not fall asleep until well after 1 am!

    ** ALSO NOTE keeping a journal of when your child sleeps and is awake daily behaviors and so forth is a good idea.. sometimes it gives you better knowledge os what is going on when you can look back over the past several days or weeks and start seen a predictable pattern with your child.

    Reward chart

    Calming Activities like heavy loading or deep pressure massage

    Many believe this is sensory related.. I will include some links here

    How to know if its sensory / What to do  *NOTE this also includes calming activities*

    Sensory Integration - Must Read

    Sensory Defensiveness & Sensory Diet

    Sensory Integration & Teaching Strategies

    Bed tents - they block out the outside stimuli providing a calming and quiet environment for the child to relax and go to sleep Many special needs catalogs sell them here are some links to various places

    http://www.target.com/gp/browse.html/601-3573889-0737750?%5F encoding=UTF8&node=13419891

    http://froogle.google.com/froogle?q=twin+size+bed+tents& hl=en&lr=&sa=N&tab=ff&oi=froogler

    *** Just type in a search for TWIN SIZE BED TENTS and something should come up***

    WEIGHTED BLANKETS! This has been the final thing to really help my son and many other kids here! It isnt 100% but for my son its been 98% I never would have believed if someone had said he would sleep through the night from day 1 but he did!

    http://www.specialkidszone.com/Product_Level3.asp?ProductID= 1368

    http://www.beyondplay.com/CATALOG/SEN3.HTM

    http://www.calmcomforts.com/blanket/blankets.htm

    http://www.theraproducts.com/index/page-catalog/main-8161/su b-8289/

    http://www.saltoftheearthweightedgear.com/fabricspage.html

    http://www.weightedblanket.net/

    http://www.myweightedblankets.com/pricing___orders

    Here is some general info about Sleep problems in ASD kids....

    http://www.angelfire.com/tn3/task/sleep.html

    http://aut.sagepub.com/cgi/content/abstract/5/2/209

    http://www.nas.org.uk/nas/jsp/polopoly.jsp?d=367&a=3376  *good Info here

     

    Organizations

    First I would say it may help to contact www.unlockingautism.org They have a Parent 2 Parent Network  listed that will help connect you to a parent in your state to help you find resources. I know the VP of the organization lives in Georgia (Atlanta area I believe) They also have a national call center 866-366-3361... both are on the front page  there are also links for so many things... heres the links pages as I know for some it is confusing how to get there... http://www.unlockingautism.org/news.asp?action=2 they have info on

    FIND YOUR LOCAL Autism Society of America Chapter here http://209.200.89.252/search_site/index.cfm

    Other organizations are listed here.... In your Opinion  (Thanks Rose)

    LEGAL RESOURCES

    CHANGES IN SSI   http://www.clsphila.org/abc_for_advocates_files/training_mat erial.htm

    Supplemental Security Income / Social Security Administration  http://autism.about.com/od/ssissa/

    DISABILITY BENEFITS  http://www.bizdir.org/index.phtml?browse=/Home/Personal_Fina nce/Retirement/Social_Security/Disability_Benefits/

    LISTING OF MEDICAID, MR/DD, DEEMING WAIVER, TEFRA & OTHER ASSISTANCE PROGRAMS  http://www.geocities.com/HotSprings/Villa/1029/medicaid.html

    Disability, Advocacy, Knowing Our Rights  http://headaches.about.com/od/disability/

    BOOKS

    Autism Resources

    http://www.nap.edu/books/0309072697/html/

    http://www.amazon.com/gp/reader/0399523863/ref=sib_dp_pt/104 -2414085-4493562#reader-link

    http://www.amazon.com/exec/obidos/ASIN/1891383132/ref%3Dpd%5 Fsxp%5Felt%5Fl1/104-2414085-4493562

    http://www.amazon.com/exec/obidos/tg/detail/-/185302967X/ref =pd_sim_b_6/104-2414085-4493562?%5Fencoding=UTF8&v=glanc e

    http://www.amazon.com/gp/reader/0312326440/ref=sib_dp_pt/104 -2414085-4493562

    http://www.amazon.com/gp/reader/0309072697/ref=sib_dp_pt/104 -2414085-4493562

    http://www.amazon.com/exec/obidos/search-handle-form/104-241 4085-4493562



    Edited by MsSteelersFan on 04 June 2005 at 12:18pm


    __________________
    ~ Michelle
    For PDD,PDD-NOS,Autism -Tests info & Links go here....
    http://www.autism-pdd.net/forum/forum_posts.asp?TID=690& PN=3
  • [/QUOTE] Hi.
    Once I was new here and received messages from this board. I was diagnosed with Asperger-Syndrome. I wasn't an active member on this board lately. But I read with interest the majority of posts from concerned parents.
    Till I found this board I just saw the perspective of affected people. I thought a life with Asperger is difficult. Till I read about all the sorrows parents have with autistic children. You gave me a new perspective to look at this subject again.
    Parents: You are great! Between the lines I read how much you love your children.

