Diagnostic Tools
- The Autism Research Institute's Form E-2 Check List
- The Childhood Autism Rating Scale (CARS).
Research and Testing Facilities
Medication Reference
Describes the medications that may be prescribed for ASDs.
Supplement Reference
Great resource for nutritional supplements and herbal remedies pertinent to ASDs
Autistic Spectrum Disorders is a new book by Mitzi Waltz, a revised and updated edition of Pervasive Developmental Disorders
The Diagnostic Merry-Go-Round.
The diagnosis of ASD is usually a frustrating process of diagnosis by
elimination, after a range of specified conditions in the autistic
spectrum and related conditions are ruled out.
Getting a Diagnosis: Starting with a Pediatrician. The journey to a diagnosis of ASD can begin in different ways, but for most it starts in a pediatrician's office.
Tips for Daily Family Life.
There are a lot of things about raising a child with ASD that teachers,
therapists, and doctors don't know much about. Hints from parents about
daily life, including tips on haircuts, bathing, clothing, selecting
furniture, and safety precautions.
Record Keeping. Some advice on what records to keep, and how.
Stresses on Families.
This article shares some problems of families under stress and methods
for coping. Problems addressed include withdrawal or overinvolvement by
a parent, effect on siblings, isolation, finding the right therapist,
separation and divorce, single parents, non-custodial parents, and
adoption and foster care.
Parenting: Disciplining a Child with PDD.
Whole families are affected by PDDs. This article focuses on discipline
issues: how do you respond when "normal" parenting advice may not
apply?
Direct and Indirect Financial Support for Families.
Some programs are available that may provide you or your family with
financial support. Even though the amounts may be small, they may allow
you to stretch already strapped resources.
After an IEP is in Place: Educational Issues.
Your job in helping your child become educated in school doesn't end
once you have an educational plan in place. This article addresses
issues such as: monitoring progress, extended school year services,
dealing with behavioral dilemmas, suspension and expulsion, 504 plans,
taking on the school system, private schools, homeschooling, and
transition planning
------------------------------------------------------------ -----------------------------
Wondering about the differance in ASD's? Here are links to help guide you....
Low / High Functioning Autism Please Read
http://www.msnbc.msn.com/id/6895447/
http://info.med.yale.edu/chldstdy/autism/aspergers.html
http://www.answers.com/autism+spectrum+disorder&r=67
http://www.wrightslaw.com/info/autism.index.htm
http://www.answers.com/topic/pdd-not-otherwise-specified?hl= pdd
http://www.answers.com/topic/pdd
http://www.answers.com/topic/pervasive-developmental-disorde r?hl=pdd
http://www.drspock.com/article/0,1510,5473,00.html?r=related
http://www.autism.org.au/UNDERSTANDING%20DIAGNOSIS.htm
http://www.brighttots.com/Childhood_Disintegrative_Disorder. html
http://www.udel.edu/bkirby/asperger/aspergerscaleAttwood.htm l
MEDICATION & SUPPLEMENTS
Common Medications Used To Treat Autism
Medications Information
http://pediatrics.about.com/od/autism/a/05_autism_rx.htm - different treatments & Meds
Risperdal and the Aggression of Autism
Risperdal
Clonidine
Supplements
Want the facts or some general info? Here are links for that...
Autism In The News LINKS Galore!
http://www.medicinenet.com/script/main/forum.asp?articlekey= 13881
http://www.parents.com/articles/health/5716.jsp?page=1
http://www.communityinclusion.org/publications/pddbook.html
http://maapservices.org/MAAP_Sub_Find_It_-_PDD_Articles.htm
http://groups.msn.com/TheAutismHomePage/echolaliafacts.msnw
http://autism.about.com/cs/whatisautism/a/autismfaqtwo.htm
http://www.insidethebubble.co.uk/articles.php
http://www.autismweb.com/
http://www.irsc.org:8080/irsc/irscmain.nsf/cat?readform& cat=Autistic+Spectrum+Disorders&type=Web+Pages
http://www.msnbc.msn.com/id/6895311/
http://www.msnbc.msn.com/id/6895447/
http://www.ausm.org/Information/General/testinfo.htm
http://www.autism.org/adviceforparents.html (Thanks Jean)
http://www.hhrehab.org/childservices/autismservices/Default. htm
http://www.rainbowpediatrics.net/faq/7.21.html
How Can A Parent Help?
