Hey there DoveNest. You are a woman after my own heart. FOR MONTHS I have been asking that very same question to all 4 of my son's therapists. My son has awsome days and on those days I feel the same way -- this is silly, he is just fine. Then there are other days where I am pulling my hair out worring because I just can't understand why he is tantruming, sleeping poorly, poor eye contact, etc. How can there be such a swing? Three of the four* therapists have told me that they have never seen a swing in behavior quite like my son which led 2 of the 4 therapists to encourage me to look at his diet. I was told to start keeping a journal of his diet because maybe there was something that he was eating or coming into contact with that was causing the swing in behavior.
**The 4th therapist told me that it is possible to see children with swings but the only cases he could draw off of where of children who had pretty severe symtoms. However after I started the GF/CF diet and he saw the improvement it made--he told me "maybe there is something to this diet thing." LOL
I'm so happy things went well w/ his therapy! Its so great when your child has an "on" day! I love it...keep up the great work hon! I'm wishing for the best for you both hon!
xo
Ali
My stepmom just brought ds back after taking him to buy a toy at Walmart. Even she said he seemed so much more receptive and responsive than usual. He still ignored anyone who tried to talk to him at the store as usual. But could this just be an "on" day? Have any of you who's children ARE dx'd have days where they don't even seem to have a disorder and are just doing so well? Or could all this stuff just been a weird phase and he's fine? Ok I realize none of you know him or are dr's and can't give me a yes or no answer lol.
Amber
Today was ds's first time w/ ST. He was having a good day today anyway, so I was hoping it would go good. I was so nervous as silly as that sounds. Well he did so well.
At first he wasn't looking at her very much. After just a few mins though he was making such good eye contact w/ her. He was doing things w/ her. At times he would get distracted and whine and fuss when she tried to get him to do some things. But for the most part he interacted so great! She seemed to think there was nothing unusual or wrong about him at all.
Now I'm thinking maybe everything has been in my head all along! Maybe I was just looking for weird things about him and he's actually fine and just a bit delayed. I mean I have a lady at work that said her friend has a boy that she thought something might be wrong with. She never said anything to her friend, but he was almost 3 and never really talked or anything. Then shortly after 3 he started talking and is now doing just fine. So maybe I'm freaking out over nothing. So now I'm feeling like an idiot lol. I mean here I've been researching, wondering, and worrying for probably nothing. How can he have a disorder and interact like he did today. And the eye contact and everything. Ok, granted he has no interest in children except his sister. But maybe he just can't relate to them. Afterall, he's been around adults more. Could it be that I took an observation from my stepmom (she is the one w/ an autistic child my age that brought up her concerns w/ ds) and then I just got carried away and started seeing things that weren't really there? I'm just so confused lol.
Oh and stepmom came over to take ds to his first real haircut ( I just can't attempt it anymore lol). She called and said he started to kick and fuss at first, then they gave him a sucker which he LOVES. He sat ok after that. She said he kept shaking his head back and forth almost the whole time though haha. THey had trouble keeping his head still. But he didn't freak out like he does when I cut try to cut it. I haven't seen how it looks yet as she is taking him to a store for his B-day. So words of wisdom please ladies!
Amber
Hey Amber so glad things went well today! CONGRATULATIONS!
Wouldn't it be great if you did do all that worry and research and found out he was NT! Its never for nothing! You did it to help him, you met great friends and got support, and learned to help make others aware and educate them!
Hopefully he does turn out to be ABSOLUTELY FINE,... but if he doesnt you're on the right path. I would still go through the evaluation.... he might be incrediably high functioning.
St's are solely there to dx ... they just evaluate the speech... Does he have any expressive or receptive delays? Is he verbal? It could be aspergers which many go un diagnosed until they are in 2nd or 3rd grade. Not trying to worry you.
Hang in there and follow through. Im glad it went well and hope it continues to go great! Keep us updated.
Great News and congratulations, i too would follow thru with the evaluation, if it turns out to be a simple language delay, that's great if it's something else, well you've already got your ducks in a row and you'll be able to hit the ground running. I'm glad he's doing so well!
Well he is about at 15 mth old level for language and just turned 2. As I wrote in the post about language loss, he has lost some words. I mean he has so many things that sound like he would be under the spectrum at times, but then he does such normal behavior other times and people all tell me he's just fine. So I think my head will explode haha. I'm just hoping he will start talking soon. They have shown me sign language for him. My stepmom still thinks what she thinks. She still hopes to be wrong. As do I. Why do I go back and forth 10 times a day on what I believe lol. Maybe I'm the one w/ the problem
Amber Amber, I hope and pray your ds is NT! Like everyone else said ... go thru with the eval. Better 'safe' than sorry. Luke sometimes has incredibly good days (especially when he's just home here with us
Kellie Amber, You are not crazy and you don't have a problem. I did the exact same thing.(Unless we're both crazy
I would follow up too. I kept second guessing myself also. I have an older son with Dx ODD. I knew their behaviors were different but I kept thinking it must be my parenting skills or lack of. Everywere I went I was dealing with tantrums. I thought for sure Drs. were going to say another ODD child, must be your fault.
I also wanted to mention a funny coincidence. When Takoda was about 2 1/2 he had his first BIGBOY HAIRCUT. (He had beautiful baby curls I only cut them off because people commented on my beautiful little girl). When I took him to playgroup that very next day he acted so silly. He was going up to other kids and pushing them acting like he wanted to play with them but just didn't know how. I was so excited, I thought maybe his haircut had socalized him.
Looking back later I relized the EASTERBUNNY was there that day also. He loved grabbing his tail. This surprised me to because SANTA freaked him out! Nelle LOL! These kids like to confuse us huh? That's great that Luke will sometimes look at kids! What a step! Even on that good day he still never acknowledges children. And not adults either in crowded places like Walmart. He does pretty good though one on one w/ adult. Been a few times someone came over and ds ignore them. But he really likes strange men. That bothers me. Funny Nelle that he liked the Bunny. I haven't tried ds w/ anyone in costume except at Chuck E Cheeses. He seems unsure of the Mouse guy, but not afraid. So maybe this xmas I'll test w/ Santa lol. Even my little bro who is NT was afraid of Santa though. Amber hi i am glad therapy went so well . i love it when jordon and ryan have days where they will interact properly well done dovesnest son
oh and i think kids have on/off days whether they have a disorder or not so i cant really give an oppinion on it sorry xxxxx
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