    I put my message under this post, because after such a long time I have to introduce myself to this board again. I hope to read and learn more from you.

    Elisabeth

    Hi I am new to this but WOW so much info. I just read one parent talk about their child likes to "run free", boy do I know that. It was cute at first but at near 14, we are hoping he understands to "hide or cover up". He is the size of a 8 year old but is starting to show signs of pueberty(something I wasnt looking forward to),

    I have decided to homeschool this year because we were fed up with explaining our son after 10 years of school. It is going great and I love it. It does get expensive but thank God for internet.

    Mym son recieved next to none of speech and OT. they basically see him as , and have lableled him severely mentally retarded. It is sad to have that said but I met some wonderful people in Toronto who really understood my son and what I was going through.

    It is hard to believe but there are people who understand and care , I just wished that it hadn't  taken 12 years to find them.

    Thanks for all the sites being posted about autism!Busby SEO Test thank you so much for this information.  and thank you for this forum.   This is the best list I've seen in all my life. I will definitely pass this on to my Early Interventionist.

    Hi all,this is Gomez.I am newbie to this site.Welcome to the forum.I am happy to be a part of this community.
    ------------------------
    gomez

    EDITED TO DELETE INAPPROPRIATE CONTENT

    Firefly39873.5986342593

    Hello. I am new to this forum or website.  I have a 16 year old son who was just diagnosed with autism,he also has learning disabilities. Although he was just "officially diagnosed" it was something we already new.  He is a wonderful boy. I look forward to sharing my thoughts and concerns with you all, and also gain knowledge.

    Thank You, Candy

     

    Hey guys,

    just thought Id say hello, Im new here.

    Lou. 

    Hi everyone! Im new also and boy
    do you have a lot of links posted here but I hope i have
    more than enough time to process it through and
    through.

    Looks like this is my first time posting here. I'm Lisa and 44 years old. I'm new to this board but not new to autism. I have two daughters. Laura is 13 years old and she has autism and mental retardation. Rachel is 11 years old, and her only problem is being a "chatterbox". I've also been married to a wonderful husband named Steve for 15 1/2 years.

     

    Lisa C.

    Hello, I'm Deborah, mom to six. My youngest son has autism.

    I'm hoping someone can assist me with the search feature here. Are topics
    only searchable by subject. All my post body searches time out.

    Thanks.Sounds like your terms are too general ... you might jsut post a thread asking for info! [QUOTE=foxl] Sounds like your terms are too general ... you might jsut post
    a thread asking for info![/QUOTE]

    No, they are not. The search gives you the option to search message body,
    topic subject or user name. All of my message body searches are timed out.

    I was curious as to whether this was a forum issue, or something I'm doing
    incorrectly.

    Thanks again.If there are too many matches, then the search will time out.  You could try searching topic heading or post a thread and someone will give you the info your after.

    Welcome!
    [QUOTE=kllylynn] If there are too many matches, then the search will time
    out.  You could try searching topic heading or post a thread and someone
    will give you the info your after.Welcome!
    [/QUOTE]

    Nope, not a question of too many matches either. No search works (for
    me) when searching in message body.
    I was just curious if it worked for everyone else.

    Search terms I have used for message body are "mosaic" "gersh" "
    Long Island" and "lindner". Every one has timed out in a message body
    search.<solicitationNYMommyof340028.7825115741

    solicitation

    NYMommyof340028.7876041667

    solicitation

    NYMommyof340028.7822222222another "kid alarm" type service available to help you track a gps phone is www.itag.com Well resources shared by all the members are helpful for me. thanks to all the buddies sharing the resources Thank you so much for all that information. Wow!  My son, Harry, was diagnosed last year with PDD and has started kindergarten here in Indiana.  I sent an email to his teacher explaining his diagnosis and his likes and dislikes.  He's been in school about a month and a half and last week she got to see one of his "tantrums".  I think she is just realizing how much a challenge it is going to be with Harry.  We have a behavioral counseling session scheduled for December 11th.  They have such a LONGGGG waiting list.  Any suggestions for a newbie.  I don't want him to be put into a category and treated differently.  Mostly, my son is a sweetheart, but he has certain rigidities that can trigger a major meltdown.  I started using the 1-2-3 Magic behavior modification.  It seemed to work for a while.  Any help would be appreciated.