Extraordinary Parenting - Autism
Cartoons shed light on autism
Pathways to Progress .....
Explaining A Diagnosis AND how to tell others about the diagnosis
Sibling Help -- http://www.autism.org/sibling/sibneeds.html
The Discovery Of "Aspie" Criteria
Savant Abilities. (Thanks Sarah)
Head Circumference / Autism
http://www.cheapceus.com/Autism_05.html (Thanks Jean)
Autism / Mercury / Metals / Chelation
http://www.askdrsears.com/faq/mc3.asp Can MMR be given separately?
http://www.autismmedia.org/media1.html where to find the MMR separate
Banning Mercury In Vaccines
support removal of thimerosal from shots
http://www.thehealthcrusader.com/pgs/excalibur/article_2005_ 03_17_1401.shtml Scroll 2/3 way down Thimerosal Is Still In Vaccines
And Just a reminder........ School Vaccines NOT Mandatory
Reduce Your Stress Level
Potty Training
Play
http://autism.about.com/cs/adadsjournal/a/movingjournal.htm moving tips
Speech Delays and Communication
COMMON CO-OCCURRING CONDITIONS IN AUTISM
1 2
Changes in Routine Equals Changes in Behavior
Behaviors
Behavior modification controlling tantrum
Autism Service Dogs of America
Autism Business Cards 4 Public Awareness
Calming Activities
SIBLINGS OF INDIVIDUALS WITH AUTISM/PDD
Find HARD TO FIND T shirts here... http://store.yahoo.com/stylinonline/
SAFTEY ITEMS
Safety Stickers - http://www.unlockingautism.org/detail.asp?PRODUCT_ID=safetys ticker
Home Door / Window Alarms
http://www.homesecuritystore.com/ezStore123/DTProductList.as
p?p=2_1_1_1_0_0_118&engine=adwords!276&keyword=%28 do
or+alarms%29&match_type =
http://store.yahoo.com/nextpowerusa/fial8wiwidoa.html
http://www.janet1.freeuk.com/
http://www.spymaster.com/home.door.protection.html
http://www.globalsources.com/manufacturers/Door-Alarm.html
Kid Alarms
http://www.ion-kids.com/
http://www.brickhousesecurity.com/childsafety.html
http://shopping.yahoo.com/search;_ylc=X3oDMTFjdDZpbGpvBF9TAz
k2MDc5MjYwBGsDY2hpbGQgbG9jYXRvcgRzZWMDa2IEc2xrA3RpdGxl?p=c hi ld+locator
http://www.safetydefenseproducts.com/childguard.htm
http://www.itave.com/smart_guard.html
911 GPS Child Watch
http://www.hardwares.globalsources.com/si/6007000636832/yste ch.co
Medical Alert
http://www.mypreciouskid.com/medical-id-bracelet.html
http://www.lifejewelry.com/
http://www.hahoriginals.com/catalog/default.php?cPath=66_63& amp; amp; amp; amp; amp;osCsid=7b511578ed6fdb5be67184da2d0a4bed
http://www.laurenshope.com/
http://www.n-styleid.com/
http://www.medicassist.com/
http://www.medicid.com/
http://www.medicalert.org/home/Homegradient.aspx
http://www.bindependent.com/hompg/bi/bindep/store/aisles/gai ncontrol/medmanageprod/idjewelry.htm
http://www.jewelbasket.com/medical-alert-id-bracelets.html
http://www.americanmedical-id.com/home/?usersession=931a85b3 5c9beea0b42f659b165dcda6
http://www.medicalert.org/home/Homegradient.aspx
School related
Protection and Advocacy
Special Ed rights for parents and Kids
http://www.bbbautism.com/vol_2_issue1_iep.htm - ***WONDERFUL LINKS!!!!
