well, dd's victory with her socks notwithstanding, the last few days have been really hard. She has really been acting up with meltdowns that go on for hours, stress echolalia (which with her new vocabulary is even worse because instead of just yelling the same thing over and over, she is now yelling nonsensical sentences/jibberish or sensical things that are heartbreaking like "stop sad" over and over!), and she has this new screaming where she just screams at the top of her lungs. Oh, and the recitation from tv is back a little more in place of conversation again. It's just been a couple of really off days. Of course, just before that I was feeling pretty confident that she just had a language disorder and now I'm right back in the pit of worry over what is going on. A friend asked me how I know this isn't normal. I told her, you just know. It's just beyond the pale and it doesn't stop, it just goes on and on. We have the drs. appointment with the neuro in a few weeks so she'll be evaluated but it is still very much the roller coaster ride of emotions for me here.
I have no idea what's going on to be causing this round of behavior. She really hasn't acted this "bad" in a while; certainly not for this prolonged period of time over no known provocation. She might not feel well, it could be cause we went out of town this last weekend disturbing her routine, it could be because her cousin was supposed to visit yesterday and cancelled and dd was really VERBALLY EVEN disappointed. It could be because I'm in the middle of a million dr. visits/testing for secondary infertility (went to doc. today and she knows it). Or ALL of those things of course. I'm sure she's picked up on the stress in the house.
I just feel exhausted today and just needed to vent my fears/worries again. THey are right back to the front of my mind and I feel like I did a month or so ago before she got her speech dx- sorta bewildered, scared, worried, frustrated and soooo tired.
I know the interuption of school routine has made Takoda a little more difficult and he has regressed on pottytraining.(Back to just peeing pullups) and pounding on the computer keys alot.
I would just like to offer you a
Goodluck! Nelle Dear Sallys, I also find that Luke seems to do better on the days he has therapy/intervention than on the days when nothing is going on (especially weekends when Daddy is home and the routine is different). As someone told me here, it's like with these kids it's 2 steps forward, one step back ... so as long as forward progress is being made, try to go with the flow. I know how hard/depressing/frustrating it can be when one's child seems to have lost everything he/she's gained, but hang in there. Like you said, tomorrow may be a 'good' day. Maybe it WAS the disruption in her routine,as well as the disappointment of not seeing her cousin. For we adults, it's no big deal -- but you can imagine how for a child it's like a HUGE thing! It's not as if they're keeping up on the news or have anything else going on in their lives, you know?
Kellie
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