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tonysmomndad
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| Posted: August 14 2007 at 11:18am | IP Logged
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 We have been gf/cf for six weeks until today. My son has become increasingly violent with us, and has tried to harm himself. Screams constantly, and shows no sigh of improvement. This morning I called his naturopathic Dr. and he told me to stop the gf/cf and reintroduce these things to him. We did as he instructed and 15 minutes later, he was writing his abc's on paper(which he had never done before). Then right after lunch, all the screaming stopped and the tantrums and violence went away. He has been running aroung smiling and laughing...even speaking to us more frequently. Not sure, but I think Anthony is one of the few that the diet does not work for. Has anyone else heard of this happening? Also, has anyone heard of any meds that have worked when other things havent?
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Anthony 4, autistic. GF/CF for past six weeks. Visits a naturopathic Dr. reg basis. No meds yet. Looking into it.
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onlinedizzy
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| Posted: August 14 2007 at 4:45pm | IP Logged
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Yes I have heard of kids getting worse. It is like going through drug withdrawl for some. I changed the diet gradually. First gradually reducing dairy products not going cold turkey all at once. Even then the behavior worsened a little before improving.The factt hat your child reacted that way probably could indicate that a gf /cf diet might work for him. If you are up to doing it again doit slowly. Good luck with whatever you decide. Liz
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onlinedizzy
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autumn
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| Posted: August 14 2007 at 4:58pm | IP Logged
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Usually when a child gets worse it mean the diet IS workign and they are withdrawing. Contact your doc and take it slow.............
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Autumn, mom to a sweet 'only son', with severe autism.
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little byrd
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Diets, Chelation & Treatments Mod.
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| Posted: August 15 2007 at 12:48am | IP Logged
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Something else to also consider is yeast die off. Many children also have yeast. If you are doing the gf diet, you are removing a lot of carbs the child is consuming (unless you are replacing his exact consumption w/ an alternative carb) and yeast love to eat carbs. So maybe reducing the carbs is also causing the yeast to die off which can give off similar, if not worse, side effects than gfcf side effects.
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Jenni
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proudofmyself
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| Posted: August 15 2007 at 10:38am | IP Logged
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If he was functioning properly back then, then take him off of it slowly.
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You can do whatever you set your mind to man.
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Tracii
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| Posted: August 20 2007 at 1:18am | IP Logged
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Gluten and casein break down to opiate-like compounds in the body, gluteomorphin and casomorphin, respectively. It's not uncommon for a person to have real withdrawals or even become sick when giving up wheat/milk products. The solution?
Withdraw gluten/casein from the diet SLOWLY.
You wouldn't take a heroin addict's drug away all at once, so you shouldn't do it with a child addicted to these proteins. Remove the products gradually and make sure to supplement the diet with the ODA of all nutrients, preferably liquid or sublingual forms for best absorption. Keeping the level of stress down to a minimum is a big help, too. Your child may want to sleep, feel restless, or have mood swings, so the best thing is to just go with the flow.
Hope that helps! It sounds like your child would actually be the perfect candidate for a gf/cf diet. Just expect and prepare for some stressful times and stay focused! It can take up to 1 year for full improvement and recovery to begin.
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Mercury hurts.
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NathansMom
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| Posted: September 01 2007 at 7:23pm | IP Logged
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Man, this post is scaring me. so here's my question. we are going to a DAN dr next week. i have begun this slow process...but what is slow?? we are already completely dairy free. he has an allergy. so, do i give him a certain amount of carbs/gluten a day? how do i do this? i am really worried now about the behavior thing... why isn't that in books they publish??????
anyone... help??? (i really not desperate, just really nervous)
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onlinedizzy
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| Posted: September 02 2007 at 7:34pm | IP Logged
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It is on the gf/cf website. I never had access to books on the diet here in Australia when I started my kids on it. I never noticed a behavior getting worse when eliminating the gluten just the casein. With the casein free side I mixed soy and cows milk and gradually increased the soy. The rest of the casein foods I eliminated all at once. I didn't try gluten free for another year as I found this the hardest to adjust my cooking and shopping to. Liz
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onlinedizzy
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NathansMom
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| Posted: September 02 2007 at 7:49pm | IP Logged
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i completey agree with the gluten free part. it is so hard to find food for the whole family. my husband is going insane with just the talk of it. shopping is very very difficult. if you have any helpful hints, i would love them. i am trying to be enthustiastic about this... but feel as though i am failing! tomorrow is another day, right?
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LuvLafLern
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| Posted: September 04 2007 at 10:16pm | IP Logged
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We have been gluten free for a little over a year now. My son has a form of Celiac Disease (DH) and my husband does too. We believe it also might help my oldest daughter's stomach problems. SO the whole family went g/f and all has been well. Nearly immediate we saw better focus, 0 stomach problems, and her energy is much more focused. We are now beginning a transition off of dairy. As all my kids love cheese I know this won't be easy for them, but it is necessary. Does anyone have any good ideas for replacing meals like pizza? It's our Friday night favorite. We make the crust from rice and then use home-made raw sauce and top with cheese. It's going to be hard to leave it behind.
Again, I'm open to any suggestions...
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Mom to four beautiful children: 7/pdd-nos (homeschooled), 6/ADHD, 4 and 3 years old
"Man's mind, once stretched by a new idea, never regains its original dimension."
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Autism-PDD Message Boards : Autism Diets
Topic: HELP GF/CF going insane