Writing IEP�s For Success
http://www.dredf.org/
www.wrightslaw.com
http://wrightslaw.com/info/esy.index.htm - Extended School Year
Building a Better Homework System
Autism Education Network
A Guide To Letter Writing
What Is An IEP?
MultiFactored Evaluations
Whose IDEA Is This?
10 common IEP mistakes
Specific Disability / Class accommodation
Instructional Methods / Accomodations
Programming / Teaching
Tips for Teachers
Back 2 School Tips 4 Special Needs Kids
Advocating
iAbida Special Needs Education
Paraprofessionals
Rapid Prompting Method severely autistic
http://millermethod.org/
http://www.autismtreatmentcenter.org/contents/about_son-rise /what_is_the_son-rise_program.php
Activities to Improve Learning through ..
Fun Educational Activities &More For Kids
Teaching / Learning Related
http://www.elliecards.com/ - elliecards�
are a complete set of picture cards intended as an augmentative
communication system for young children with special needs. Designed to
be used for children with autism, speech disorders, and various
learning disabilities, elliecards� are an invaluable learning tool for parents, therapists and educators.
Created by parents who had little success using other picture card
systems on the market, this product uses photos that are realistic to
everyday life, come laminated and completely assembled in an
easy-to-use binder.
http://www.autismteachingtools.com/
http://www.otawatertown.com/toylist.html
http://www.do2learn.com/
BEHAVIOR RELATED
http://rsaffran.tripod.com/aba.html
http://www.christinaburkaba.com/History.htm
http://www.brighttots.com/aba_therapy.html
http://www.redandgreenchoices.com/about.htm
http://www.bia4autism.org/
http://www.wrightslaw.com/info/autism.methods.compare.pdf
http://www.polyxo.com/aba/
http://www.easychild.com/parentingclick2.htm
http://www.wrightslaw.com/news/2002/jaynes.tarkan.nytimes.ht m
Speech Related
Signing (Thanks Anne)
Pecs Info.... (Thanks Gabu)
http://www.polyxo.com/visualsupport/pecs.html
http://www.pecs.com/
http://www.tacanow.com/pecs.htm
http://www.cesa7.k12.wi.us/sped/autism/assist/asst10.htm
Echolalia - http://www.autisticsociety.org/modules.php?name=Encyclopedia &op=list_content&eid=36
Echolalia - http://www.answers.com/topic/echolalia
Echolalia - http://www.utdallas.edu/~rollins/A_I/echo.pdf
ADOS Facts - http://www.wpspublish.com/Inetpub4/w090205.htm
PRT - http://autismone.org/AutismOne2004/presentations/45%20Koegel %20Robert%20and%20Lynn%20Koegel%20-%20sent.doc
PRT - http://www.autismteachingtools.com/page/bbbbfg/bbbbqc
PRT - http://www.dbpeds.org/articles/detail.cfm?TextID=229
Testing Info - http://www.ausm.org/Information/General/testinfo.htm
Vocabulary Videos for Autistic Toddlers
The
Vocabulary Builder video series has proven to be very effective for
toddlers with language delays due to autism. Click here to read what
parents have to say about these videos.
Sponsored by: http://www.babybumblebee.com
ABA Videos - This
service incorporates the strategies of video modeling and Applied
Behavior Analysis into an educational tool to be used by children,
parents, educators and Paraprofessionals in the form of video. Video
modeling provides children with the skills to create, improve and
enhance receptive and expressive skills.