    Hello all,

    Just wanted to give a quick intoduction. I am Lisa, disabled (Lupus & many other conditions) Mom with 5 beautiful children. My youngest, Isaak (5 years old) has just been diagnosed with an Autism Spectrum disorder and ADHD. Testing is ongoing and we are not sure what type of Autim he has yet. The diagnosis has devastated us all but, we are starting the process of acceptance now.

    We always knew something was wrong but, chalked it up to ADHD since two of my other children have been diagnosed with it. My insistance for further testing unfortuneatly were ignored until he started kindergarten. We have since learned that many his behaviors are classic signs of Autism. Hindsight is always 20/20.

    He happens to attend the only school in the entire dictrict that has the ability to deal with special needs children.  They caught it right off and fast tracked him into special classes to help him learn and excell. The progress he has already made in just a few short weeks is amazing. It's a 9 month wait to see a specialist for the "official" diagniosis but we are 100% sure that the school is right on the money with their observations. He certainly fits the profile to a tee. We cannot afford to wait until then (9 months) and we are very happy his school has their act together.

    I think my husband and I are having a harder time than Isaak is at this point. The worst part for us in the tantrums, self mutulation & attempts to hurt other people that he engages in. We have tried ignoring these episodes but, that only escalates it. We have tried talking with him but, he can't concentrate and just doesn't understand & continues to act out violently. I have resorted to gently restaining him, by hugging and/or rocking him. Rubbing his head & singing while doing this also seems to help until it passes. He has already seriously injured himself & even knocked out one of his teeth during a severe episode. It's just too hard to sit there and do nothing while your child is hurting themselves.

    Despite all we have been through, we love him with all our hearts and are willing to do what it takes to make him better.

    I have done a lot of reading at the site and the information provided is excellent. It's really nice to have a place to go where we are understood and supported.

    Thanks, Lisa

    Wow!  THank you for all of that info!  It will take me forever to go through all I want to see. 

    Really quickly though, can anyone give me info on financial aid.  I saw the SSI link and we have gone that route and are in the process of getting approved for a small amount of money.  But that will just cover extra therapies, gymnastics class, swimming therapy, etc. 

    Does anyone know of anything else?  We struggle since I can only work very part time from home because of our 3 year old's needs.  Is there any program or aid that accounts for one parent having to stay home?
    WOW! what an incredible wealth of information. Every possible query is
    there! Thankyou so much Michelle.

    Suzi the abbreviations you were after:

    NT = Neurotypical
    DS = dear son
    DX = diagnosis

    Health guidelines for children and adults: http://www.health.gov/dietaryguidelines/dga2005/document/htm l/chapter2.htm

    High dosages of magnesium, the side effects, how much you would have to really give over a day:  http://www.patentstorm.us/class/424/681-Magnesium_chloride.h tml

    Definitions for abbreviations:  http://www.autism-pdd.net/forum/forum_posts.asp?TID=731& PN=1

    Do's and Don'ts Online Thread:  http://www.autism-pdd.net/forum/forum_posts.asp?TID=981& KW=do%27s+and+don%27ts+online

    A disclaimer from the Autism Society of Minnesota webpage, read it very carefully!!!!!!!!! 

    NOTE: AuSM's World Wide Web page provides links to the Autism Society of America and other advocacy organizations on the world web. Links should not be construed as an endorsement, explicit or implied, by this chapter.  Nor should the information stated on the parent page, etc. be used solely on the basis of what is written here.  You should always consult the proper medical advice.

    Parents and professionals are encouraged to investigate thoroughly the various options available within the autism community in order to determine which are appropriate for the person with autism, based on his or her individual needs.

     

    Tammy

    tabitha38509.3853703704

    PDD vs. ASD?  to learn about Pervasive Developmental Disorders or Autism Spectrum Disorders

     

    Attorneys Who Represent Parents of Children with Disabilities

    http://edlaw.net/frames.html

    Has a search state by state.  WARNING!!!!!!!!!!  STATES ARE NOT IN ALPHABETICAL ORDER!!!!!!!!!!!!!