TEETH GRINDING
http://www.dentalarticles.com/reader/pt12.htm
http://www.ncrdoctors.com/ncr_helps_conditions/ncr_articles_ teeth_grinding.html
http://www.doctorndtv.com/topics/detailtopics.asp?id=506
This is questionable.... http://www.autism.org/rett.html
FEEDING ISSUES
Sensory Integrative related feeding probs
Functional Feeding Issues in Autism
1 2
g/f c/f diet
1 2
The Gluten/Wheat Free Guide to Eating Out - A
new book on the market called "The Gluten/Wheat Free Guide to Eating
Out" with over 50 national/regional restaurants' gluten and wheat free
menu items.
SENSORY ISSUES
Sensory Integration - Must Read
How to know if its sensory / What to do
Sensory Defensiveness & Sensory Diet
Sensory Integration & Teaching Strategies
WEIGHTED PRODUCTS
Vests
http://www.specialkidszone.com/Product_Level1.asp?CategoryID =38
http://www.beyondplay.com/CATALOG/SEN3.HTM
http://www.calmcomforts.com/vest/vests.htm
http://www.comeplaytoys.com/kids/CPM-070.HTM
http://members.aol.com/encourmin/autism2.htm
http://www.otvest.com/
http://www.theraproducts.com/index
http://www.pfot.com/ShowProducts.php?interest=Sensory
http://www.saltoftheearthweightedgear.com/vestpage.html
http://www.myweightedblankets.com/vests
http://search.ebay.com/weighted-vest_W0QQfkrZ1QQfromZR8
http://www.saltoftheearthweightedgear.com/index.html
Blankets and Other
http://www.specialkidszone.com/Product_Level3.asp?ProductID= 1368
http://www.beyondplay.com/CATALOG/SEN3.HTM
http://www.calmcomforts.com/blanket/blankets.htm
http://www.theraproducts.com/index/page-catalog/main-8161/su b-8289/
http://www.saltoftheearthweightedgear.com/fabricspage.html
http://www.weightedblanket.net/
http://www.myweightedblankets.com/pricing___orders
http://www.ikea.com/webapp/wcs/stores/servlet/ProductDisplay
?catalogId=10101&storeId=12&productId=16269&la ng
Id=-1&parentCats=10107*10210 (Hanging Seat)
CATALOGS for Special Needs (and sites to order from)
http://www.otawatertown.com/resources.html
http://www.pfot.com/ShowProducts.php?interest=Sensory
http://www.specialkidszone.com/
http://www.beyondplay.com/index.htm
http://www.theraproducts.com/index
http://www.specialneedstoys.com/
http://www.stars4kidz.com/
http://www.superduperinc.com/catalog.htm
http://www.difflearn.com/
RESOURCES
Misc resources listed by state -- http://www.autism-pdd.net/resources-by-state.html
State Specific Yellow Pages
Autism Resources In Canada
Respite Service Locator
Protection and Advocacy
National Resources for Special Needs
Spec Needs Advocate / Attorney Directory
Special Ed: Putting the Pieces Together
SSI (Social Security)
SSI re evaluation (Thanks Tabitha)
School Vaccines NOT Mandatory
Banning Mercury In Vaccines
SLEEP PROBLEMS
1 suggestion... since these kids like predictibility and routine and
resist change... DONT START SOMETHING YOU DONT WANT TO HAVE CONTINUE.
SO here are some suggestions to try
Some say its a chemical imbalance with the seritonin levels in their
body... many swear by giving their child supplements like Melatonin
PLEASE CHECK with your childs dr to find a safe amount if you choose
this route
Melatonin for Sleep Disturbances in Children
For me part of the help was a small dosage of Clonidine.... even now at 9 1/2 without medication he can not fall asleep until well after 1 am!
** ALSO NOTE keeping a journal of when your child sleeps and is
awake daily behaviors and so forth is a good idea.. sometimes it gives
you better knowledge os what is going on when you can look back over
the past several days or weeks and start seen a predictable pattern
with your child.