    Tammy

    Indicators of Normal Development

    Recognizing Autistic Tendencies

    PDD Main Page 
    1. What is PDD or autism?   
    2. How is PDD or autism diagno sed?
    3. The DSMV IV criteria
    4. Review of the different PDDs
    5. How does a typical child with autism present?
    6. The PDD assessment questionnaire
    7. Who should be evaluated for PDD?
    8. What are the causes?  
    9. Lab testing, medical consensus g uidelines
    10. What is the best treatment?
    11. Behavioral modification
    12. Prognosis (long term outcome) of autism
    13. Differential diagnosis for autism
    14. Secretin and autism
    15. PDD and the educational system
    16. Associations related to PDD (Links)
    [Print entire PDD section]

    Stress induced non-epileptic seizures

    http://www.autism-pdd.net/forum/forum_posts.asp?TID=1053& ;PN=10

    Tammy

    Links for  autism organizations specific to Wisconsin.

    http://www.friendsofautism.org/

    http://www.wiautism.com/index.php  (This is a autism specific research/therapy center....they will do evals and such for other residents besides Wisconsin ones)

    http://www.dhfs.state.wi.us/bdds/autism/  (waiver program that pays for therapy)

    AUTISM

    Listing of Ohio Summer and Year Round Programs For Children With Disabilities

    http://www.ocali.org/au_camps.html

     

    FREE or NEARLY FREE PRESCRIPTIONS https://www.pparx.org/brochure.pdf

    GO HERE FOR MORE INFO AND A DROP DOWN MENU OF ALL 50 STATES AND DC https://www.pparx.org/Intro.php

    Thank You to all who have participated with info releated to these threads....

    FINDING DOGS FOR AUTISTIC CHILDREN

    SEIZURE/AUTISM DOGS SITE

    Thank you for the information. 

    Hello everyone!

    I am new to the list, and would like to take the time to introduce myself.  My name is Matthew Bowerman, and my wonderful wife is named Kelly.  We have two sons; the eldest is Perrin at seven years old, and the youngest Benjamin at three years old.  Perrin was diagnosed with PDD at 2 ½, and later diagnosed with Autism around the age of five.  Perrin is a high functioning autistic, and a wonderful son, and big brother.  Perrin has many social problems within our culture, chief of which is language development.  Perrin will only eat specific foods, and goes through a copping hierarchy of actions when uncomfortable.  Perrin memorizes whole tracts of movie dialog, as well as songs and repeats these to comfort himself in times of stress. We have a hard time keeping clothes on him at home, as he loves to run free.  I believe he does not like the constriction of clothing.  Perrin will not eat vegetables, or most meats.  Perrin will eat oatmeal, sugared cereal, yogurt, Corn dogs (picks the cornmeal off), plain franks, McDonalds Chicken nuggets, most french-fries, McDonalds Hash browns, cookies, most sodas, Juice, Teas, chocolate milk, Slim Fast, Potato Chips, Soft Serve Ice Cream, most  kinds of Candy, Bananas, and Apples. We give him multi-vitamins to help balance his limited diet. We are starting him on a leaching process to remove possible Mercury poisoning, as he did not show signs of any problems until his immunizations. Well that’s all for now.

     
     

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    | World Autism Organization

     

       Hi!! i'm new here..so don't really know how to use this forum yet..hope I do this right!!  I'm the mom of a 5 yr old w/Aspergers...was dx at the age of 3 and1/2...just looking for others that have the same issues with their child/children..I have alot of support and am member at different AS sites...but this one looked interesting..and thouhgt maybe i'd join another one...i'm up for making new friends!! I live in the Toledo Ohio area..so if theres anyone from the Toledo area i would love to hear from ya!!              Mom2trey

     

    HOLY WOW is that a lot of informational links!  And to think of how much time I wasted on google....Thank you all...This will take some time to get through :)

    that is excellent - wish I had all that years ago before internet!

    Here are a couple South Dakota ones :)

    http://www.sdparent.org/

    http://www.usd.edu/cd/autism/

     

    and my fav story was this one when ds was diagnosed...

    was one calle trip to beirut...but it's not online tonight

    here's the page just in case http://www.bbbautism.com/beginners_beirut.htm

     

    wow

    thank you soooo much! i thought i had done my research, you have opened sooo many new window for me.

    what a help!

    kate

    Social Security Online Locator  http://s3abaca.ssa.gov/pro/fol/fol-home.htmlHi

    I am A mom of an autisc child
    [QUOTE=ernestpr]

    Hi I thought this might be a good way to welcome new members on the board and help out other members by putting all the information together and hopefully have everything at the finger tips for the parents, caregivers, family members etc of a loved one newly diagnosed or anyone just searching for information that need some answers. Feel free to add other information you may have.. I know I haven't even begun to cover everything! But my hope is for it to help all who are searching for answers!  [/QUOTE]

    This thread was intended for welcoming newbies to the board and having valuable links available... It would be appreciated if we could stick to posting links so newbies and members in general don't have to weed through other things to find resources and links.

    Thank You!

    Felt this was important to have her in the newbies thread to remind everyone to weigh all risks and think clearly when deciding on a new treatment... remember the ol rule of thumb... If it sounds too good to be true it generally is....

    http://autism.about.com/od/treatments/a/snakeoil.htm

    WARNING !!! Fake Autism "Cures" on the Market

    from Floyd Tilton

    Parents Beware

    For years, people with chronic, incurable illnesses have been easy prey for the con man and medical quack. These unscrupulous "snake oil" salesmen have made millions of dollars off of the pain and suffering of loved ones and patients. They know that where there's an absence of hope, there's money to be made, and like vultures, they circle their prey and then swoop down to devour them.

    Now these individuals are circling the autism community, looking for easy prey. They realize that many parents of children on the autism spectrum are so desperate that they will try anything in an attempt to help their child. On June 29, 2000, the "Las Vegas Sun" reported that a Nevada company was charged with selling adulterated, misbranded and new and unapproved drugs, improperly acting as pharmacists, and false advertising on their Internet website.

    As autism gets more publicity in the media, you can be assured that those who want to make a killing on "fake cures", will discover the desperation of some parents, and the number of cases such as this will increase.

    It's time for each of us affected by autism spectrum disorders to take precautions to make certain that we do not become victims in our search for a cure. There are several things that you can do to protect yourself and your child.

    1. Talk to others who have purchased products from the company you want do business with.
    2. Remember the old adage, "If it sounds too good to be true, it probably is."
    3. Check with autism support groups to find out if they have had complaints against the company. Check the forum at this site for other parent's opinions.
    4. Check with the Better Business Bureau to see if complaints have been filed previously.
    5. Consult with your physician before buying anything advertised as a treatment.
    6. Don't be swayed by "high pressure tactics".
    7. Read the label information to find out who manufactured the product and check them out.
    8. Don't be afraid to ask questions.
    9. Don't fall for emotional appeals. Don't buy from someone who appeals to your fears.
    10. Contact your state's Consumer Protection Agency to see if complaints have been filed against the company in question.
    11. As much as I would like to prevent it, do not assume a product advertised on the autism site is safe or appropriate. Advertising is business and this site or the guide have no control over the advertising.

    Of course, there are legitimate companies that sell pharmaceuticals over the Internet, but these will not be afraid to answer your questions and they will invite your investigation of them. They have nothing to hide. They can supply credentials, references, customer lists and other things to prove their legitimacy. The con man, however, will try to avoid giving specific information that can be checked by the customer, since they would be found out if they were investigated.

    A little time on your part will pay big dividends as you seek to help your child. Remember, there's no rush to make a decision. It won't make any difference if you wait a few days to start a treatment plan. The treatment that will work on Tuesday will work just as well if it begins on Friday. The extra time to investigate may be what you need to avoid being the victim of fraud and dashed hopes and worst of all, damaged health

    I found a great website for deep pressure activities for kids. It might give us all some new ideas.

    Deep Pressure and Heavy Activities for School Age Children

    http://www.coping.org/intervention/sensory/heavyactiviti.htm

    ~Brooke~

    [QUOTE=2bsybys]

    i found this great site http://www.roadid.com/id.asp

    I kept looking for a great id. my son could wear incase he got lost or ran away. which he does.

    most children with sensory issues like my son would not wear a bracelet. so i found this one and it goes on thier shoe. i put the crutial info needed and the first line says

     i have autism!

     

    [/QUOTE]

    http://www.untangleautism.org/

     

    Michelle thought this site should be added here. It may help someone, I hope so!

    I know that if you are new to ASD, it can seem so overwhelming! Dont give up looking!!!! You can do it and this board is a great place to find info and to vent!

     
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