Reward chart
Calming Activities like heavy loading or deep pressure massage
Many believe this is sensory related.. I will include some links here
How to know if its sensory / What to do *NOTE this also includes calming activities*
Sensory Integration - Must Read
Sensory Defensiveness & Sensory Diet
Sensory Integration & Teaching Strategies
Bed tents - they block out the outside stimuli providing a calming
and quiet environment for the child to relax and go to sleep Many
special needs catalogs sell them here are some links to various places
http://www.target.com/gp/browse.html/601-3573889-0737750?%5F encoding=UTF8&node=13419891
http://froogle.google.com/froogle?q=twin+size+bed+tents& hl=en&lr=&sa=N&tab=ff&oi=froogler
*** Just type in a search for TWIN SIZE BED TENTS and something should come up***
WEIGHTED BLANKETS! This has been the final thing to really help my
son and many other kids here! It isnt 100% but for my son its been 98%
I never would have believed if someone had said he would sleep through
the night from day 1 but he did!
http://www.specialkidszone.com/Product_Level3.asp?ProductID= 1368
http://www.beyondplay.com/CATALOG/SEN3.HTM
http://www.calmcomforts.com/blanket/blankets.htm
http://www.theraproducts.com/index/page-catalog/main-8161/su b-8289/
http://www.saltoftheearthweightedgear.com/fabricspage.html
http://www.weightedblanket.net/
http://www.myweightedblankets.com/pricing___orders
Here is some general info about Sleep problems in ASD kids....
http://www.angelfire.com/tn3/task/sleep.html
http://aut.sagepub.com/cgi/content/abstract/5/2/209
http://www.nas.org.uk/nas/jsp/polopoly.jsp?d=367&a=3376 *good Info here
Organizations
First I would say it may help to contact www.unlockingautism.org They have a Parent 2 Parent Network
listed that will help connect you to a parent in your state to help you
find resources. I know the VP of the organization lives in Georgia
(Atlanta area I believe) They also have a national call center 866-366-3361...
both are on the front page there are also links for so many things...
heres the links pages as I know for some it is confusing how to get
there... http://www.unlockingautism.org/news.asp?action=2 they have info on
FIND YOUR LOCAL Autism Society of America Chapter here http://209.200.89.252/search_site/index.cfm
Other organizations are listed here.... In your Opinion (Thanks Rose)
LEGAL RESOURCES
CHANGES IN SSI http://www.clsphila.org/abc_for_advocates_files/training_mat erial.htm
Supplemental Security Income / Social Security Administration http://autism.about.com/od/ssissa/
DISABILITY BENEFITS http://www.bizdir.org/index.phtml?browse=/Home/Personal_Fina nce/Retirement/Social_Security/Disability_Benefits/
LISTING OF MEDICAID, MR/DD, DEEMING WAIVER, TEFRA & OTHER ASSISTANCE PROGRAMS http://www.geocities.com/HotSprings/Villa/1029/medicaid.html
Disability, Advocacy, Knowing Our Rights http://headaches.about.com/od/disability/
BOOKS
Autism Resources
http://www.nap.edu/books/0309072697/html/
http://www.amazon.com/gp/reader/0399523863/ref=sib_dp_pt/104 -2414085-4493562#reader-link
http://www.amazon.com/exec/obidos/ASIN/1891383132/ref%3Dpd%5 Fsxp%5Felt%5Fl1/104-2414085-4493562
http://www.amazon.com/exec/obidos/tg/detail/-/185302967X/ref =pd_sim_b_6/104-2414085-4493562?%5Fencoding=UTF8&v=glanc e
http://www.amazon.com/gp/reader/0312326440/ref=sib_dp_pt/104 -2414085-4493562
http://www.amazon.com/gp/reader/0309072697/ref=sib_dp_pt/104 -2414085-4493562
http://www.amazon.com/exec/obidos/search-handle-form/104-241 4085-4493562